Comments on: Interview with Leesa Shanahan - Sarcoidosis (Hedfort Syndrome), Uveitis

By: Ghazala Hasan

Ghazala Hasan — Mon, 08 Sep 2008 08:33:09 +0000

Hello Amy,
I came across this website and want to know more about Marshal Protocol as I have been diagnosed with Sarcoidosis. My lungs have been affected and my doctor has not prescribed me any steroids as yet. I suffer from dry cough, wheezing, and breathlessness. Please tell me how to reach the right person and whether my condition can be cured or not.

By: Amy Proal

Amy Proal — Tue, 19 Aug 2008 14:25:16 +0000

Hi Pamela,

Sarcoidosis is a serious disease, and I can certainly understand your deep concern about it. If you read my site you know that I often discuss a Phase II trial and multi-year therapy monitored by the FDA called the Marshall Protocol:
http://bacteriality.com/about-the-mp/

There are a number of patients with sarcoidosis who have done the MP and have gotten back their lives:
http://bacteriality.com/2008/06/03/interview21/
http://bacteriality.com/2008/03/02/interview17/
http://bacteriality.com/2007/11/04/interview7/

There are actually more such patient interviews in the sidebar.

My advice would be to do what you can to get on the MP. Learn whatever you can. Eventually, you’re going to want to register at CureMyTh1.org where you can get your questions about the MP answered and apply to enter the study.

Best,
Amy

By: Sanjeev

Sanjeev — Tue, 19 Aug 2008 14:24:42 +0000

Hi,
My Mother-In-Law was suffering from Sarcoidosis. She came to know about this 1.5 years back. Her treatment was going on by a Homepathy Doctor and last week I came to know that now she has no symptoms of it. Amazing as of now…

-Sanjeev
India

By: Pamela

Pamela — Mon, 18 Aug 2008 01:28:00 +0000

I have sarcoidosis also found out that i had it back in 2000, I was very scared at first , cause i thought that it was some form of cancer. why is it that after all of these years people haven’t been talking about it? so that the lost people like myself would have some clue to what this disease is, I get scared sometimes, thinking i’m going to die but my prayer is that doctors and things have shows explaining to people just what is sarcoidois. I have even ask Oprah to have a show on sarcoidosis, we need help!! and, prayer!!( I’LL BE PRAYING FOR ALL OF U WHO HAVE SARCOIDOSIS AND PLEASE PRAY FOR ME! GOD BLESS,YOUR FRIEND IN CHRIST PAMELA

By: Amy Proal

Amy Proal — Thu, 31 Jul 2008 20:25:04 +0000

Hi Carol,

I am so sorry to hear that you are feeling so miserable!

You are correct that the underlying cause of your disease symptoms are related to the fact that your immune system isn’t working up to par. But the reason it isn’t working well is because it’s activity is being slowed by the presence of chronic pathogens - the same pathogens that are causing your wide array of symptoms.

It is now understood that inflammatory diseases like ulcerative colitis CFS, IBS, sarcoidosis, and many others are the result of infection with chronic bacteria that are able to live inside the cells of the immune system and in protected colonies called biofilms. Most doctors are still unaware of the research that implicates these pathogens in inflammatory disease which is why you have ended up where you are -very sick.

So I highly encourage you to learn more about these bacteria and the treatment that can kill them so that you get your health back. The treatment is called the Marshall Protocol and is part of a phase ii trial monitored by the FDA. Patients on the treatment take a medication that activates the innate immune system and carefully chosen pulsed, low-dose antibiotics in order to gradually kill the bacteria making them ill. Read more about the Marshall Protocol here:

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

I highly recommend you watch the following video about the Marshall Protocol and the science that forms its backbone:

http://bacteriality.com/2008/05/07/mpintro/

You can use the Marshall Protocol to recover, however I must warn you that it takes a long time to complete because patients must manage a bacterial die-off reaction that causes temporary increases in symptoms after each antibiotic dose.

The Marshall Protocol study is officially closed due to high demand, but you can get on a waiting list. In the meantime, if you find a doctor willing to prescribe the necessary medications you can start the treatment simply with his/her help.

After reading as much as you can about the Marshall Protocol on this site and on the study site itself (www.marshallprotocol.com) if you feel you’d like to give it a try, post about getting on the waiting list at the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by bacteria)

The patient advocates on the site will also answer questions about the Marshall Protocol free of change and may be able to help guide you in finding a doctor.

Best of luck!

Amy

PS. Vitamin D actually slows the immune response as described in this article. So you need to get your level down and as quickly as possible! People on the MP need a level of vitamin D under 20 ng/ml in order to succeed.

http://bacteriality.com/2007/09/15/vitamind/

Also, folic acid helps bacteria replicate their DNA. If your B supplements contain folic acid I would stop taking them as well.

By: Carol Dickinson

Carol Dickinson — Thu, 31 Jul 2008 02:48:51 +0000

Help! My vitamin D level is 95 normal is between 15-55. My calcium is high too. I lost my whole colon to 14 years of ulerative colitis removed at 27… I am now 52. I have bouts of intercostal pleurdynia pain in left chest cavity every few months or weeks… and when I do have these attacks I can’t take normal breath without pain. Deep breaths are impossible. I have to stay very still and take an anti-imflammatory. I don’t have all the symptoms of Sarcoidosis but I am wondering since Ulcerative Colitis and other bowel problems are often caused by a weakened immune system… is the weakened immune system caused by genetically inclined sarcoidosis. I am always tired, hard to focus, brain fog, general irratibilty, anxiety/depressed, and can’t seem to do anything in my life… even keep a job or a marriage. I am exhausted and I don’t know why. Can some body help me? Thank you!:) I know it is not me… I know it is my body and something to do with the underlying cause of it all… a poor immune system. I am going to get off all bread, wheat, yeast, gluten and see if I get at least a little energy. I am taking B-12 but it’s really not helping much. The high calcium and high vitamin D make me very tired. I feel like I am in la-la land all the time.

By: Amy Proal

Amy Proal — Fri, 11 Jul 2008 23:44:24 +0000

Hi Kim,

This is Amy. Leesa has recovered from sarcoidosis thanks to the treatment described in further detail on this site called the Marshall Protocol.

So although her hands and feet might have swelled from sarcoidosis before, they don’t anymore. However, swelling of the limbs is common in sarcoidosis (read some of the other patient interviews on this site which make that clear). So if you are suffering from swollen hands or feet perhaps you should ask your doctor to screen you for sarocidosis.

If it turns out you do have the disease, be sure to further consult this site and the Marshall Protocol study site - http://www.marshallprotocol.com - for information on treatment.

Best,

Amy

By: kim

kim — Fri, 11 Jul 2008 00:28:48 +0000

Do your feet and hands ever swell from sarcodosis

By: Amy Proal

Amy Proal — Wed, 09 Jul 2008 22:01:37 +0000

Hi Kim,

I’m so sorry to hear about the progression of your disease. There is only one curative treatment option for sarcoidosis and other related inflammatory diseases. It’s called the Marshall Protocol and is discussed in greater detail on this site.

Your doctors are probably not aware of the latest research on sarcoidosis which has made it clear that the illness is caused by chronic bacteria that are able to live in protected colonies called biofilms and inside the cells of our immune systems. Read more about these pathogens here:

http://bacteriality.com/2007/08/15/l-forms/

http://bacteriality.com/2008/05/26/biofilm/

The Marshall Protocol uses pulsed, low dose antibiotics and a medication that activates the immune system to gradually kill the bacteria causing sarcoidosis over the course of several years. The Marshall Protocol is part of a phase II study trial monitored by the FDA and there are hundreds of patients recovering on the treatment, many with sarcoidosis. Read more about the treatment in these articles:

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

Also, be sure to watch the following video which give as overview of the Marshall Protocol and the science that forms its backbone:

http://bacteriality.com/2008/05/07/mpintro/

If, after reading as much information as possible about the Marshall Protocol on this site and on the study site itself (www.marshallprotocol.com) you still have questions about the treatment, the best place to ask them is at the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by bacteria). Your questions will be answered free of charge by patient advocates. In the meantime you will have to work with your own doctor while on the MP so you may want to start presenting some of the materials on the study site to your physicians so that they can learn about the treatment. If your current physician won’t put you on the MP then find one who will (there are other Canadians on the MP who can hopefully refer you to their doctors). Full recovery is possible, but only if you use the MP to kill the bacteria at the heart of your disease.

Best,

Amy

By: Kim

Kim — Mon, 07 Jul 2008 21:10:48 +0000

Hi There,
I was diagnosed in May with Sarcoidoisis of the lungs after a month of my ankles and legs swelling so bad I couldn’t even get out of bed. (not good with a 2yr old) I had seen 6 different doctors who all had differnt answers the biggist one being “sometime’s stuff like this just happens” or It’ll will go away just keep your feet up. Once again easier said than done. So I finally went into the hospital Emergency dept. That is where after 8 weeks I had a specialist come from another hospital and tell me what it was. He put me prednisone right away because I had taken it Once from another doctor and it went away within hours but once I was done talking it it also came back within hours.

I had a chest X ray found out my lungs where swollen and cloudy. I started by having to take 6 prednisone’s a day now I am down to 3 but doesn’t prednisone only hide the problem?? And It cant be good to be taking so much for so long. Anyways so I went to my checkup appointment and basically felt that because I was still on the prednisone and my sysmptoms hadn’t come back yet the doctor seemed to think I was fine and sent me off and to come back in 3 months.

I told the doctor about how sometimes my eye’s get all blury and I have major shortness of breath and sometimes even chest pains.. And still he did nothing but send me away. I am writing from Calgary, Canada and I am hoping that if you have any info on what I should do next you could please let me know..