I’m very sorry to hear about your daughter’s symptoms. Interestingly they sound very much like mine as I was getting sick. I too had scarlet fever, migranes etc. It took me years to get a diagnosis - I was finally told I had CFS. But in reality, the diagnosis changed nothing. I tried all the “standard” cures for CFS that did not treat the root cause of the illness and only made me worse in the long run.

Then I found the Marshall Protocol, which is the treatment described in greater detail on this site. It is now becoming increasingly clear that any illness that results in mysterious chronic symptoms of “unknown” cause are actually caused by different forms of chronic bacteria that the immune system is unable to kill. As they accumulate, they slow the immune system, allowing the patient to accumulate more and more bacteria which can eventually result in a system-wide infection and a large variety of symptoms that are often hard to classify into a specific diagnosis.

It sounds like your daughter falls into this category. I would say if you see enough doctors she would get diagnosis of CFS. But no matter what diagnosis she gets, the Marshall Protocol would still, in my opinion be her treatment option of choice since Lyme disease, lupus, arthritis, and myriad other inflammatory diseases are caused by different species of these same bacteria. The Marshall Protocol effectively targets the bacteria implicated in all these diseases.

What that means is that I think your daughter should start the Marshall Protocol (MP) as soon as possible. The treatment is run by a non-profit agency and there is no charge for any aspect of the MP. However you will have to find a doctor who is willing to prescribe her the necessary MP medications.

I recommend reading the following two articles about the MP that discuss the treatment in simple terms:

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

This video is very helpful. I describes the treatment and the science that forms its backbone.

http://bacteriality.com/2008/05/07/mpintro/

Here is a link to MP publications and presentations that you or your doctor may want to review:

http://mpkb.mp-dev.com/doku.php?id=home:publications:home

After you have gotten a better idea of what the treatment entails then you should post about your desire to start the MP at the following website:

http://www.curemyth1.org. (Th1 refers to bacteria, hence the name). The patient advocates on the site will help you get started and answer any questions you might have about the treatment. There is no charge for their advice. On the site, you can also request a list of MP doctors in your area.

The MP took me from bedridden with symptoms that sound very similar to your daughter’s to having a normal life again. I can’t describe what it’s like to feel well again. Young people usually progress very well on the treatment so your daughter is in a good place.

Best,

Amy

You are correct. I have removed the incorrect caption and image. Thanks for pointing out my error.

Best,
Amy

It’s great to make contact with another researcher who is familiar with the techniques needed to culture L-form bacteria!

If you could send me a copy of your paper and the electron microscope pictures of the L-forms you have detected I would be thrilled. Why don’t you send them to my email address - amy.proal@gmail.com? That way I can (with your permission) put them up in a post on this site.

I look forward to seeing the photos!

Amy

Unfortunately, yes, your husband’s carcinoma and and plantar fascitis could be directly related to his vitamin D consumption - or should I say secosteroid D consumption.

First off, I understand how confusing it is for a member of the public like yourself to make a decision about vitamin D at the moment. There are a group of scientists who refuse to consider the molecular modeling research which makes it clear that the “sunshine wonder drug” they tout is simply an immunosuppressive steroid. These “experts” are usually quoted by the media and I have read many articles where they do advocate high levels vitamin D supplementation. So I don’t blame yourself for following their advice when you didn’t yet realize that there is a different side to the vitamin D debate.

But now you are aware that there is a growing camp of researchers who view vitamin D in a completely different light. The diseases your husband is starting to show signs of are likely caused by chronic bacteria, and unfortunately vitamin D slows the immune system’s response to killing these bacteria. While this probably allows your husband to feel better in the short-term (less bacteria death causes less painful inflammation), his immune system is no longer working up to par. So any bacteria he harbors can spread with greater ease.

I truly urge you to stop giving your husband vitamin D. He may feel a bit worse when he stops taking the D because his immune system will once again start to more powerfully attack the bacteria making him ill. But an active immune system is a good thing and the situation will serve him best in the long-term.

Best,

Amy

Good to hear from you! I’m sorry not to have written you back more quickly. I just got back yesterday in the afternoon from a week-long trip to Sweden for a medical conference. It was cool because our work was really well received.

I wish I could give you solid advice on what to do about vaccines. I asked the head of our foundation her opinion and she wrote the following:

“The issue of vaccinations is so controversial and weighted with emotion. We have no official policy other than to say we are confident CWD may ride along with those vaccines. IMO, immature immune systems may be too challenged by the multiple vaccinations advocated……single vaccines and delay as long as possible is a good compromise. It’s really a matter of risk (perceived or real) vs. benefit.”

To clarify what she is saying, it’s quite likely that the vaccines your son would get will be contaminated by the cell wall deficient bacteria (L-forms) that we find cause essentially every inflammatory disease. So vaccines are a way of introducing bacteria into your son. Read more about L-form bacteria here:

http://bacteriality.com/2007/08/15/l-forms/

However, if your son has a strong immune system (does he get sick a lot or does he seem resilient?) then his body may be able to naturally kill off the bacteria in any given vaccine. In that case, spacing out the vaccines as far apart as possible is a good idea. That way if there are any L-forms in the vaccine, your son’s immune system can have the time to kill them more gradually.

The problem is that if you don’t get your son vaccinated, he is at risk for other serious illnesses. You really don’t want him getting smallpox etc. The bacteria from those diseases could also turn into a chronic form sthat could contribute to a chronic disease later in life.

So, I guess if I were in your shoes I would try to do the vaccinations as far apart as possible. Then I would keep a good eye on your son. If he starts to suffer from any sort of chronic infections (for example asthma, strep throat, or really any type of pain or symptom that never really seems to go away), put him on the Marshall Protocol immediately. The Marshall Protocol is a treatment that will kill any of the bacteria that he would have acquired through the vaccines. If he starts it early it’s very easy to do and he should only have to spend a few months on antibiotics. So it’s hopefully a comfort to know that if you son does pick up L-form bacteria from a vaccine they can be killed off.

As you can tell this is a difficult and frustrating issue. The fact that the medical community is giving potentially contaminated vaccines to every child is a huge problem. That’s why our foundation is working so hard to get our research acknowledged!

Last, I would not stress the issue too much. L-form bacteria are present in our food, in our water, and exist naturally in the environment. Everyone picks up some of them as they grow older. If your son does show signs of chronic infection he can do a quick round of the Marshall Protocol and become totally healthy again.

Also, I should add that you should make sure that your son only consumes a reasonable amount of vitamin D, that which is found naturally in foods. That will allow his immune system to function more effectively and kill any L-forms he comes in contact with. So stay away from fortified milk, multivitamins with D, or anything else in which they have artificially added D to the product. You can read more about why extra vitamin D negatively effects immune function here:

http://bacteriality.com/2007/09/15/vitamind/

Hope this helps! Say hi to Lindsey for me!

Best,

Amy