Thank you so much for your advise and helpful information. I really appreciate it and will read all the information you recommended.

Sincerely,

Nollie

I am so sorry to hear of all your symptoms especially your last stage sarcoidosis. On the other hand, I am somewhat comforted to hear you enjoy the support of a good family. Not everyone is so lucky.

I think you have good instincts when it comes to Prednisone. Corticosteroids have been around decades and they still have yet to have proven long-term benefit in terms of patient suffering or with regard to mortality:

http://mpkb.org/doku.php/home:othertreatments:corticosteroids

I applaud your efforts to eat healthy. It’s too bad that, with a couple notable exceptions (e.g. scurvy) that alone could resolve chronic disease. I certainly tried to address my illness by eating well and that approach only offered me a minimal benefit.

You ask if you should do the MP and if it could help you. It sounds like you are very ill indeed. If you did do the MP, you would have to go very slowly and recovery might take up to five years. I am sorry that the treatment lasts so long. I’m afraid we don’t (yet) know any way to speed the pace of the MP. Such is the apparent prevalence of pathogenic bacteria that it takes years to eradicate them.

Have a look at these Knowledge Base articles:
http://mpkb.org/doku.php/home:patients:mp_duration
http://mpkb.org/doku.php/home:starting
http://mpkb.org/doku.php/home:patients

Afterwards if you have any questions, consider visiting CureMyTh1.org where volunteer patient advocates will answer your questions.

Hope this helps and good luck!

Best,
Amy

I am a 54 year old woman diagnosed with last stage pulmonary sarcoidosis, going on two years. I am miserable, as most of your writers. I suffer a multitude of symptoms. I have been on prednisone for over a year and now they have added methotrexate shots. They ween me down on the prednisone, as they increase amount in the shots. It’s a constant fight to even feel like doing regular chores, much less anything extra. I have a supportive husband and family. Thank God. I just don’t think these treatments are right for me. The x-rays and cat scans will look better, then they won’t. I am so depressed and try so hard to hide it from my family, but they know, I am not me. I keep myself on a strict healthy diet and do not have a weight problem, which I am sure helps as my doctors have said, but I need some other treatment I think. Would you tell me what you think about my treatment and if MP can help ME?

I’m so sorry you are dealing with so many symptoms!

I remember when I was very sick how the thought of moving or even getting through the airport seemed impossible. Now thanks to the MP I can travel without a problem though. I hope your trip goes OK. Obviously don’t hesitate to ask for a wheelchair at the airport (I did that for many years).

I think you should definitely look into the MP. I can tell you likely have a high bacterial load so the treatment is going to be long and at some times probably difficult. But it’s certainly better than just getting worse!

I hope you can find a doctor who will prescribe the MP in Colorado. If you need help you can always write a post about your circumstances at http://www.curemyth1.org. Th1 refers to diseases caused by bacteria, hence the name. The patient advocates on the site, who are volunteers, might be able to help you find a doctor. They can also help answer questions you might have about the MP.

Hang in there!

Amy

I could go on and on, but enough is enough. I just want to feel better (I don’t even know what “being healthy” is).

Thank you for sharing your story with all of us Guss – it’s at least given me something to strive for.

Sincerely,
Paula

Thanks for writing. You say that no one can tell you what the prognosis of your disease is. That’s because predicting the course of disease is and always has been guesswork at best. It has been our experience that while symptoms may wax and wane, the underlying disease process is the same. Have a look at our Knowledge Base article, Spontaneous Remission is a Myth.

Our model for disease states that chronic inflammatory disease is caused by slow-growing bacterial pathogens. These pathogens manifest in different ways and at different times depending on each person’s unique mix of microbes. In other words, whatever caused your sarcoidosis also caused your peripheral neuropathy. If you get a chance, read the KB article on Th1 Spectrum Disorder, which explains how different disease states – including peripheral neuropathy and sarcoidosis – are fundamentally connected.

All that said my best advice is to try the Marshall Protocol. Read P. Bear RN’s interview, a patient who recovered from his peripheral neuropathy.

Best,
Paul

I think you’re asking if there is a specific test for sarcoidosis. Is that right?

I would challenge your thinking a bit and say that a better question will to ask is if there an effective treatment for sarcoidosis? The first-line treatment for a number of diseases including sarcoidosis has been corticosteroids, but these drugs have a poor track record.

Instead, I would ask your doctor to try a therapeutic probe of the Marshall Protocol (MP). And if your doctor says no, I would ask for a list of MDs in your area. You can go to CureMyTh1.org and request such as list.

As you can in the other interviews, the MP has successfully addressed a range of chronic inflammatory symptoms including sarcoidosis and weight loss.

Best,
Paul

p.s. I deleted your other question because I believe I answered both questions here.