It absolutely sounds like you are suffering from infection with many species of the chronic intracellular bacteria that the MP can effectively kill. Since these bacteria are passed down the maternal line, it’s not surprising that your Mom is sick and you are also becoming increasingly symptomatic.

I’m so glad that you are looking into the MP. It has the potential to turn both your life and your mother’s life around. Especially in your case, I tend to note that young people do particularly well on the MP. Our bodies are still somewhat resilient and generally manage immunopathology more effectively in many cases.

I know what it’s like to lose the support of school and friends because of illness. I also know that it’s hard to convince mainstream doctors about the MP. But you have to keep trying. I don’t know exactly how the British medical system works, but is it possible for you to find a doctor that works out of the government network? I know you would have to pay extra for his/her services, but if you can manage the extra expense, it would be worth it.

There are currently people on the MP who live in England. I highly suggest that you contact them and ask them who their doctor is. Then perhaps you and your mother can see the same doctor who should be familiar with and more accepting of the MP.

The patient advocates at the following website may be better able to put you in touch with other MP members in England.

http://www.curemyth1.org

I’m very glad that you plan to keep looking for a physician, because as you can see from the patient interviews, there is great hope that you will recover thanks to the MP (and your Mom too). So hang in there and keep searching!

Best,

Amy

PS. Thanks for you kind remarks about my site. If any of my articles have helped you better understand the MP then that makes me very happy!

I’m 17 years old and live in the UK. I’ve been getting increasingly ill as i’ve gotten older. I have PCOS, OCD, IBS, recurrent tonsillitis, problems with my liver(gilbert’s, jaundice etc), candida, UTIs, an irritable bladder and in the recent past have had glandular fever and also a tick bite 2 years back (so possible lyme???).

For the last year things have got really bad and i have had an increase in symptoms, e.g. inability to concentrate or think clearly, anxiety, IBS severity has increased, tired, aching muscles, vertigo, post exersion fatigue, extreme mood swings (usually very low) etc… I feel so unwell that i’ve had to be signed off school-not useful during my A level years.

I’m not getting any support from my school or friends so it’s quite hard. However my mum has been ill with CFS/ME for the past 18 years and is also getting worse. I’m so worried im heading down the same path so i’ve been reading the MP website and bacteriality for a few weeks/months and really want to do the MP, it seems to make so much sense! However the drs in the UK that we’ve tried don’t want to know. I feel really desperate to get mine and my mums life back.

I hope we both manage to get on it soon somehow and recover as well as Matt has! I love reading success stories like yours, Robyn and Matt – it gives me a lot of hope. Also Amy’s and Peters – theyre all so inspirational! Thankyou so much for sharing your experiences and creating this website.

take care,
Emily

I believe Michael is doing just fine in high school and is able to handle a full course load once again.

Your daughter will kill a lot of bacteria in 1.5 years. If she does go back to school, make sure you talk to the school administrators (the way Matt’s Mom did) so that they are well aware of the fact that she may not feel well on some days and also understand that she may be bothered by bright light.

Many people tell me that when going back to school or starting work again they speak with the administration about closing windows in classrooms or holding classes in rooms without direct sunlight. Usually, the administrators seems more than happy to make any necessary accomodations.

Have you read the following interview with a mother who has two children on the MP who are also around your daughter’s age?

http://bacteriality.com/2008/03/15/interview18/

I think her advice on school and the MP is helpful. She states,

“I would pass on advice that I received from a counselor at Brendon’s school. She told me that it’s perfectly okay to put school on hold in order to address health issues. No matter what other people say, parents need to stand firm in allowing their child to have their physical health and emotional needs met as a priority before addressing educational needs. Furthermore, as they start to recover, it’s essential that we focus on allowing them to have a social life before forcing them to deal with the stress of school. Essentially social life comes first and school second. If a child is in the process of recovering from an illness, it’s not fair to say, “Oh, well if you found the energy to go out with friends then you should be able to make it school.” They need to form social ties and make friends. They can always catch up math and reading later in life.”

So I think it’s important to keep a social life in the picture as well.

All the best to your family and your daughter,

Amy

I’m so sorry to hear about your debilitating symptoms, but I am also SO glad that you have found the Marshall Protocol because it will allow you to get your life back.

What is causing you illness? Different species of L-form bacteria, or bacteria that have mutated from normal forms of bacteria, lost their cell walls, and are able to live inside the cells of the immune system where they cannot be killed by any other treatment besides the MP.

Read more about L-form bacteria here:

http://bacteriality.com/2007/08/15/l-forms/

Read more about exactly how the Marshall Protocol medications are able to target and successfully kill these bacteria here:

http://bacteriality.com/2007/10/11/antibiotics/

The myoclonus you experience is caused by certain species of L-form bacteria and will go away, as it did in Matt’s case, if you do the MP.

On thing, I am confused – there is no genetic test for the MP. Patients are encouraged to test their vitamin D levels (which can be an indicator that they are infected with L-form bacteria) but for the most part, your diagnosis and symptoms presentation are the best way to know if the MP will work for you.

As a person with Lyme/myoclonus it is almost certain that the MP will work for you. I have yet to hear of a Lyme patient that has not reacted to the Marshall Protocol medications. It sounds as if your symptoms are escalating so in my opinion, I would start the MP as soon as possible regardless of test results.

It’s very important that you post about your situation on the following website:

http://www.curemyth1.org. (Th1 stands for diseases caused by L-form bacteria, hence the name Cure My Th1). Your situation and questions will be assessed free of charge by experienced patient advocates who can help guide you correctly through this entire process.

Also read as much information as possible about the Marshall Protocol on the study site itself. This is a good place to start:

“Essential Information About the MP”

http://www.marshallprotocol.com/forum2/

Finally, if your daughters have become infected it is extremely important that they also start the MP. You have the chance right now offer them treatment that will kill their bacteria before it can cause any more harm – and if left unchecked, they definitely will.

The good news is that since your daughters have probably been infected for a shorter period of time, they should complete the treatment more quickly.

OK – be sure to post at http://www.curemyth1.org about not only yourself but your daughters. All of you can become healthy again if you take action.

Best,

Amy

I’ve had Lyme disease a long time before I figured it out. By that time I couldn’t walk, talk, or think and was hospitalized. It was so difficult to be hospitalized with severe myoclonus and have absolutely no doctor or nurse able to help me.

Even as recently as last week, a neurologist said I had myclonus of “unknown etiology,” but a normal EEG…and a normal EMG, but they could perform the whole test because it caused me severe pain and I was hyperreactive.

I still haven’t had anyone able to explain how Lyme causes myoclonus. Also, I have the waves of numbness in my head that make me feel like I’m passing out. My head problems are the worst part. Once it felt like a light bulb blew out and it hurt in my right temporal area so badly that I screamed. It was shocking to me.

Do you understand what is happening (infection, hypoxia, seisures…but why?)

Now, I’ve found out that my teenage girls are infected.

Would love to learn from you,

Peggy

Thanks for writing. Swimming provided some relief for Matt, but it was only temporary. Sooner than later it stopped helping him. Also, that’s not a common response – most people with CFS get no relief from swimming.

Your daughter needs to kill the bacteria making her sick. I understand that she is still active, but perhaps she could do the MP at a slower pace? She could ramp her antibiotics very slowly so that her immunopathology (herx) reaction never would get too strong.

My sister’s boyfriend is a professional waterpolo player who is training to play in the Olympic games this coming summer. He just started the MP for an infection despite the restrictions it might impose.

Your daughter could wear zinc oxide sunscreen (which blocks the production of vitamin D in the skin to a great extent) so that she could be in a moderate amount of sun.

I urge you to take action now and have her start the MP. I had symptoms of CFS when I was 16 and tried to ignore them until I was around 20, when I just bit the dust and my body became completely overrun with bacteria. It was horrible. I can’t imagine how much suffering I could have prevented had I taken action earlier.

Best,

Amy

Charles