I’m very sorry to hear about all your symptoms and conditions. I agree that you should definitely try to wean off any steroids and chemo drugs as they cause great harm to your immune system. This allows the chronic bacteria at the heart of your symptoms to spread with greater ease, making you sicker and sicker.

Julia got her health back thanks to a treatment called the Marshall Protocol. I highly recommend you do the same treatment. It’s part of a phase II trial run by a non-profit organization comprised of volunteers who make no money off patients whatsoever.

I warn you that the Marshall Protocol is not easy. You will have to deal with rises in your symptoms that correlate with bacterial death. You will almost certainly become sensitive to light and have to wear sunglasses outside and long sleeves. But the Marshall Protocol works, and for the first time it will allow you to kill the bacteria actually making you sick rather than just cover up your symptoms with more drugs.

I recommend reading the following two articles about the MP that discuss the treatment in simple terms:

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

This video is very helpful. I describes the treatment and the science that forms it’s backbone.

http://bacteriality.com/2008/05/07/mpintro/

Here is a link to MP publications and presentations that you or your doctor may want to review:

http://mpkb.org/doku.php?id=home:publications:home

If you want to try the Marshall Protocol you should post about your desire to start the MP at the following website:

http://www.curemyth1.org. (Th1 refers to bacteria, hence the name). The patient advocates on the site will help you get started and answer any questions you might have about the treatment. There is no charge for their advice.

The main thing you will have to find is a doctor who is willing to prescribe you the MP medicines and monitor your progress while you do the MP. If you think your current doctor is not open minded enough to put you on the MP you can request a list of MP doctors in your area from the moderators at curemyth1.org.

Also, here is a link to the treatment Phase 1 guidelines:

http://www.marshallprotocol.com/forum2/2275.html

Hope this helps and good luck!

I’m so sorry to hear about your mother and how much she is suffering.

Your mother is very ill, but this site discusses a treatment that can potentially allow her to recover. It’s called the Marshall Protocol and is part of a phase II study monitored by the FDA.

Right now, we are in the midst of a major shift in the way the medical community views diseases like sarcoidosis and the other conditions such as uveitis that you mother suffers from.

Her current doctors might dismiss her condition or say there is no cure, but other researchers and doctors now understood that sarocidosis, uveitis and other inflammatory disease are actually bacterial illnesses. The following two articles describe the the bacteria that cause these diseases in greater detail and explain how they are able to survive undetected for long periods of time in the body:

http://bacteriality.com/2007/08/15/l-forms/

http://bacteriality.com/2008/05/26/biofilm/

The Marshall Protocol can allow your mother to effectively kill the bacteria making her sick. The treatment uses pulsed, low-dose antibiotics and a medication that activates the immune system to gradually wear away at bacteria. These articles describe the Marshall Protocol in greater detail. You should definitely show them to your Mom.

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

I highly encourage both of you to also watch the following video about the MP that describes the treatment and the extensive scientific research that forms its backbone.

http://bacteriality.com/2008/05/07/mpintro/

The Marshall Protocol (MP) will be difficult for your mother because killing off the bacteria that are making her ill is very hard. That’s because when chronic bacteria die, they cause the immune system to mount an inflammatory response to their death that generates a rise in symptoms. So if your Mom does the MP, she will have to deal with temporary increases in her symptoms before she gets better. But if she succeeds in killing all her bacteria, she will become healthy again.

If, after reading as much about the Marshall Protocol on this site and on the study site itself – http://www.marshallprotocol.com – you and your mother decide that she would like to do the treatment, one of you should post about her decision at the following website:

http://www.curemyth1.org (Th1 refers to disease caused by bacteria, hence the name Cure My Th1). The patient advocates on the site will help evaluate if she can become part of the study because there is a waiting list to get in.

In the meantime, if you have questions about the MP (after you have done as much reading as possible, you can also ask them on curemyth1.org, where the patient advocates will answer them free of charge.

Best,

Amy

PS Yes, the bacteria that cause sarcoidosis can infect the heart…but the MP can kill those bacteria.

She has refused the low dose steroid treatments as she also has spondylitis of the spine, and the steroids would worsen this condition. She also suffers from long term high blood pressure. She can’t walk more than a few metres without having to sit down and she says she can’t get the air in and feels like shes hit a brick wall. She suffers from chronic fatigue, insomnia, paranoia, OCD and depression.

The swelling in her leg is worse than ever and its been like it for years, but all she gets from medical professionals is your a medical mystery. Finally a young doctor has taken pity on her suffering and poor quality of life and done a further investigation following an appalling basic lung capacity test, hes now ordered indepth breathing tests and 3D scan of the heart. I have read that sarcoidosis can affect the heart. Do you know of anyone who has this?In your experience do these symptons sound like it could be that?
Also is the Marshall Protocol treatment available in the UK?
I am desperate to help her
Thank you SARAH

Your symptoms do seem very similar to the symptoms that Julia experienced before the MP. I’m confident that if you start the MP you will end up exactly like Julia and get your health back.

To get started go to the following website:

http://www.curemyth1.org.

There are patient advocates on the site who can address any questions you have about the treatment and help you get started.

Of course reading as much information on the Marhsall Protocol study site – http://www.marshallprotocol.com, is also an important part of learning how to correctly begin the treatment.

All the best,

Amy