Our research indicate your sarcoidosis and vitiligo almost certainly do stem from the same underlying cause. That cause is chronic bacteria and what we have found differs between disease states is the species and virulence of bacteria present. This article further describes how two diseases that seem unrelated at first glance may actually be connected.
http://mpkb.org/doku.php/home:pathogenesis:th1spectrum

I would encourage you to try the Marshall Protocol as a treatment for both your sarcoidosis and vitligo. The treatment is described in further detail on these pages:
http://bacteriality.com/about-the-mp/
http://mpkb.org/doku.php/home:patients:protocol_overview
http://mpkb.org/doku.php/home:patients

If you have questions about how to start this treatment, a couple place to ask is CureMyTh1.org.

Best,
Amy

This is Paul. I’m helping Amy answer some of her comments. I am so sorry to hear about your sister.

If she has been in a coma, her illness sounds very grave indeed. I don’t know what to tell you. I wish I could say the treatment discussed on this site, the Marshall Protocol, could help truly end-stage sarcoidosis patients, but I personally believe that is not the case.

Some sarcoidosis patients experience symptoms improvement from Benicar’s anti-inflammatory effects. But its second effect is to activate the innate immune response, which leads to a bacterial die-off reaction. This is necessary for progress, and almost always makes a person feel worse – something your sister might not be able to manage in her current condition.

If, however, her health stabilizes, you may want to have her think about the Marshall Protocol.

Sorry I can’t be of more help. I am certain your sister appreciates your efforts on her behalf.

Please let us know if you have any other questions.

Take care,
Paul

Yes, if you have sarcoidosis I strongly believe the MP will allow you to gradually reverse the disease.

I assume right now you are reading as much as you can about the MP? I always tell people to do that as the more you understand about the treatment the easier it is to explain to to your doctor, family and others in your life. Also, it’s just good to know how the medications you take are working to kill the bacteria making you ill!

I recommend watching the following video that explains the MP and the science that forms its backbone in simple terms:

http://bacteriality.com/2008/05/07/mpintro/

I also recommend reading as much information as you can on the MP study site itself – http://www.marshallprotocol.com. Start reading in the “Essential information about the MP forum”:

http://www.marshallprotocol.com/forum2/

Here are the MP Phase 1 guidelines:

http://www.marshallprotocol.com/forum2/2275.html

Here is a list of Dr. Marshall and team’s peer reviewed papers and conference abstracts that your doctor will likely want to read:

http://mpkb.org/doku.php#publications_presentations

in order to find a doctor who you can work with to administer the MP, write a post at the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name). The patient advocates on the site, who are volunteers, will provide you with a list of MP doctors in your area. There is no charge for the list.

If no doctors in your area are taking new MP patients, then ask for the doctor’s list for nearby states – if you are willing to drive to find a doctor. Some doctors will allow you to see them once and do follow-up visits over the phone.

Your current doctor is still looking at old literature on sarcoidosis. You may want to show him the papers I gave to you above and see if you can convince him/her to treat your sarc in a new way. Some doctors are stuck in their old ways, but it can’t hurt to try.

Good luck and take care,

Amy

I’m sorry to hear that your son is presenting with symptoms that resemble those of sarcoidosis and could be indicative of the disease. His eye problems are likely connected to his other symptoms.

Our molecular research shows that diseases such as sarcoidosis and a plethora of inflammatory eye conditions result when patients become infected with persistent chronic bacteria that cause painful inflammation and disrupt cellular pathways. A diagnosis of sarcoidosis is usually not needed to infer the presence of these bacteria. If your son feels sick and seems to be developing symptoms of “unknown” cause then he has almost certainly accumulated these bacterial forms. So you need not wait for a diagnosis to seek treatment for the symptoms he already has.

This site discusses a treatment/study called the Marshall Protocol that is able to gradually eliminate these bacteria and allow patients to regain a state of health. The treatment is run by a non-profit organization and there is no fee for any of the treatment materials. There are currently hundreds of people on the treatment with sarcoidosis or sarcoidosis-like symptoms and eye conditions reporting improvement and recovery.

Although your doctor may not yet know about the Marshall Protocol (MP), Dr. Marshall, who created the treatment is a biomedical researcher who’s work is gaining increasing acceptance. For example, he chaired the session on vitamin D at the 2008 International Congress on Autoimmunity in Portugal and just gave the keynote speech at the Conference of the Gene. A full list of his peer reviewed papers and presentations can be found here:

http://mpkb.org/doku.php/home:publications:home

I greatly hope you look into the MP for your son. It is the only current treatment for chronic symptoms that treats their root cause. The other main treatment for chronic disease states are corticosteroids, which would work by slowing your son’s immune system. These drugs palliate symptoms (like putting a band-aid over a festering sore), but allow bacterial load to increase in the long run. If your son continues to present with more symptoms he could easily be put on corticosteroids for the rest of his life.

But now your son is fairly young and his disease symptoms don’t seem to have not progressed too far. This suggests that his bacterial load is relatively low and that if he were to start the MP now he could progress through the treatment at a very effective rate. The sooner one starts the MP the easier and shorter the treatment is.

These articles give an overview of the MP:

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

I highly recommend watching this video which describes the MP in simple terms and gives a solid explanation of the science that forms its backbone:

http://bacteriality.com/2008/05/07/mpintro/

If you decide that you’d like you son to try the MP or simply want more info about the treatment, post about his situation at the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name). The patient advocates on the site, who are volunteers, will help guide him on how to start the treatment. They can also help you locate an MP doctor.

Best,

Amy

I wonder if you can comment please, my 23 yr old son was diagnosed as having possible ? symptoms of sarcoidosis I may add this diagnosis the doctor stated was inconclusive. This was after one year of hospital visits following eye trouble loss of vision in one eye resulting from as finally diagnosed by doctors as Optic Nueritis. I am aware this causes myellin damage to the eyes which has recovered somewhat although he still suffers from blurred vision. Following diagnosis of above he was discharged from hospital with no medication prescribed additional test performed were xrays which were advised as clear. CT scan checks for MS which were clear and several blood tests which were all clear with one exception of the unconfirmed and inconclusive diagnosis of possible presence of sarcoidosis. any view and comments in respect of the above would be greatly appreciated.

kind regards

Pat Meechan

I’m sorry to hear about your illness. Gradually weaning off your steroids and starting the MP seems like an excellent idea.

As I mentioned above, make sure you wean off the steroids gradually before starting the MP. There are specific guidelines about how to wean off steroids before starting the treatment.

You can find those guidlines by consulting the patient advocates at the following website:

http://www.curemyth1.org (Th1 refers to bacteria. The advocates offer guidance and answer questions about the MP free of charge.

Good luck!

Amy