So glad you’ve started the MP! It’s also great that you are researching the treatment and the science it is based on in such detail.

Yes, I should check back in with the people who I’ve interviewed. It’s a very good idea that’s crossed my mind before.

I must admit that in a few days I am leaving on a vacation geared purely at having fun. I’ll be living in Dubruvnik Croatia with my twin sister and her fiancee (they already live there) and soaking up the atmosphere of the ocean over there.

Perhaps before I leave i’ll send out an email to the people I have interviewed asking if I can speak with them briefly before I get back though. There’s also so many new people I want to interview!

Thanks for the reminder,

Amy

It’s always inspiring to read these patient stories.
As I’ve started the MP myself, I’m spending considerable time on your site and on the MP sites, gathering information and becoming more knowledgeable. This is how I came across this older interview.

When I saw the date, it got me wondering: how might this lady be doing after 17 additional months on the Marshall Protocol?

Would it be possible to run a quick update (and maybe follow up on the other interviewees too, after a certain period of time)?

I understand that you’re busy; it’s just a suggestion.

Thanks again for this site and all your work. You’re a great asset.

Andy

You can request a list of local doctors who will treat you using the MP at CureMyTh1.org.

Best,
Amy

Regardless of your test results it sounds to me as if you are suffering from Th1 disease – a form of diseases caused by bacteria that have mutated from regular forms of bacteria, lost their cell walls, and are able to live undetected inside the cells of the immune system.

There are many species of bacteria. Depending on which species a person has accumulated they suffer from different symptoms – these include joint and body pain, and difficulty breathing, or the symptoms you are suffering from. They also cause sarcoidosis if that ends up being your diagnosis. Read more about L-form bacteria here:

http://bacteriality.com/2007/08/15/l-forms/

The step you need to take at this point is to start the Marhsall Protocol – a treatment that effectively kills L-form bacteria. Once all your bacteria have been killed, your symptoms will go away and you will be healthy once again. The Marshall Protocol is the only treatment that will allow you to kill L-form bacteria correctly.
Read more about the treatment here:

http://bacteriality.com/about-the-mp/

I’m sure you have more questions about the treatment – how to get started, how to talk with your doctor about it. In that case you should post on the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1)

The experienced patient advocates on that site will help guide you with more information about the treaatment.

You should also read as much information as possible on the Marshall Protocol study site. This forum is a good place to start:

“Essential Information About the Marshall Protocol:

http://www.marshallprotocol.com/forum2/

You CAN get your health back!

Best,

Amy

Kanchan

I am so sorry. I just checked in. Life has been so busy lately and I wanted to show my husband my interview with Amy. It looks like Amy has answered some of your questions for me. Please forgive me. I didn’t expect anyone to respond. You can follow my progress on http://www.marshallprotocol.com. You will need to register first. My User I.D is wytnez.

Avoiding any and all forms of vitamin D in your diet is crucial to the success of the MP as well as light avoidance. These measures alone may kick start your body and you may begin to experience what we call immunopathology or Jarish Herxheimer. This is an immune response that may make you feel worse because the bacteria began to die and produce inflammation, but… you will start to feel better when you begin Benicar (the miracle drug). The best advice I can offer you all is to go to the website and read over all of the material that describes the MP overview, request a list of Physicians in your area and most importantly, begin to protect your skin by covering up completely when going out and protecting your eyes by wearing the infamous NOIRS 10% inside and 2% outside. NOIRS has a website that will show a variety of styles and I believe they still offer a discount when you mention the MP. Once you register on the website, you can send me a private message anytime because I check the website daily and post my continued progess at least every two weeks. I encourage each of you that has questions and who have been diagnosed with this awful disease to be proactive in taking care of your health and get on the MP asap! Let me tell you, this protocol works!!

Saj

I’m so sorry to hear about your wife’s situation. But your are right – the MP is the light at the end of the tunnel that can give your wife her health back, so you need to do everything in your power to find a doctor who will work with her.

I admire the fact that you are such a good advocate for your wife and have already tried to present information to her doctors. They seem very close minded which is a shame.

But have you shown them Dr. Marshall’s papers and presentations? There are quite a few which might help them understand that he is an established scientist. See here:

http://www.trevormarshall.com/papers.htm

If they still refuse, what about going to a new doctor? Have you tried requesting a list of doctors in the UK from the Marshall Protocol study site? You can do that here:

http://www.marshallprotocol.com/forum11/9355.html

Also, perhaps you could get on the Marshall Protocol study site (www.marshallprotocol.com) and try to search for other patients who live in the UK – every person on the site has a profile that states where they live. Them you can ask each person who their doctor is and how they found a doctor.

Last, you should post about your situation on the following site: http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1).

There are experienced patient advocates on the site who answer questions for free at all hours of the day. I’m sure they will also have even more advice or information that would allow you to convince your wife’s current doctors to let her start the treatment.

Best,

Amy

Thanks for writing. In my opinion, the reason some doctors don’t agree with the MP is that they don’t understand the treatment and haven’t taken the appropriate time to do so. In reality the MP is based on very solid science and there are a great number of case histories showing that people who complete the treatment truly do recover.

Doctors are notoriously slow to accept change, and this treament is very new But if you look at the number of patients (none!) recovering from sarcoidosis thanks to mainstream approach it doesn’t bode well in terms of your sticking with their advice. The prednisone you are on now is only slowing your immune system, not making you better. You want to go from covering up your symptoms with steroids to actually killing the L-form bacteria making you sick. The following is an excerpt about prednisone taken from one of my other pieces.

“Before starting the MP, many people may feel that they have improved through consuming vitamin D and taking steroids such as prednisone. In reality, these compounds inactivate the VDR, preventing the immune system from effectively killing L-form bacteria. Since it is the killing of L-form bacteria that generates an increase in painful symptoms, people may experience short-term relief when using vitamin D or prednisone as their immune system shuts down and less bacteria are killed. However, in reality, this situation allows the bacteria to spread more easily.”

Thus, I urge you to stop the prednisone and start the MP instead

As for finding a doctor who will work with you:

Go to the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1)

The patient advocates on that site will show you how to request a list of MP doctors in your area. They will also answer any other questions you have about the treament.

If you need to better educate the doctor you already have, you might show him some of Dr Marshall’s papers and presentations.

http://www.trevormarshall.com/papers.htm

And his wikipedia biography:

http://en.wikipedia.org/wiki/Trevor_Marshall

Also, I would read all the information availiable on the Marshall Protocol Study site:
http://www.marshallprotocolcom

Best,

Amy