10 Aug 2007
He’s a 43 year-old from Hamilton, New Zealand. First diagnosed with the lung disease sarcoidosis in 2002, he started Autoimmunity Research Foundation’s Marshall Protocol in October 2003. Guss Wilkinson will now take your questions.

I was pretty miserable. I couldn’t take more than five steps at a time before stopping to gasp for breath. Then I had a slew of other symptoms. I was just 8-years old when I started to be plagued by psoriasis (a skin disease) and mild arthritis. Then, in the eighties I developed kidney stones and started to have frequent night sweats. I began to have terrible problems with insomnia. Around 2000 I began to experience short-term memory loss and concentration problems.
It was embarrassing. My boss came up to me one day and said, “Have you finished your report”? I thought to myself, “What report”!? I had absolutely no memory of my boss having asked me to write the report. But then, what was even more offsetting was that when I checked my files I realized that I had written the report, I just had no memory of writing it. I also had big problems remembering names and often confused simple terminology when I was writing.
Before starting the MP I did two different nine-month courses of the steroid medication prednisone. Of course, they both failed. After the prednisone my health started to go downhill really fast. The prednisone also made me gain a ton of weight which I’ve finally been able to work off since 2005. Before the MP I was so hungry. I just couldn’t stop eating – it felt like what I imagine pregnancy cravings might be like. I remember that once I went to the barber to get my hair cut, and when I looked in the mirror I was horrified – I didn’t recognise my own reflection.
I have felt completely normal for about the past year or so. And as Trevor Marshall predicted, my perception of “normalcy” has completely changed. Since I started to get sick at such a young age, I’m not sure that I’ve ever felt what it is to live without a certain level of symptoms. Now I think I may be reaching a stage where I feel better than I ever perceived was possible.
No, no lung symptoms at all. My insomnia is completely gone. Sleep is blissful, it’s wonderful. No kidney stones, no night sweats. The only thing left is a very small amount of psoriasis. I would say maybe 1% of my body is covered with psoriasis. But before I started the MP I had psoriasis over about 70% of my body. A host of other of symptoms are gone as well.
I have so much more energy and my mood is better. I think my wife and kids have nearly forgotten my grumpy, sickly and lethargic cocooning days. Also, before the MP, I had an uncontrollably high blood pressure, which averaged out at about 170/105. After a while on the MP, my blood pressure settled down to an average of 90/60.
Yes. I do. I have clear before/after lung x-rays. I have granulomas in the x-rays taken before I started the MP and no granulomas are visible in my current x-rays.
Around year three I found that my phlegmmy cough and sinus flow had pretty much gone away. As a result, my tolerance to exercise increased. It’s great to be able to exercise more because in my free time I teach karate. Of course, during the toughest times of illness I was able to only coach from the sidelines. But during year three I once again had the energy to train for my 5th Dan Black Belt in Karate. It was especially exciting because I hadn’t done a Karate grading since four years before starting the MP and that grading practically killed me, despite the fact that I tried to train very hard for the event. I didn’t realize how much my bacterial load was wearing me down at the time
I was really worn out during much of the time I was on the MP so it was very difficult to be there for my family. The IP reaction also brought on a certain level of neurosis. It meant that sometimes I’d say nasty things that I really didn’t mean or I’d apologize for things that I didn’t need to apologize for.
In some aspects yes. The guidelines weren’t as clear as they are today. When I first started the treatment my GP and I misunderstood how to dose my antibiotics. I started with 200 mg of minocycline and my immune reaction was way too strong. But Dr. Marshall quickly told me to lower the dose and I was back on track. Also, not much was known at the time about how sun/light affects IP so I didn’t block light for a while. It was also hard to justify my decision to do the MP to others, who of course had never heard of the treatment.
Well, the MP literally cured ALL my health problems. Before starting the MP I had no idea that all my symptoms were connected and were all the result of bacterial infection. So it was a real eye opener when all my symptoms responded to the treatment. So although I started the MP for sarcoidosis, it fixed everything else as well…a real bonus! My experience certainly discounts the torpedo theory – the idea that each health problem needs to be solved with a different intervention.
If you understand the MP you will stick with it. Educate yourself. Read as much material as possible on the site and elsewhere so you can understand the reasons behind what you are doing. Then persevere. It helps also to take up an activity that distracts you from your misery. I continued my education on a part time basis, starting off with a post graduate diploma in Management; then onto a Masters of Management Studies and I am now studying towards my PhD.
I am making up for lost time with my family and having as much fun as I can with my Kids while they are still teenagers. I am much more actively involved with my karate club and I am, once again, able to lead by example. I am also very much involved with the community and I am currently the Chairman of the Board of Trustees at our local High School.
I think the poetry I wrote before the MP was an unconscious expression of farewell. At that point my downward slide was so fast and aggressive that I didn’t think that I had all that long left to live. Now if you read my poetry I think you will definitely notice a difference in tone.
35 Responses for "Interview with Guss Wilkinson - Sarcoidosis, psoriasis, insomnia"
Hi, I have been suffering from Sarcoidosis effected my lungs/lever/splean at the begining, Iam taking Prednesone for the past 3 years, if I come off the prednosone/below 3mg the symptoms are coiming back. I have lot of spitting and fever like symptoms.
Pls advise if it can be cured and what is the fee and treatment protocal.
Thanks
Adi
Hi Adi,
You can definitely be cured if you do the MarshalL Protocol. There are actually no fees whatsoever associated with the treatment - the Marshall Protocol study site is funded by the California non-profit agency “Autoimmunity Research Foundation” and all the nurse moderators and patient advocates volunteer their time.
In order to get started you should go to the following website:
http://www.curemyth1.org. On that site you can post any questions your have about the treatment - how do get started, how to find a doctor, any concerns etc and your questions will be answered by patient advocates.
Here is a link to the Phase 1 Marshall Protocol guidelines:
http://www.marshallprotocol.com/forum2/2275.html
You should also become familiar with all the information on the Marshall Protocol study site. http://www.marshallprotocol.com
See this forum in particular: http://www.marshallprotocol.com/forum2/2275.html
The prednisone you are taking is only covering up your symptoms. Read the following article to learn the basics of the treatment and why patients with sarcoidosis should not take prednisone.
http://bacteriality.com/about-the-mp/
Best,
Amy
Don’t forget to post at curemyth1.org!
to read about Gus is very encouraging,I was put on prednisone on 9/nov 07,as a very reluctant last resourt,but suffered bad side effect and am now being taken off it after only 16 days. a friend found info on mp and brought it to me.told my GP about it,off to GP tomorrow again armed with more info, hopefully he is keen.
Would be worth while my GP contacting Gus’s.
will ask Gus to check this is ok latter if my guy will get involved.
cheers John.
Hi John,
I’m so glad that you are going to present the MP to your doctor. Good luck!
As for the prednisone, stopping it after only 16 days was one of the best decisions you have ever made. I would say that because you didn’t use it for long, your immune system will be in better shape when you start the MP.
Best,
Amy
Hi Amy,
thanks for your quick replies and support.
my doc was away this morning, the doc i saw not very receptive, left a file of info with a letter to my doc, with brief questions, hopefully he will be more positive.
would it be possible for Guss to contact me directly by email.
is there a doctor in Christchurch using the program.
cheers John
Hi John,
Sorry to hear your doc wasn’t in. I will send Gus your email address and ask him to contact you if he is willing.
You can also request a list of doctors in your area from the MP site at this link. There may not be a doctor right in your town but hopefully somewhere nearby.
http://www.marshallprotocol.com/forum11/9355.html
If not, some people drive long distances to see a good MP doctor. When it comes down to it, it’s worth it.
Amy
I was diagnosed with Sarcoidosis in 2003….I am very interested in this study….I don’t have health insurance and it is making it impossible for me to be seen on a regular basis. Can you refer some information to me on who and where I might be able to get help?
Hi Nikki,
Good to hear from you. The Marshall Protocol will work to eliminate the slow growing bacteria causing your illness and allow you to become a completely healthy person again. That being said, it is essential that you do everything in your power to do the treatment despite financial barriers.
I also do not have insurance and have been on the Marshall Protocol for about 2 1/2 years. I personally also have very little money. The first good part about the Marshall Protocol in terms of money is that since the study site is run by a non-profit agency, all guidance from nurse moderators once you are on the treatment is free. So once on the treatment, people post their symptoms in a weekly progress report and all the feedback they get is free of charge - and the nurse moderators really know their stuff!
That being said, you still need to see a doctor often enough to get the scripts for the Marshall Protocol medications. I dug into my savings to see a doctor in the area, but since he realizes that this is a long treatment and I am in control of my own antibiotic dosing he doesn’t make me see him very often. You could try talking with your doctor and describing how you don’t have insurance and ask him kindly to let you have less frequent follow up visits, or maybe conduct them over the phone which is less expensive.
In terms of the antibiotics, there are patient assistance programs that will allow you to get the drugs for free IF you make under a certain amount of money each year. Read more about these programs here.
http://www.rxassist.org/
The only other medication you will need to purchase is Benicar. There is a patient assistance program for Benicar but the company will only give you one pill and day and you will need to take four a day. So you will have to purchase the other three pill out of pocket. I buy my Benicar from Canada where it is sold for the cheapest price, through the following website:
http://www.getcanadiandrugs.com
Hopefully if you get some assistance with the meds and can benefit from the free advice on the site you can make the Marshall Protocol work. In my opinion it’s worth spending every penny possible to do the treatment if it means getting you health back, which is what I’m currently doing.
If you have further questions about the treatment or how to manage the Marshall Protocol without insurance be sure to post at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1).
The experienced patient advocates on that site will answer your questions free of charge and provide you with further guidance.
Good luck!
Amy
Hello Guss,
Well i am fed up with the whole sarcoidosis thing i dont think i have sleep in 3 years i have the night sweats also and as for saying and doing nasty things i was married for 26 years and left my husband and divorced him as i just did not want to have any one in my life at this point felt wortless.We are now trying to put thing”s back togther after a year i have so much pain in my body that i feel like why put someone through this as well as myself he did not dersiver what i did to him and i feel it had alot to do with the brain fog i have and the depression i was going through i also have firbromyalgia and suffer from cfs and arthritis bad headaces that would put me in the hospital for weeks at a time i felt this was no way to live and not fare to him and or our son as i was making them miss out on things in life with the family. They put me on prednisone and had to be taken off right away as i was alerget to all of the staroids put on depression meds as well as 26 other meds nothing was working.I got a bad infcion due to bad teeth were i was put on iv antibiotic that killed all the good bactera and all the bad bactera so they had to feed me back the good bactera. And as i can tell you from that happen to me it was the best thing in this world for the 6 months it lasted i felt like a brand new person like i had been hit with a wand and was all better till they came back the bad bacteria then i went right down hill it took me and my friend a long time to find out what made me feel so good but i did and that was why but i feel i so sick now i just dont no what to do i am gong to bring all of this to my dr attion and hope she will help and i am bring her your story as well your story has given me hope when i need it the most i feel myself pushing the ones who love me away once more and this is not fare to them my x husband has asked me to remarry him and i said yes so things are looking up and life has meaning once more and your story has shown me that there is a god and my prayres are beiing heard. Thankyou so much you dont even no what you have done for me and my familey and god bless you and yours. your friend for life Laura
Hi Laura,
This is Amy - I write the articles on this site. I’m sure Guss will write you back too, but I wanted to say that I can empathize with how you feel right now. I have CFS but many of the symptoms are similar to those of sarc and three years ago I literally just bit the dust. Every part of my body from head to toe was killing me. I couldn’t stand the pain and I couldn’t get out of bed. I was also in a relationship at the time. I wasn’t married but I was very in love with the person I was dating. I felt the same way as you. I pushed him away and broke up with him even though it was the last thing I wanted to do. It was a horrible experience. But, like you, I didn’t feel it was fair to bring him into my miserable world.
I want you to know that the Marshall Protocol is your way out. I am vastly improved now and expect to be fully recovered within a year or so. Many sarcoidosis patients are reporting recovery/improvement too. This treatment really works. After about a year on the MP I already starting feeling like a more capable person. I met another guy, and while I was hesitant about starting another relationship at first, I realized I was up for it and we have been together since. 2 1/2 years later, I am a completely different person. We have quite a normal relationship and I when I think back on the days before I started the MP and had to end that first relationship I can’t believe what I was dealing with at the time that I no longer have to deal with.
I encourage you to read as much as possible about the Marshall Protocol both on this website and on the study site http://www.marshallprotocol.com.
The treatment will bring you to a place where you can reconnect with your husband again if you choose to.
Best,
Amy
PS The reason you felt good on high dose antibiotics is because standard methods that use high dose, constant levels of antibiotics are unable to effectively eliminate L-form and biofilm bacteria. The reason lies with the fact that aside from their ability to block bacterial ribosomes, bacteriostatic antibiotics also have effects on the immune system. Unfortunately, some of these effects are immunosuppressive. For instance, the tetracycline antibiotics have been widely recognized as being able to inhibit various functions of phagocytes, the white blood cells that engulf and kill bacteria. These effects seem to be independent of their antibacterial effect.
These immunosuppressive properties decrease the amount of L-form and biofilm bacteria killed by the immune system. This is why some people report feeling better on high-dose antibiotics. The high levels of antibiotic prevents the immune system from killing these forms of bacteria, resulting in a temporary decrease in the toxins the pathogens release as they die and the inflammatory cytokines produced by the immune system. However, in reality, the person’s L-form bacteria remain alive and find it easier to spread to new tissues and organs.
That information came from the following article:
“Getting it right: how to correctly target L-form bacteria”
http://bacteriality.com/2007/10/11/antibiotics/
Amy, i want to thank you for your story as well i felt like i had no reason to be putting anyone through this i had done it for far to long and i thank god that my husband loves me so he is with me now and we are going to become man and wife once more and i am back in with our son and my grandkids i will tell you them little ones give me the will to live they dont care if nana is sick they love me for who i am and i am going to get started on the MP as soon as i can see my dr and in hopes she will belive in it as well but i cant find what i need to be taking or how i am to start things out were do i go for this and thank you for your help. I have been reading for weeks now and cant find the right place i guess sos i need help on how to start the MP and how to get the meds going.Your new Friend Laura
P.S. do you have msn so we could chat live i need help bad i will send you info in on how to get a hold of me. i thank you so for your help
Hi Laura,
I’m so glad you and your husband are back together and that you have a supportive and loving family. I’m also SO glad to hear that you are looking into the MP and planning to present information about the treatment to your doctor.
In order to get a better idea of the MP you should read the following piece:
“About the Marshall Protocol”
http://bacteriality.com/about-the-mp/
Then you should read as much information as you can on the Marshall Protocol study site. This forum is a good place to start:
“Essential information about the Marshall Protocol”
http://www.marshallprotocol.com/forum2/
Then, if you still have questions about how to start the treatment go to the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1)
The patient advocates on that site will answer all your questions related to the Marshall Protocol free of charge and will help guide you through the steps of starting the treatment and presenting it to your doctor.
Best,
Amy
Most of my adult life i maintained a set weight of 175 lbs. December of 2002 i had a motorcycle accident and spent 6 weeks in a medically induced coma and had a bone flap removed from my skull. I was brought out of the coma went o physical therapy released from the hospital and went back2 months later to have the bone flap put back in. Got a staph infection and had the bone flap removed and had to go back almost a year later to get a titanium implant put in. After all this i started gaining weight and now im at 258 have developed exzema and sarcoidosis. Could the MP help me possibly with the sarcoidosis and exzema?
Hi Grant,
Absolutely! The MP is a long treatment that requires persistence, but if you stick with the treatment it will not only help your sarcoidosis and eczema, but cure them completely. That’s because the MP is a curative treatment that targets the bacteria that cause sarcoidosis, eczema, and myriad other chronic diseases and symptoms that mainstream medicine still considers to be of “unknown cause.”
To be more specific, sarcoidosis and eczema are caused by different species of L-form bacteria - bacteria that have mutated from their original classical form, lost their cells walls, and are thus able to hide undetected inside the white blood cells of the immune system and protected protein matrixes called biofilms.
Read more about L-form bacteria here:
http://bacteriality.com/2007/08/15/l-forms/
The Marshall Protocol uses pulsed, low-dose antibiotics along with a medication that activates the immune system to eliminate L-form bacteria over a period of several years.
Here is a brief description of the treatment:
http://bacteriality.com/about-the-mp/
Here is a piece that describes how the Marshall Protocol medications work in greater detail:
http://bacteriality.com/2007/10/11/antibiotics/
I’m very sorry to hear about your motorcycle accident and all the surgery that you have had to endure as a result. It is extremely common that people pick up L-form bacteria during surgery as the pathogens are not killed by the standard filtration processes that kill classical bacteria and are not killed by soap or water. Staph is one of the most common bacterial species to transform into the L-form and it is almost certain that the bacteria from your staph infection did exactly that, leading to the chronic symptoms you are experiencing now. I’m sure other L-form bacteria were introduced as well.
Many people who become ill with L-form bacteria find that they cannot keep their weight under control. One reason for this is that L-form bacteria create substances that bind and block the Vitamin D Receptor - a fundamental receptor of the body that controls the activity of the innate immune system. This means that as a person accumulates L-form bacteria, their immune function decreases. Subsequently, the immune system has trouble keeping the population of bacteria in the gut under control. Pathogenic species such as firmicutes that force to host to absorb more calories tend to take hold, causing the patient to gain weight. Read more about research on bacteria and obesity here:
http://bacteriality.com/2007/08/09/obesity/
Since the Vitamin D Receptor is responsible for transcribing insulin receptors, patients infected with L-form bacteria also find that their insulin pathways may become dysregulated which also leads to weight gain. Thus, are many people on the Marshall Protocol who have found that as they have progressed through the treatment, their weight has returned to a normal range.
I’m sure you still have many questions about the Marshall Protocol. The best place to ask these questions is at the website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1)
The patient advocates on that site will answer your questions free of charge. There is also no charge to do the Marshall Protocol and for counseling from the study site as the treatment is run by a California non-profit agency.
Best,
Amy
Amy this email is unrelated to MP. I want like to make contact with Gus (an old family friend). Please could you pass on my email address to him asap
Many thanks
Andrew
Hi Andrew,
I certainly will. I’ll send the him your email address right now.
Best,
Amy
Amy:
I am not sure is I should be writing to you but here goes.
Four year ago I was diagnosed with sarcoid and treated with prednazone. I also have sever allergies which I have treated with acupuncture
LastrApril I received a clean bill of health from sarcoid but during the hight of my allergy season the sarcoid returned with a vengance.
I reald about the MP program. Please let me know if there are physicains that practive this in New Jersey, Manhattan or Philadelphia.
I do not believe that prednazone is the only answer.
I am being treated at the University of Pennsylvania Hospital by Dr. Rossman who is very gracious - but there must be more to this treatment than prednasone.
I would be very appreciative if you can assist in this search. If need be I will go the Califonia.
Thank you in advance for you time to this search
Tammy
Hi Tammy,
You are absolutely right. There is MUCH more to treating sarcoidosis and allergies then predinisone. That is because doctors who use prednisone are unaware of the actual cause of sarcoidosis - it is a bacterial disease. The bacteria that cause sarcoidosis are called L-form bacteria - they are bacteria that have mutated from regular forms of bacteria, lost their cell walls, and are able to hide undetected inside the cells of the immune system. Read more about them here:
http://bacteriality.com/2007/08/15/l-forms/
Unfortunately doctors are not taught about these bacteria in medical school, nor do they show up on conventional laboratory tests, which explains why your doctor thinks prednisone is your only treatment option.
The Marshall Protocol will allow you to target and kill these bacteria so that when you complete the treatment you will feel completely healthy again. Read more about the Marshall Protocol at these two links:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
Dr. Marshall is a biomedical researcher, not a doctor. So, as I think you understand, you need to work with your own doctor. You can request a list of doctors who use the Marshall Protocol in your area from the Marshall Protocol study site at this link:
http://curemyth1.org/forum2/349.html
i also live in Manhattan, so if you’d like the name of my doctor send me an email at amy.proal@gmail.com. He’s taking new MP patients.
Also, you may be able to convince your current doctor to put you on the MP. In case you want to give that a try, here is a link to an MP presentation book for doctors. You can print it out and show the information to your current physician.
http://www.ginariggio.com/MPP1PACKET/infopacket.html
Between all these options I am confident you will find an MP doctor and I am so glad that you intend to pursue a curative option rather than use a steroid that only “band-aids” your disease symptoms.
Good luck!
Amy
I have Crohn’s and my mom just passed with sarcoidosis..it took doctors 16 years to diagnosis it as sarcoidosis……I have been told that both these diseases have a common cause…a bacteria, similar to TB…
Recently the Crohn’s has quieted but other symptoms have replaced them…headaches, facial tick (left eye), memory loss, acid reflux..
Where can I go to be evaluated for the MP
I have Crohn’s and my mom just passed with sarcoidosis..it took doctors 16 years to diagnosis it as sarcoidosis……I have been told that both these diseases have a common cause…a bacteria, similar to TB…
Recently the Crohn’s has quieted but other symptoms have replaced them…headaches, facial tick (left eye), memory loss, acid reflux..
Where can I go to be evaluated for the MP
Hi Tom,
It sounds like Th1 disease runs in your family. Th1 disease is the term coined by biomedical researcher Trevor Marshall to refer to chronic inflammatory diseases that are bacterial in origin. His research and the research of several other scientists has made it clear that both sarcoidosis and Chrohn’s disease are caused by different species of L-form bacteria - bacteria that have mutated from classical bacterial forms, lost their cell walls, and are able to hide inside the cells of the immune system where they cannot be killed. Read more about them here:
http://bacteriality.com/2007/08/15/l-forms/
And an article with a scientist who works with them here:
http://bacteriality.com/2007/09/09/markova-interview/
A recent paper just came out in which Josep Casadesus, an expert on L-form bacteria, stated that he believes every single form of classical bacteria has the ability to transform into the L-form. That’s a lot of different species considered that we have yet to identify many of the bacteria in our environment. All these different species of L-form bacteria are easily traded among family members, and can be passed at birth from mother to child. Your mother certainly passed some of her L-form bacteria to you, which probably was the start of the bacterial load that caused you to develop Crohn’s.
Read more about how bacteria are spread among family members here:
http://bacteriality.com/2007/10/31/family/
http://bacteriality.com/2007/10/17/infants/
The good news is that the Marshall Protocol uses a medication that activates the immune system along with pulsed, low-dose antibiotics in order to effectively kill L-form bacteria. When all your bacteria are killed, you will end up completely healthy again. Read more about the Marshall Protocol here:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
Dr. Marshall is a biomedical researcher so each patient on the Marshall Protocol must work with their own physician. That means you need to find a doctor in you area who is willing to put you on the treatment. However, once on the treatment you can also start a progress report on the Marshall Protocol study site where you can receive free guidance from the nurse moderators who can also advise you and answer questions. But you still need to find a doctor who is at least willing to prescribe the MP medications. There is a plethora of information to present to your doctor about the MP on the Marshall Protocol study site. This forum is a good place to find information:
http://www.marshallprotocol.com/forum2/
If you don’t think your current doctor is willing to put you on the MP, you can also request a list of doctors who already have patients on the Marshall Protocol in your area off the Marshall Protocol at the following link (those doctors are likely to take you on as a patient as well):
http://www.marshallprotocol.com/forum11/11348.html
if you still need help finding a doctor, the best place to seek advice is at the following website:
http://www.curemyth1.org (Th1 stands for diseases caused by L-form bacteria, hence the name Cure My Th1). The patient advocates on that site, who volunteer for the non-profit agency that runs the MP, will give you other suggestions on how to find a physician.
With some persistence you should be able to find a doctor and at that point I hope you do start the MP as you newer symptoms (headache, memory loss etc) are also associated with L-form infection, meaning that it is very important that you start to reduce your bacterial load rather then let it spread any further.
Good luck!
Amy
I have been diagnosed with sarcoidosis, since 2004, at least that is what they think it is and have been on prednosone for that time, i stop taking the prednosone in 2006 and my symtoms came back with a vengance in 2007.Since then i have been on prednosome again. I have gained so much weight on this drug and the doctors say this is for life.There must be something else i can do. please reply with some help
Hi Judy-Ann,
I can definitely offer you help with your sarcoidosis. In fact this website is dedicated to explaining research related to a new treatment for sarcoidosis that does not use prednisone but is instead a curative treatment for the disease, meaning it will allow you to recover your health.
Recent molecular modeling research by biomedical researcher Dr. Trevor Marshall and the work of several other scientists has made it clear that sarcoidosis is a bacterial illness. It is caused by L-form bacteria, or bacteria that have mutated from their classical form, lost their cell walls, and are able to live undetected inside the cells of the immune system where they cannot be killed. These bacteria have been studied by scientist for over a hundred years but have only recently been fully linked to inflammatory diseases like sarcoidosis. Your doctor is unaware of these bacteria because they don’t show up on current conventional lab tests.
Read more about L-form bacteria here:
http://bacteriality.com/2007/08/15/l-forms/
And an interview with a researcher who works with them here:
http://bacteriality.com/2007/09/09/markova-interview/
The Marshall Protocol is a medical treatment that uses pulsed, low-dose antibiotics and a medication that activates the innate immune system to gradually kill a patient’s L-form bacteria. When all bacteria are killed the patient is once again healthy. There are many people with sarcoidosis reporting full recovery from their disease thanks to the Marshall Protocol.
While other treatments for chronic disease use palliative medications (such as prednisone) in an effort to cover up symptoms, the Marshall Protocol is a curative treatment, which addresses the root cause of the problem.
Information about the treatment can be found at the study site, marshallprotocol.com. The site is run by the staff of the Autoimmunity Research Foundation, a California-based non-profit agency. Over 200 health professionals are members of the site, and discussions are moderated by a group of volunteer nurses. There is no charge to use the website or the treatment and all patients are welcome to participate.
Read more about the treatment here:
http://bacteriality.com/about-the-mp/
And here:
http://bacteriality.com/2007/10/11/antibiotics/
As mentioned above, patients who start the Marshall Protocol are encouraged to post about their progress on the Marshall Protocol study site, a website that also has a wealth of information that explains the treatment. Be sure to look over the site. This forum is a good place to start:
http://www.marshallprotocol.com/forum2/
It is not at all surprising that you relapsed severely after taking prednisone and that you are continuing to get sicker while taking the drug. Unfortunately, prednisone is a steroid medication that only “covers up” symptoms of sarcoidosis by slowing the immune system. Because it slows the immune system it allows your L-form bacteria to spread with greater ease. That’s why I highly encourage you to stop the medication and start the Marshall Protocol.
I’m sure you have many more questions about the Marshall Protocol. The best place to ask them is at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1)
The patient advocates on that site, who volunteer for Autoimmunity Research Foundation, will answer your questions free of charge.
Good luck!
Amy
Hello, I just found this page after doing research on sarcoidosis. I am a 36-y-o African American female. I found out I have sarcoidosis in November of 2006, mainly in my lungs. My doctor put me on steroids for 6 months. I gain a lot of weight but I could actually move around without getting short of breath. After my six months of treatment I was okay, symptom free for 3 months. Now I have a whole heap of symptoms. I can’t sleep, I have a cough that won’t go away, I can barely breath through my nose and it’s constantly running. The doctor told me that my lungs looked good and he even did a liver panel which suggest that my sarcoidosis isn’t attacking the lungs or liver. But what do I do about the other symptoms? What is Marshall Protocol? Please anyone reading this please help me!
Hi Adrienne,
I’m sorry to hear that your sarcoidosis symptoms are escalating but I’m not at all surprised to learn you have developed more symptoms after taking prednisone. Unfortunately prednisone is not a curative treatment for sarcoidosis. It works by slowing the immune system, which temporarily “covers up” some of your symptoms, but makes patients sicker in the long run.
The reason why prednisone is such a problem for patients with sarcoidosis is that the latest research on sarcoidosis has confirmed that it is a bacterial disease. It is caused by L-form bacteria, which are forms of bacteria that have mutated from their classical forms, lost their cell walls, and are able to hide inside the cells of the immune system where they cannot be killed. Scientists have been studying these bacterial forms for over 100 years, yet since they don’t show up on conventional lab tests (the lab tests that I’m sure your doctors are using) most doctors remain unaware of their presence. Since prednisone slows the immune system, it allows these bacteria to spread with greater ease, which is certainly why after you took the drug, you noticed an increase in symptoms.
Read more about the L-form bacteria here:
http://bacteriality.com/2007/08/15/l-forms/
This is a link to an interview with a researcher who works with L-form bacteria:
http://bacteriality.com/2007/09/09/markova-interview/
The good news is that the L-form bacteria that cause sarcoidosis can be killed by a treatment called the Marshall Protocol. The treatment uses a medication that activates the immune system and pulsed, low-dose antibiotics to gradually kill the bacteria.
The Marshall Protocol is being used by physicians worldwide to treat a variety of chronic inflammatory and autoimmune diseases including sarcoidosis. While other treatments for chronic disease use palliative medications in an effort to cover up symptoms, the Marshall Protocol is a curative treatment, which addresses the root cause of the problem.
Information about the treatment can be found at the study site: http://www.marshallprotocol.com
The site is run by the staff of the Autoimmunity Research Foundation, a California-based non-profit agency. Over 200 health professionals are members of the site, and discussions are moderated by a group of volunteer nurses. There is no charge to use the website or the treatment and all patients are welcome to participate. You can also find information about the Marshall Protocol at the Autoimmunity Research Foundation website:
http://autoimmunityresearch.org/
These articles also explain the Marshall Protocol in greater detail:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
There are hundreds of people with sarcoidosis on the MP. Almost all those who have reached the later stages of the treatment are reporting improvement and recovery. Here is an interview with a woman who used the MP to recover form sarcoidosis. Maybe you can identify with her story:
http://bacteriality.com/2007/11/04/interview7/
I assure you that although your doctor has told you that your lungs arn’t any worse, if you don’t take action to kill the bacteria causing your disease they will spread and your lungs and liver. So I urge you to learn about the Marshall Protocol and start the treatment as soon as you can.
I’m sure you still have many questions about the Marshall Protocol. A good place to ask them is at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). The patient advocates on that site, who volunteer for Autoimmunity Research Foundation, will answer your questions free of charge.
Good luck!
Amy
I’ve recently lost a good friend at the age of 27 to sarcoids. Only 5 or 6 years ago the doctor was telling us it was just a bad case of asthma, and by the time they figured it out he had scar tissue they could not treat.
I wish this cure had been more widely known before his body gave up on him in January.
I pray that this treatment really does help people and cure them because I would not wish to see anyone go through what he did. All the best to those trying out this treatment, it’s a scary disease, especially when doctors tell us it can’t be cured. Good to see that someone is onto something good.
Hi Mary,
I’m so sorry to hear about your friend’s death. I also wish that he could have found the Marshall Protocol. I know how badly he must have suffered and it makes me very sad.
That’s why I started this website. Because the Marshall Protocol does work and I can’t stand the thought of people like your friend dying from a disease that now can be effectively treated. It’s absolutely of upmost importance to spread word about the Marshall Protocol because so many lives are at stake.
The scary part is that I speak to many people who are at a point similar to where your friend was at when he first got diagnosed - at the point where he was told it was just asthma. Some of these patients have been told incorrectly by their doctors that sarcoidosis is not a deadly disease, and that it might somehow go away without treatment. I tell them NO! Sarcoidosis will kill the patient if they are left untreated. And the Marshall Protocol is the only treatment that kills the bacteria that cause sarcoidosis. Yet some people don’t take me seriously.
I hope other people with sarcoidosis realize that they are dealing with a deadly disease and that they need to take action. Corticosteroid medications like prednisone will only dampen the symptoms of their demise. Instead, they need to kill the bacteria at the heart of the disease and start the MP as quickly as possible.
Again, I’m so sorry about your friend’s death.
Best,
Amy
My daughter has been diagnosed with sarcoid. She is only 6 years old. I heard it is very rare in children. Is this true? Her doctor wants to start her on methotrexate asap. My husband and I are seeking a second oppinion at this time. I am afraid of the long term effects of this drug. She is so young I don’t know what to do.
Hi Marcy,
I’m so sorry to hear about your daughter’s diagnosis, but she is young and can get her health back by doing the treatment for sarocoidosis described in further detail on this website. It’s called the Marshall Protocol.
The Marshall Protocol is a medical treatment being used by physicians worldwide to treat sarcoidosis and other inflammatory diseases. It is a phase II community-based internet study that is monitored by the FDA.
The treatment is run by the staff of the Autoimmunity Research Foundation, a California-based non-profit agency. Over 200 health professionals are members of the site, and discussions are moderated by a group of volunteer nurses. There is no charge to use the website or the treatment and all patients are welcome to participate.
Here is a link to the Autoimmunity Research Foundation website:
http://autoimmunityresearch.org/
And here is a link to the study site:
http://www.marshallprotocol.com
The Marshall Protocol is based on very new, cutting edge research which has made it clear that sarcoidosis is a bacterial disease. It’s caused by L-form bacteria, or bacteria that have mutated from classical forms of bacteria, lost their cell walls, and are able to hide undetected inside the cells of the immune system. Most doctors are oblivious to their presence because they don’t show up on standard laboratory tests. Read more about them here:
http://bacteriality.com/2007/08/15/l-forms/
To date, the Marshall Protocol is the only treatment that can effectively kill these bacterial forms. Patients on the treatment take low-dose antibiotics along with a medication that activates the immune system to gradually wear away at their bacterial loads. When all their bacteria are killed, they end up completely healthy once again. Read more about the MP here:
“About the Marshall Protocol”
http://bacteriality.com/about-the-mp/
“Getting it right: how to correctly target L-form and biofilm bacteria”
http://bacteriality.com/2007/10/11/antibiotics/
I am very concerned that your doctor wants to put your daughter on methodextrate. Methodextrate works by slowing the immune system. When the immune system is slowed, less L-form bacteria die. This makes the patient feel temporarily better because it is when L-form bacteria DIE that they cause a major rise in symptoms for the host. That is because when they are killed, the immune system releases cytokines in response to their death, and the bacteria themselves release toxins.
So methodextrate temporarily slows this die-off reaction but in the long run it will make your daughter much sicker. Because her immune system will no longer be working up to par, the bacteria at the heart of her disease will find it much easier to spread to new tissues and organs. She is so young that putting her on methodextrate will doom her to a life of illness and relapses.
Thus, I urge you to find a doctor who is willing to treat her with the Marshall Protocol. The treatment is new, and thus controversial, but it does work. You may have to find a doctor already familiar with the MP in order to treat your daughter. You can request a list of MP doctors in your area off the MP study site at this link:
http://www.marshallprotocol.com/forum11/11348.html
I highly encourage you to read this interview with a doctor who uses the MP to treat his patients:
“Interview with Dr. Greg Blaney”
http://bacteriality.com/2007/10/31/blaney/
Because you daughter is so young, she may need to do a modified form of the treatment. I don’t know if there are any six-year-olds participating in the study although there are certainly young children. The good news is that children seem to recover more quickly than adults on the MP - at least from what I have observed.
Because of your daughter’s age I need you to post about her circumstances at the following website:
http://www.curemyth1.org (th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). the patient advocates and nurse moderators on that site will be able to tell you more about how the treatment might be adapted to work for a 6 year-old. Maybe it won’t even have to be adapted, I just want you to check with the nurses to make sure.
The Marshall Protocol has given me my life back, and many, many people with sarcoidosis are living full lives thanks to the treatment. Your daughter can be among them, and she is so young that she may recover soon enough to enjoy a very fruitful childhood. Please don’t put her on methodextrate!
Best,
Amy
i just diagosed yesterday with sarcoid. my dr said to look on the internet cause he didnt know what to do for me .. he gave me advair to breath daytime and at night i have severe sleep apnea so i am on a breathing machine.. he told me i have nogels in the lungs but he doesnt know how bad this will get or how to treatthis .he says he cant put me on steriods cause i have ulcers and diverticolis also .. my breathing gets difficult but i have learned to adjust somewhat.. is there any doctors in jacksonville florida who i can go see to find out what i can do. this disease is not something i want to play foolishly with .any info will help since my doctor knows nothing about this disease… thank you
Hi Brenda,
You are absolutely right. Sarcoidosis is nothing you want to play with! I am glad you are taking action in order to learn how to treat the illness on your own.
This site discusses science related to the first curative medical treatment for sarcoidosis, the treatment Gus in the above interview used to recover. There are also hundreds of other patients with sarciodosis completely reversing their disease at the moment thanks to the treatment. It’s called the Marshall Protocol and is part of a phase II study monitored by the FDA. Over 400 medical professionals are members of the study site and discussions are moderated by volunteer nurses. The treatment is run by the California non-profit organization Autoimmunity Research Foundation. Here is a link to their website:
http://www.autoimmunityresearch.org
The Marshall Protocol is based on the latest molecular and clinical research which has made it clear that sarcoidosis is a bacterial disease. It is caused by chronic ideopathic biofilm and L-form bacteria that persist in the lungs in numerous ways. Here is an article that describes L-form bacteria in greater detail:
http://bacteriality.com/2007/08/15/l-forms/
These bacteria have been cultured and photographed repeatedly in the tissues of patients with sarcoidosis. Yet your doctor does not know about them because they don’t show up on conventional laboratory tests and doctors are not taught about them in depth during medical school (yet!).
The Marshall Protocol uses a medication that activates the immune system, along with pulsed, low-dose antibiotics to gradually wear away at these bacteria. The following two articles describe the treatment in further detail:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
Here is an interview with a doctor who administers the MP:
http://bacteriality.com/2007/10/31/blaney/
I also recommend you read the other interviews on this site with people who have also recovered from sarcoidosis thanks to the MP. There are many, many more people recovering who have not been interviewed.
Since the treatment is part of a phase II study, if you start the treatment, you will have to report your symptoms in a short weekly progress report on the study site. Here is the link to the study site. You should read as much information as possible on the study site:
http://www.marshallprotocol.com
You are actually in a fortunate place. Because you were just diagnosed with sarcoidosis, you bacterial load is probably fairly low and you should be able to progress through the treatment relatively easily. The sooner one starts the MP after diagnosis, the easier it is to do.
So I suggest that you find a doctor in Jacksonville that will put you on the Marshall Protocol. You can request a list of doctors in Florida who have patients on the Marshall Protocol at the following link:
http://www.marshallprotocol.com/forum11/11348.html
You can also click the “members” button on the upper right hand of the study site screen and search for members by location. When you find other members near Jacksonville, send them a private message over the board asking who their doctor is.
It’s very important that you start the MP. The 2003 ACCESS study on patients with sarcoidosis found that not one of the thousands of study subjects recovered over a two year period, and that any patient to remain ill with sarcoidosis for two years is likely to die from the disease over the following ten to twenty years. But if you kill the bacteria at the heart of your disease you can escape this fate and recover.
It’s a blessing you can’t take steroids. Steroid medications only act as palliatives that slow the immune system so that it kills less of the bacteria that cause sarcoidosis. Since the bacteria produce most symptoms when they die (the liver and kidneys must deal with the debri from the die-off), the patient feels temporarily better. But since their immune system is weakened, they get sicker in the long-run.
If you have more questions about the Marshall Protocol, the best place to ask them is at the following website:
http://www.curemyth1.org Th1 refers to diseases caused by bacteria, hence the name Cure My Th1
The patient advocates will answer your questions free of charge. There is also no charge to participate in the study.
Good luck!
Amy
Dear Amy.
I feel like a prayer has just been answered. I have just discovered this site a few weeks ago and have taken my time to go through the information provided.
Never before have some many unanswered questions which have built up over the years for which my Doctors have no answers, been answered.
I’m blown away – finally a cure!
I pray this is for real and not a load of hot air!!
I have been suffering with sarcoidosis for the past 18 years. 18 years of hell!
I was first diagnosed in 1990 at the age of 26, at the Lister Hospital in Stevenage Hertfordshire UK and presented the following symptoms;
Chronic cough, shortness of breath, week/tight chest, massive weight loss, stiff/swollen joints, week, lethargic, fatigued, always tired, hot & cold sweats, insomnia, general feeling of couldn’t be bothered to do anything.
I was sent for 2 blood tests which both came back bizarre.
I was then sent for x-rays, liver biopsy/skin biopsy and a number of other tests which I can’t remember and eventually was diagnosed with sarcoidosis.
I was then prescribed prednisolone which I take to date with many other medications.
As one to never give up, I seem to have automatically adjusted to having the illness over time but initially it took some getting use to.
When I was diagnosed with sarcoidosis I was working in the restaurant business, working 16/17 hour days 6 days a week.
As a result of sarcoidosis I lost my job and all the perks, I went through an uncontrollable spiral of events for which I had no control. I lost my partner and 2 daughters of 3 years & 3 months. My relationship broke down and I lost my home and I had to move back to London. In fact everything I’d worked for up until I got ill I had lost.
Depression very quickly set in and for 2/3 years I didn’t know how to handle not being on top of my game. I’d lost everything that was important to me and it wasn’t my fault!
I had then taken some me time and as a result of some very close friends and my mother and medication which was prescribed by my GP. I managed to pull out of the depression and got back into work.
But going back to work brought it’s own stresses.
As soon as I went back to work my then ex partner was hitting me for child support and everything else she could think of. I somehow managed to manage that problem and survived.
My current status is I work as a building/office manager a position which I have held for the last 8 years. Unfortunately my health hasn’t been at it best and I have additional complications all of which is attributed to sarcoidosis. I have developed the following since being diagnose with sarcoidosis:
Hypertension, sleep apnea (for which I am on a CPAP machine), mild renal impairment, chronic rhinitis, sore/itchy eyes, insomnia, depression at times, blurred vision at times, unable to concentrate, memory loss and weight gain -18stn (252lb). I have also find I can’t remember how to spell basic words at times and have to keep checking that my spelling is correct, which is something I never had problems with prior to sarcoidosis.
My speech is also sometimes jumbled.
I currently take the following medication daily:
Prednisolone 6mg, Hydroxychloroquine400mg, Enapril 20mg, Bendroflumethiazide, 2.5mg, Omepraxole 20mg, Simvastatin 10mg, Cetirizine drochloride 10mg, Flixonase 400micrograms, Carmellose sodium 0.5% eye drops.
I attend the following clinics:
Sarcoid Clinic, Lung Function, Sleep Clinic, Renal Clinic, Dermatology Clinic & now Rheumatology Clinic.
Recently the sarcoidosis has developed on my skin (forehead and now legs) although there doesn’t seem to be any re-occurrence in my lungs as yet!!
I am currently under the ‘Department of Respiratory Medicine’ at the Hammersmith Hospital in London, UK.
I had a recent appointment in April 2008 in which I presented some findings of the Marshall Protocol to my consultant.
Although cautious she scanned through the information and filed it in my file. I indicated that I would like to try the Marshall Protocol which brought a not so favorable response. However we did agree to reduce my prednisolone from 6mg daily, to 6mg alternate days.
I have been on this does for 2 weeks, and have recently relapsed and fell very unwell indeed.
I have resorted to just going to work to earn a living and going home to bed.
Last week I wasn’t able to go to work at all, and my employers are considering allowing me to reduce my hours to ease my stress loads.
I would very much like to speak with you or someone who can help me convince my consultant to take the Marshall Protocol a bit more seriously, with a view to starting this course of treatment within the near future.
Kindest regards,
Paul Silas
Hi Paul,
I am also very glad that you have found this website which can provide you with much of the information your need to understand the Marshall Protocol as well as direct you to the study site itself - http://www.marshallprotocol.com/
I can understand that the treatments you’ve tried before have failed, but the MP is not a load of hot air. It is a phase II open-based internet trial monitored by the FDA. Hundreds of medical professionals are members of the study site.
Dr. Marshall’s latest work has been published in peer-reviewed journals and he has a busy schedule of presenting work at mainstream conferences such as the upcoming 6th Annual Conference on Autoimmunity, at which he will be chairing a session about vitamin D, the VDR, and the MP pathogenesis.
If you have sarcoidosis, there is little doubt that the MP will reverse your disease. We now understand that sarcoidosis is caused by an intraphagocytic, metagenomic microbiota of bacteria, and the MP is extremely effective at killing these pathogens.
Unfortunately, I (or the staff of Autoimmunity Research Foundation) cannot help you convince your doctor to let you do the MP. You will have to take materials your find on this site and the MP study site and convince him/her on your own. However, Dr. Marshall is willing to speak to doctors interested in the protocol and his phone number can be found in the “Phase 1 guidelines” on the study site:
http://www.marshallprotocol.com/forum2/2275.html
The moderators at the following website may also be able to provide you with tips about how to convince your doctor to let you do the MP:
http://www.curemyth1.org
There is one issue. The MP study is currently closed to new members because there are too many people who want to do the treatment and not enough staff.
So at the moment you must write a post on curemyth1.org and ask to be put on a waiting list, as they gradually let people into the study off that list.
it’s important to tell the moderators on curemyth1 that you have read as much as possible about the MP, understand what the treatment entails, and are eager to start it.
So post on http://www.curemyth1.org about your desire to start the MP as soon as you get the chance. It may take some time, but you will get in the study. Also, if you print out enough materials on the MP and discuss the treatment in depth with your doctor, I hope he/she will come around.
By the way, here is a link to Dr. Marshall’s published papers and presentations:
http://www.trevormarshall.com/papers.htm
Good luck and all the best!
Amy
Hi Guss
Great to read about your recovery. I ‘contracted’ sacordosis in 2006, after showing signs and symptoms of a heart attack, and am now reduced to 70% lung function capacity.
As an unpaid professional (volunteer) firefighter and a search and rescue member, I am finding this condition is starting to hinder life as I knew it.
Work - well, now working part time enables me to take a ‘rest’ day if needed (which are now few and far between), whereas fulltime work just didn’t allow for that ‘rest time’.
The specialist wants me to go onto prendisone but I have said no. Even my GP is not sure prendisone is going to be of any benefit. It will cause more harm then good - as he see’s it.
I live in Tauranga BoP and am wanting to know if you know of any doctors here who are ‘in the know’ of MP. Or would your GP be willing to talk to my GP.
Thanks for your time
Kia Kaha
Hi Kerry
Thanks for your message. I understand what you are going through and one of the biggest challenges if you are contemlating the MP is actually finding a GP who is willing to be on your side. Forget the physicians, they will never agree.
Don’t do prednisone…the side effects are horrible, the benefit is only temporary and there is a backlash afterwards which will see you in a worse position that before.
Personally, I am going it alone with my MP journey and I have a doctor friend who is an A & E physician at the Waikato hospital who writes out my prescription when I need one - no one is monitoring me at all. I am sure that my friend will be willing to talk to your doctor but I will need to speak to him first.
At the moment I am in Sweden for the next month so feel free to contact me at my e-mail address guss@bugeikan.com in the beginning of August and we can arrange to have a chat about it.
When I started the MP, I did start with my GP and after a while he agreed to monitor me and said that he saw no ethical problem prescribing the medications as they are harmless compared to the alternatives…maybe you can use this argument.
Take care and I look forward to hearing from you again.
Cheers
Guss
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