19 Nov 2007
When this California librarian found out she had sarcoidosis, she felt as if a massive freight train was headed her way. Now, thanks to Autoimmunity Research Foundation’s Marshall Protocol not only is she leading a normal life, but her bloodwork has returned to normal and her bone density is headed in the right direction. Sherry Cook will now take your questions.

I became symptomatic little by little over many years. In my 20’s I was diagnosed with “Reynes Syndrome” but in 1988 a funny lump developed on my upper neck. After a biopsy I was diagnosed with Cat scratch fever - an infectious disease thought to involve the intracellular parasite Bartonella. My doctors told me not to worry, but I found it quite odd that I was not offered any treatment options. Insomnia and headaches grew more common, and the only way I could make myself feel good was by swimming outside on my lunch hour. If I didn’t swim, I was literally in a torpor of brain fog.
This string of symptoms increased and my energy level continued to decline. The fibroids in my uterus lead to a partial hysterectomy in 2002, a very stressful event on the body. I experienced some Restless Leg Syndrome and chronic sinusitis. Finally, after numerous tests, the doctors performed a Gallium scan which showed that I had sarcoidosis. I recall his exact words: “I think we’re onto something: you have SARCOIDOSIS” as though I had won a prize. In truth, he was simply happy to have come up with a diagnosis and then referred me to yet another doctor (similar to what happened to MP patient Julia Greer). The doctor referrals are endless and very frustrating.
I’m a technical librarian, and I immediately started a literature search for sarcoidosis. Suddenly I realized there was a massive freight train coming towards me. Sarcoidosis is a deadly disease, and I was very alarmed. I went to Stanford University Medical Library looking for articles with sarcoidosis in the title. I found Dr. Trevor Marshall’s article “Sarcoidosis Succumbs to Antibiotics” but was so brain-fogged at the time that the information didn’t immediately sink in. But several days later – and I remember the exact day, January 4th 2005, I googled the words “sarcoidosis” and “cure.” The website sarcinfo.com, which was the predecessor website to what is now MarshallProtocol.com popped up. Eureka!
Once on sarcinfo.com I started to read, and read, and read. I read for two weeks straight. The science and information on the board dominated my thinking and also fascinated me. It was as if there was a neon light in my brain flashing Marshall Protocol! Marshall Protocol! The stories of other patients recovering were both gripping and fascinating. Many of them provided great hope, especially when I started to read that people’s blood work, laboratory tests and X-Rays were actually improving. I believe in the power of information. When information is backed up by openly published medical literature and human experience detailing remarkable case histories, my doubts are removed.
Luckily there was a general practitioner in my area who already had one patient on the MP and she was glad to take me on as a patient. I’m lucky – she’s supportive and open-minded.
It took a while before I experienced immunopathology – the temporary rise in symptoms that occurs when the body deals with the consequences of dying bacteria. This was probably because my level of 25-D was too high during that period of time. Since 25-D blocks the activity of the receptor that controls the ability of the innate immune system to function correctly, I couldn’t effectively kill bacteria until my level came down. Unfortunately, during that time, I was eating organic hot dogs and didn’t realize that the fat in the hot dogs was high in vitamin D. When I removed the hot dogs from my diet I finally started to react to the antibiotics.
One of the first signs that the antibiotics were kicking in was that I experienced a sneeze of massive proportions. It was such a violent explosion that I thought it might have injured my neck muscles. After that I started to have a runny nose, and the insomnia and other symptoms temporarily returned. However even after that point, my immunopathology was relatively tame and easy to handle.
My headaches diasapeared completely within days of starting Benicar. My insomnia and restless leg syndrome has essentially resolved; last night I slept a solid 7 hours. Starting at a young age I also had a tremor in my hands that had produced stress and shame for many years. I was told it was a “familial tremor” as my Grandfather suffered from the same ailment. But now, my hands are fairly steady. Just a few days ago my friend commented on the absence of the tremor. “You’re hands used to be a mess!” she said, “Now they’re not shaking anymore!”
I had an MRI done six months into the MP which, even at that early point, showed overall improvement in my lungs; and I emphasize those were the exact words of the reporting physician written on the X-Ray report. Since that time I have not had another MRI done, but I plan to soon, and expect my lungs to be quite healthy. Also encouraging is that my liver enzymes, which were out of range before the MP, have returned to normal.
I am also delighted with how the MP has affected my bone density. I’ve had three dexa scans done over the last seven years - in 2001, 2004, and 2007. All tests were done at the same facility, on the same machine. Between 2001-2004, my bone loss was significant. However between 2004-2007, during the time that I’ve been on the MP, the rate of bone loss slowed down significantly. I feel my bone loss will continue to slow and probably reverse. After all, it takes 10 years for the bones to completely rebuild, so this process is like turning around an 400 foot freighter: it takes some time and space, but with careful planning, it works!
I’m also able to exercise, just last weekend I went on a 29-mile bike ride. Riding bicycles again is a great joy.
Yes. I had to put up heavy dark curtains in my house and I would wait until it became dark to go outside. But now I am much less light sensitive although I still cover up when I go outside.
My friends were not very open-minded about the treatment, and family expressed some doubts but were respectful. Some of them just express disbelief at the idea that the MP can work. It’s tough, especially when I realize that they also show signs of Th1 disease. Long ago they probably all concluded I’m eccentric, but I have hope for the future. Persistance is omnipotent!
Sit down and read the progress reports of patients who have symptoms similar to yours for at least a week or two. Then go with your gut, follow your instincts. If mainstream medicine hasn’t worked for you, there is very little risk in the MP. Recognize that the openly published research about the MP is also backed up by positive results obtained though experimentation.
My whole life has been given back to me, and I am excited about making our point to the “powers that be” in the medical establishment. Everything is going our way, and it’s only a matter of time until the NIH cannot ignore us. The power of the Internet to get the word out is tremendous. And it goes without saying that I am indeed very grateful to the board staff of the Autoimmunity Research Foundation and of course Professor Marshall for giving me back my health.
16 Responses for "Interview with Sherry Cook - Sarcoidosis, Cat Scratch Fever, Restless Leg Syndrome"
Thank you for sharing your story Sherry Cook.
I have been diagnosed with sarcoidosis and have been bounced around from doctor to doctor, none of them familiar with the disease as my symptoms/condition worsens.
I live in the Bay Area of Northern California. I was hoping you could refer me to the doctor who helped you with marshall protocol. It would be much appreciated. Thank you, Sara
Hi Sara,
So glad you have found the Marshall Protocol and are looking for a doctor.
Just in case Sherry doesn’t read this your message in the next few days I will forward her your email and tell her to contact you.
Best,
Amy
My name is Kay and I live in Queensland, Australia.
I was diagnosed with Pulmonary Sarcoidosis in early 2004. I would like to know more about the Marshall Protocol and whether I can access anyone here in Australia to find out more.
I am also concerned about your comment about Vitamen D, as I read about the exciting Research findings in relation to Sarcoidosis about three years ago. You have mentioned this as being knowledge years prior to this time?
Please advise and give me some feedback. I would just appreciate the opportunity to liaise with other Sarcoidosis peope.
Kay
Hi Kay,
I’m glad you are interested in learning more about the Marshall Protocol. In order to better understand the treatment make sure you read the following article:
“About the Marshall Protocol”
http://bacteriality.com/about-the-mp/
Then read as much information as possible on the Marshall Protocol study site. I would start with the following forum:
“Essential information about the Marshall Protocol”
http://www.marshallprotocol.com/forum2/
I certainly understand your desire to talk with other sarc patients on the treatment. A few suggestions;
- You can post on the following website which is run by Autoimmunity Research Foundation, the non-profit organization that runs the MP study site.
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure my Th1)
The people who will answer your questions (free of charge) are patient advocates, meaning that they are patients who have succesfully completed or reached the later stages of the treatment are volunteering to offer advice. Many of the them had sarcoidosis, so you should set up a thread on that site and your questions will be answered by other sarc veterans.
There is also an Australian branch of Autoimmunity Research Foundation. I believe they hold support meetings in the major Australian cities and also provide patient support elsewhere. Read more about the organization here.
http://www.marshallprotocol.com/view_topic.php?id=7541&forum_id=11&highlight=Australian+members+Robyn
My final suggestion is that you could get on the Marshall Protocol study site and look for patients with sarcoidosis (every person has a profile) Then you can send a private message to any person who seems like they may have symptoms similar to yours but have already started the treatment.
About vitamin D - the “exciting research” you read about was surely regarding data that was misinterpreted. Even before the MP, research has shown that vitamin D negatively affects patients with sarc. Read the following article to learn more about the current situation surrounding vitamin D:
http://bacteriality.com/2007/09/15/vitamind/
In a month, Dr. Marshall also has a paper coming out about the latest research about vitamin D that will be published in the meedical journal Bioessays. A copy will be available on the study site soon.
Hope this helps!
Amy
I worked with Sherry many years ago in Livermore, and remember some of her early symptoms. Last I heard she was just diagnosed, and searching for a treatment. How wonderful to hear that she has found something that works so well for her! We have both moved since then; I found this posting in looking for an address to send a Christmas card. If you could forward my email address to her, I would appreciate it.
Hi Susan,
I certainly will. I’m sure Sherry will be very glad to here from you!
Amy
Hi I am a African American male that was diagnosed with Sarcoidosis back in 2000. I am simply put! I am frustrated and in need of help. I have been taken the steroid medicine call prednisone for eight years. If some one is able to help me better my condition it would be much appreciated!
Thanks
Hi Jeff,
If really want to get your health back then you are in the right place. The latest molecular modeling research, which is described on this site, has confirmed that sarcoidosis is caused by different species of L-from bacteria - bacteria that have mutated from classical forms of bacteria, lost their cell walls, and developed the ability to live undetected inside the cells of the immune system that are supposed to kill them. Read more about these bacteria here.
http://bacteriality.com/2007/08/15/l-forms/
The Marshall Protocol is able to kill these bacteria over a period of several years, and is the only treatment to do so effectively. Read more about how the Marshall Protocol medications are carefully designed to kill L-form bacteria here:
http://bacteriality.com/2007/10/11/antibiotics/
The Marshall Protocol is a curative treatment - once you have killed the bacteria making you sick you will become as healthy as any other person out there. The treatment is part of a phase II study monitored by the FDA and patient reports so far show that African American people respond in the same way to the medications as people of other races. Read an interview with an African American woman who used the Marshall Protocol to recover from sarcoidosis here:
http://bacteriality.com/2007/11/04/interview7/
In order to start the treatment you will have to wean off your prednisone. Unfortunately, prednisone is actually a harmful medication for patients with sarcoidosis - namely because it slows the activity of the immune system, allowing L-form bacteria to spread with even more ease. The reason that patients often feel better on prednisone is that when on the med, their immune system kills less L-form bacteria. However it is when L-form bacteria die that they cause the host to feel the greatest increase in symptoms - due to the fact that when they die they release toxins and the immune system releases cytokines (or proteins that cause pain and fatigue) in response to their death. So the prednisone you are taking is just masking this response, but unfortunately your L-form bacteria are very much alive. Read more about the Marshall Protocol and the bacterial die-off reaction here:
http://bacteriality.com/about-the-mp/
Many other people have been on prednisone when they wanted to start the MP and have weaned successfully.
In order to learn more about the Marshall Protocol I recommend you read as much information as possible on this site as well as on the Marshall Protocol study site itself. This forum is a good place to start:
http://www.marshallprotocol.com/forum2/
I’m sure you will have questions about how to proceed. If so, feel free to post them at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). You questions will be answered free of charge by experienced patient advocates.
Good luck!
Amy
i had sarcoidosis i don,t quite drinhing milk my lungs are sore i quit eating gresae fatty food it does not seem to help maybe it needs more time
Hi Mike,
If you had sarcoidosis at one point then you still have sarcoidosis. It does not go away without treatment. We now understand that sarcoidosis is a bacterial disease. It is caused by different species of L-form bacteria, bacterial that have changed form, lost their cell wall, and are able to hide undetected inside the cells of the immune system. You are still infected with these bacteria.
In order to get better you MUST kill these bacteria. The only treatment that will allow you to kill them is the Marshall Protocol. Here is a brief description of the treatment:
http://bacteriality.com/about-the-mp/
Here is a piece about L-form bacteria:
http://bacteriality.com/2007/08/15/l-forms/
It is very important that you start the Marshall Protocol. Not eating fatty foods is a good idea but will not cure your disease. Even if you don’t drink milk your vitamin D levels are still likely to be too high and could be slowing your immune system. The Marshall Protocol will allow your immune system to regain strength.
I’m sure you have many questions about the treatment and how to start it. Go to the following website:
http://www.curemyth1.org (Th1 refers to disease caused by L-form bacteria, hence the name Cure My Th1). The patient advocates on that site will answer your questions about the Marshall Protocol free of charge.
Good luck!
Amy
I was recently diagnosed. I have a fantastic doctor - fantastic… if anyone would like his name i’m happy to provide - i live in North Carollina. He gave me an article in the NEJM… it says to beware of anecdotal treatments. I’m just begining to do the research on treatments. Prednisone was the first response but I’ve been on that for my asthma before and I can’t stand it. My doc actually listened and - along with his advice we developed a treatment plan specifically tailored to my needs and the severity of my condition. At what point does one need to use MP? I’ve experienced symptoms since 2004 and I have it in my lungs, lymph nodes and spleen - possibly my eyes and sinuses. I seem to be responding to the lowered dose of Prednisone…. 10mg/day and not the 40 that is normally prescribed.
Hi Brenda,
Thanks for writing. You should start the MP as soon as possible. I am very glad to hear that you have such an open-minded doctor who seems to truly care about your health. However, you do not want to take prednisone.
Sarcoidosis is an infectious disease, now know to be caused by different species of L-form bacteria. Read more about them here:
http://bacteriality.com/2007/08/15/l-forms/
The Marshall Protocol uses carefully chosen pulsed, low-dose antibiotics along with a medication that activates the immune system in order to eliminate these bacteria over the course of several years. Here is a brief description of the treatment:
http://bacteriality.com/about-the-mp/
And a piece that describes how the antibiotics work in greater detail:
http://bacteriality.com/2007/10/11/antibiotics/
To date, the Marshall Protocol is the only treatment that effectively targets L-form bacteria, thus addressing the actual cause of your illness. Prednisone is a corticosteroid medication that simply acts as a band aid.
Prednisone works by slowing the activity of the immune system. This prevents the immune system from effectively killing L-form bacteria. However it is the killing of L-form bacteria that generates an increase in painful symptoms since when they die the immune system releases cytokines (inflammatory proteins) and the bacteria themselves release toxins.
So on prednisone, while less bacteria are killed, people may experience short-term relief as their immune system shuts down and less bacteria are killed. However, in reality, this situation allows the bacteria to spread more easily.
So if you are taking 10 mg of prednisone right now you are slowing your immune system and the bacteria at the heart of your illness are spreading with greater ease. Based on the experiences of other people I know who also took prednisone at one point, you will almost certainly relapse in a few years and feel worse then you do now.
So that’s why I recommend discussing the MP with your doctor immediately. You don’t just have to manage you illness - if you do the MP you can actually get rid of your illness and live a completely normal life again.
If you have questions about the MP the best place to ask them is at the following site:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure my Th1)
The patient advocates on that site will answer your questions free of charge.
It also a good idea to become familiar with the information on the Marshall Protocol study site. This forum is a good place to start:
http://www.marshallprotocol.com/forum2/
Best,
Amy
I was diagnosed with Sarcoid in Aug. 2004. My pulmonologist said it was inactive at the time. I have since moved to a different state since then and I have began having trouble. My new Dr. said I have new activity in my lungs. Could this be an environmental change causing this to flare up again? Also I was diagnosed with Sarcoid prior to being diagnosed with Hodgkin Lymphoma, I am currently in remission 3 yrs. Would there be any concern with me being put on the MP treatment for the Sarcoidosis?
Hi Shanean,
Your first doctor was wrong - there is no such thing as inactive sarcoidosis. We now understand that sarcoidosis is a bacterial disease, and once you have acquired the L-form and biofilm bacteria that cause the illness, they spread and the patient remains ill. This is surely why you are now noticing that your symptoms are acting up again and have not gone away.
The fact that sarcoidosis does not go away on its own or stabilize on its own was confirmed by the 2003 NIH ACCESS study, the largest study ever conducted on patients with sarcoidosis. The researchers followed 215 sarcoidosis patients for two years - the period which it is sometimes thought that the disease might go into remission. Not only did the study find that measures of sarcoidosis severity remained unchanged over the two year period, even when many of the patients were taking medication, there were no documented cases of spontaneous remission.
They also stated that “most patients with persistent disease at two years were unlikely to have resolution of Sarcoidosis.” “end-stage pulmonary Sarcoidosis usually develops over one or two decades.”
So it is essential that you target the L-form bacteria causing your disease. L-form bacteria are forms of bacteria that have mutated from classical bacteria, lost their cell walls, and are able to hide undetected inside the cells of the immune system. Read more about these bacteria here:
“Understanding L-form bacteria”
I don’t think that an environmental factor has triggered the return of your sarc symptoms - only that your L-form bacteria have been left unchecked and have thus been spreading - causing a rise in symptoms. Of course, since L-form bacteria are found nearly everywhere in our environment - they are not killed by pasteurization, filtration, or other processes, it could be that during or after you move you picked up even more L-form bacteria at your new location.
The fact that you are in remission from Hodgkins Lymphoma is definitely not going to negatively affect your progress on the MP. Actually, there is much evidence that L-form bacteria play a role in the pathogenesis of cancer. More research needs to be done on cancer and L-form bacteria, but these intracellular pathogens could very well be behind why you developed Hodgkins in the first place. Perhaps the treatments that you used for Hodgkins killed some of the cells that harbored L-form bacteria, but left the species causing sarcoidosis unchecked. Maybe there are still some Hogkins-causing L-forms left and the MP could help you fully eliminate those pathogens as well so that you can be sure the disease will never return. With this in mind I think the MP is an excellent curative option for you.
You may be interested in an interview with a researcher who identified L-form bacteria in patients with cancer:
“Interview with Dr. Alan Cantwell”
http://bacteriality.com/2007/09/11/cantwell/
Cantwell actually wrote a review article about L-form bacteria and Hodgkins disease. Here’s the link:
http://www.joimr.org/phorum/read.php?f=2&i=108&t=108
If you have more questions about the MP the best place to ask them is at the following website: http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). The patient advocates on that site will answer you questions free of charge and provide you with more information and links about the MP.
Also make sure you read over as many articles as you can on this site to become familiar with the treatment and how it works.
Best,
Amy
I am so thankful you have the success stories on line. I have been diagnosed with Stage 1 sarcoidosis. My husband has had sarcoisois for 25 years and his lungs are very scarred. I don’t want to be sick or disabled or die from this disease and I am ready to start the protocol. I have a Dr. that has done this with 2 other people and have asked to be placed on the waiting list.
I have a friend that is constantly getting sinus infections. She has chronic leukemia. Do you think this might help her?
Thank you again for your website. More success stories to counter-balance the horror stories on line, please!
Hi Diane,
I’m so glad you plan to start the MP. The fact that your sarcoidosis has not progressed to later stages means that hopefully your bacterial load is not too high. If that’s the case, it may be easier for you to ramp your antibiotics more quickly and manage the immunopathology. It’s also in your favor that you don’t seem to have treated your sarc with corticosteroid medications before starting the MP so your immune system should be in better shape.
There are plenty more people to interview when it comes to sarcoidosis MP recovery stories (and people with other diseases). I am in the process of applying to grad school now but as soon as my schedule becomes less hectic I certainly will be putting up more interviews.
Yes. I think that your friend could definitely benefit from the MP. The recurrent sinus infections are no doubt caused by chronic bacteria that the MP can effectively target. Not to mention the fact that every year, more and more cancers are linked to bacteria. It’s quite likely that tumors are largely clumps of infected cells and leukemia, like other diseases the MP treats, is an inflammatory disease. Whenever one hears the word “inflammatory” bacteria are almost always at play.
At the very least the MP will strengthen your friend’s immune response which has to prove helpful in fighting leukemia, no matter what the cause. By continually activating the VDR Benicar will keep her innate immune response working as best as possible which is key to dealing with any disease.
Also, an active VDR transcribes genes that prevent metastasis, or the spread of cancerous cells, so taking Benicar would keep those genes active.
It’s also worth noting that among the thousands of people on the MP, there are essentially no cases of cancer (and keep in mind that these are very high-risk patients). So it appears that the MP may very well be killing bacteria involved in cancer as well as bacteria that cause other inflammatory diseases.
People on the MP have reported that their tumors have shrunk after spending time on the MP, including my Mom, whose benign ovarian tumor has shrunk during her time on the MP.
Finally, the standard treatments for leukemia may actually harm the immune response. I’d tell your friend to be especially wary of the medicine BCG.
The following interview is with a man who used the MP to treat his bladder cancer with success. It may be of interest to your friend:
http://bacteriality.com/2008/07/18/interview24/
Hope this helps!
Amy
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