Glad you are looking in the MP and want to start killing the CWD bacteria making you ill.

Unfortunately, the MP study is now closed. The organization that runs the MP - called Autoimmunity Research Foundation - tried everything to keep it open, but over the past few months too many people have wanted to start the MP and there are just not enough staff members on the study site to keep up with their needs.

However people who are sure they want to start the MP and have a good idea of what the treatment entails should still post about their desire to join the study at the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name name Cure My Th1).

The advocates on curemyth1.org can put you on a waiting list. They may even give you a form to fill out so that your spot on the waiting list is more solidified and you will be admitted to the study in time (probably sooner than later).

In the meantime, the advocates/moderators are not helping people find doctors because of the over-flow situation. All I can recommend is that you try to contact other MP patients who may live in your area (you can look at patient profiles on the MP site -www.marshallprotocol.com). Also trying to educate one of your current doctors or a new doctor so that they will give you the necessary MP medications is a good idea. Materials to present to a physician are also available on the study site.

Best of luck!

Amy

Gail

I actually should let you know that the study site was recently closed to new patients because there is such an overload of patients who want to do the MP and not enough staff to handle them right now. Yet, you can still go to curemyth1.org and put your name on a waiting list so that you can start the treatment when a slot opens up.

I highly recommend you do this because the MP will restore the composition of bacteria in your stomach so that you will no longer have to restrict foods from your diet. I have been working on an MP-related project that involves analyzing data collected from MP patients. Nearly every patient with food sensitivities reported their sensitivities are better or gone thanks to the MP. And these are patients who haven’t even finished the treatment.

Maybe you can manage your sensitivities by cutting out problem foods, but why do so when there is a treatment that will allow you to eat a full diet again?

Best,

Amy

By the way, I’m still discovering more about my food sensitivities by trial and error. Appears my problem may be due to phosphate overload or mishandling (due to low enzyme?) by my system. I only say this because lately, I’ve been symptom free by simply avoiding egg yolks and calcium glycerophosphate in the product Prelief (which produced an extremely strong and unpleasant reaction). Coffee with reishi mushroom in the blend has been no problem. I know there is one CFS doctor who promotes guaifenesen (as in Mucinex) as a remedy, due to the phosphate issue. I believe these therapies will converge one day, as I mentioned in a separate email I copied to you.

Thanks again.

Sincerely yours for research with a completely open mind,

Glen

No, Dr. Marshall has not looked into alternative methods for food sensitivities because data collected from the MP study site is showing that food sensitivities clear up on their own as the MP medications kill pathogenic bacteria, allowing the gut to restore a population of healthy bacteria.

There is definitely no need to add extra supplements such as lactoferrin into the process as the point of the MP is to allow the body to reach a natural state of homeostasis on its own. Here’s a short article about why patients on the MP do not need to take any form of supplements:

http://bacteriality.com/2008/02/23/misconceptions/#9

Minocycline is the base antibiotic of the MP and remains just as effective as ever despite the fact that it has been prescribe widely for teenage acne and other conditions since 1968. No patients on the MP at all are showing any sort of resistance to the MP antibiotics. This short piece talks more about antibiotic resistance:

http://bacteriality.com/2008/02/23/misconceptions/#3

Also, I encourage you to take a look at the following article that describes how the MP antibiotics work at the molecular level:

http://bacteriality.com/2007/10/11/antibiotics/

Here’s a quote from the article:

“Because each of the three classes of bacteriostatic antibiotics used by the Marshall Protocol affect different ribosomal subunits and target different mechanisms of protein synthesis, a bacterial species would have to develop three different mutations in order to survive in their presence. To date, no bacterial species has been shown to have this ability. Consequently, Marshall argues that when the Marshall Protocol antibiotics are taken in the correct manner, “Statistically, the chance that bacteria will evolve that cannot be killed by the MP is so close to zero it is inconsequential.”

So antibiotic resistance is not a concern Autoimmunity Research Foundation is worried about at all at the moment, and I hope that it doesn’t worry you either.

That’s because there are many people who have recovered from food and other sensitivities thanks to the MP and I hope you can become one of them. Before the MP my boyfriend couldn’t tolerate eating any vitamins, vegetables or milk. All he could eat was pasta and oatmeal. Sometimes he ate oatmeal three times a day. Now, he can eat whatever he wants and does not have to take any sort of supplements for his stomach.

I also highly encourage you to start the treatment soon in order to begin tackling the bacteria causing your sensitivities. The sooner one starts the MP, the less bacteria they have to kill and the easier any die-off reaction is to manage.

You bacterial load seems low and thus I doubt you will become very light sensitive. You should also be able to maintain a high level of activity since at this point it doesn’t seem as if you infection has spread.

If you have more questions about food sensitivities or want a second opinion about lactoferrin etc. a great place to ask questions about the MP is at the following website:

http://www.curemyth1.org Th1 refers to diseases caused by bacteria, hence the name Cure My Th1. Your questions will be answered free of charge by patient advocates.

Best,
Amy

I’m a newbie to all this, but I have been in touch with JCW by email. The reason I have gotten into this info this far is due to some very weird and increasingly hard to manage food sensitivities (the cholorgenic kind). Otherwise, I’ve been given a clean bill of health by my MD. Just curious, but has your group looked into any alternative methods, e.g., lactoferrin, lauricidin, etc., or do you see any hope in that direction? I guess I have a concern that since we know relatively little about the microbe universe, what’s to prevent them from developing a resistence to even this protocol?

I am so sorry to hear that your sarcoidosis is causing you to suffer so greatly. Although I had CFS, I know what it’s like to want to die every day just so that the pain and go away and it’s possible to stop fighting. I was at that point before starting the Marshall Protocol. When I got on planes I hoped that they would crash. I was that apathetic.

That is why it is so absolutely important that you do the Marshall Protocol. Sure, the bacterial die-off reaction (called immunopathology) can be difficult to tolerate,but you are already suffering and once on the MP it makes a big difference to know that your symptoms are a result of bacterial death and improvement and not just a sign of demise.

If you have an awsome pulmonologist then I truly hope he/she will be open to putting you on the Marshall Protocol. The first step I would take would be to read all the articles on this site and on the MP study site in order to learn as much as possible about the treatment and the solid science that forms its backbone. Then you can walk into his/her office and really sound like you know what you are talking about. The fact that you have researched the MP in detail should make you doctor realize that you are really serious about doing the treatment.

There are definitely documents that you can present to your doctor. I recommend showing him/her a copy of Dr. Marshall’s recently paper that was published in BioEssays, a prestigious peer reviewed journal. Here is the link to the paper:

http://TrevorMarshall.com/BioEssays-Feb08-Marshall-Preprint.pdf

One of our members has also created a packet of information to present to doctors about the MP. Details about the packet can be found here. It is very helpful.

“Folder of MP information for your doctor”

http://www.ginariggio.com/MP/phase1guide.html

You may also want to order a “Science” DVD off the MP study site. There are instruction on how to orde the DVD on the top part of the screen of the MP site. The DVD contains three talks by Dr. Marshall at various medical conferences that not only explain the science behind the MP but also show that Dr. Marshall interacts with mainstream scientists on a regular basis. If you can’t order the DVD, here are online links to his three best talks:

Marshall TG: Molecular Mechanisms Driving the Current Epidemic of Chronic Disease. Seminar presentation, Bio21, University of Melbourne, Australia, 16 Nov 2006
Online Video available from URL: http://autoimmunityresearch.org/bio21.ram
Transcript available from URL http://autoimmunityresearch.org/transcripts/marshall_bio21_2006.pdf

Marshall TG: A New Approach to Treating Intraphagocytic CWD Bacterial Pathogens in Sarcoidosis, CFS, Lyme and other Inflammatory Diseases. American Academy of Environmental Medicine; 2006, Plenary Sessions Syllabus, 41st Annual Meeting
Low resolution copy of the DVD video available online at YouTube
Transcript available from URL http://autoimmunityresearch.org/transcripts/marshall_aaem_2006.pdf

Marshall TG: Molecular genomics offers new insight into the exact mechanism of action of common drugs - ARBs, Statins, and Corticosteroids. FDA CDER Visiting Professor presentation, FDA Biosciences Library, Accession QH447.M27 2006
Online Video available from URL http://autoimmunityresearch.org/fda-visiting-professor-7mar06.ram

Also be sure to tell you doctor that Dr. Marshall just returned from presenting at the Days of Molecular Medicine Conference in Karolinska Sweden and that he will be charing an entire session at the upcoming International Conference on Autoimmune Disease in Portugal. That’s a huge conference and shows that his work is really starting to catch on. Here is the abstract for the presentation Dr. Marshall gave at Karolinska:

Marshall TG: VDR Nuclear Receptor is key to Recovery from Cognitive Dysfunction. Abstract presentation, Days of Molecular Medicine, Karolinska Institute, Stockholm, April 2008.
Copy available from URL http://autoimmunityresearch.org/dmm2008/DMM2008_Marshall.pdf

If your current doctor won’t put you on the MP then switch doctors. Your health is too important. The patient advocates at the following website can guide you if you need to find another physician:

http://www.curemyth1.org (th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). Not only will the advocates help you find a doctor but they will also answer other questions you have about the MP free of charge.

Good luck!

I am so sorry to hear that your sarcoidosis is causing you to suffer so greatly. Although I had CFS I know what it’s like to want to die every day just so that the pain and go away and it’s possible to stop fighting. I was at that point before starting the Marshall Protocol. When I got on planes I hoped that they would crash. I was that apathetic.

That is why it is so absolutely important that you do the Marshall Protocol. Sure, the bacterial die-off reaction (called immunopathology) can be difficult to tolerate but you are already suffering and once on the MP it makes a big difference to know that your symptoms are a result of bacterial death and improvement and not just a sign of demise.

If you have an awsome pulmonologist then I truly hope he will be open to putting you on the Marshall Protocol. The first step I would take would be to read all the articles on this site and on the MP study site in order to learn about the treatment and the solid science that forms it’s backbone. Then you can walk into his/her office and really sound like you know what you are talking about. The fact that you have researched the MP in detail should make you doctor realize that you are really serious about doing the treatment.

There are definitely documents that you can present to your doctor. I recommend showing him a copy of Dr. Marshall’s recently paper that was published in BioEssays, a prestigious peer reviewed journal. Here is the link to the paper:

http://TrevorMarshall.com/BioEssays-Feb08-Marshall-Preprint.pdf

One of our members has also created a packet of information to present to doctors about the MP. Details about the packet can be found here. It is very helpful.

“Folder of MP information for your doctor”

http://www.ginariggio.com/MP/phase1guide.html

You may also want to order a “Science” DVD off the MP study site. You can see an add for the DVD on the top of the screen. The DVD contains three talks by Dr. Marshall at various medical conferences that not only explain the science behind the MP but also show that Dr. Marshall interacts with mainstream scientists on a regular basis. If you can’t order the DVD, here are online links to his three best talks:

Marshall TG: Molecular Mechanisms Driving the Current Epidemic of Chronic Disease. Seminar presentation, Bio21, University of Melbourne, Australia, 16 Nov 2006
Online Video available from URL: http://autoimmunityresearch.org/bio21.ram
Transcript available from URL http://autoimmunityresearch.org/transcripts/marshall_bio21_2006.pdf

Marshall TG: A New Approach to Treating Intraphagocytic CWD Bacterial Pathogens in Sarcoidosis, CFS, Lyme and other Inflammatory Diseases. American Academy of Environmental Medicine; 2006, Plenary Sessions Syllabus, 41st Annual Meeting
Low resolution copy of the DVD video available online at YouTube
Transcript available from URL http://autoimmunityresearch.org/transcripts/marshall_aaem_2006.pdf

Marshall TG: Molecular genomics offers new insight into the exact mechanism of action of common drugs - ARBs, Statins, and Corticosteroids. FDA CDER Visiting Professor presentation, FDA Biosciences Library, Accession QH447.M27 2006
Online Video available from URL http://autoimmunityresearch.org/fda-visiting-professor-7mar06.ram
Also be sure to tell you doctor that Dr. Marshall just returned from presenting at the Days of Molecular Medicine Conference in Karolinska Sweden and that he will be charing an entire session at the upcoming International Conference on Autoimmune Disease in Portugal. That’s huge conference and shows that his work is really starting to catch on. Here is the abstract for the presentation Dr. Marshall gave at Karolinska:

Marshall TG: VDR Nuclear Receptor is key to Recovery from Cognitive Dysfunction. Abstract presentation, Days of Molecular Medicine, Karolinska Institute, Stockholm, April 2008.
Copy available from URL http://autoimmunityresearch.org/dmm2008/DMM2008_Marshall.pdf

If your current doctor won’t put you on the MP then switch doctors. Your health is too important. The patient advocates at the following website can guide you if you need to find another physician:

http://www.curemyth1.org (th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). Not only will the advocates help you find a doctor but they will also answer other questions you have about the MP free of charge.

Good luck!

Amy

I am so sorry to hear that your sarcoidosis is causing you to suffer so greatly. Although I had CFS I know what it’s like to want to die every day just so that the pain and go away and it’s possible to stop fighting. I was at that point before starting the Marshall Protocol. When I got on planes I hoped that they would crash. I was that apathetic.

That is why it is so absolutely important that you do the Marshall Protocol. Sure, the bacterial die-off reaction (called immunopathology) can be difficult to tolerate but you are already suffering and once on the MP it makes a big difference to know that your symptoms are a result of bacterial death and improvement and not just a sign of demise.

If you have an awsome pulmonologist then I truly hope he will be open to putting you on the Marshall Protocol. The first step I would take would be to read all the articles on this site and on the MP study site in order to learn about the treatment and the solid science that forms it’s backbone. Then you can walk into his/her office and really sound like you know what you are talking about. The fact that you have researched the MP in detail should make you doctor realize that you are really serious about doing the treatment.

There are definitely documents that you can present to your doctor. I recommend showing him a copy of Dr. Marshall’s recently paper that was published in BioEssays, a prestigious peer reviewed journal. Here is the link to the paper:

http://TrevorMarshall.com/BioEssays-Feb08-Marshall-Preprint.pdf

One of our members has also created a packet of information to present to doctors about the MP. Details about the packet can be found here. It is very helpful.

“Folder of MP information for your doctor”

http://www.ginariggio.com/MP/phase1guide.html

You may also want to order a “Science” DVD off the MP study site. You can see an add for the DVD on the top of the screen. The DVD contains three talks by Dr. Marshall at various medical conferences that not only explain the science behind the MP but also show that Dr. Marshall interacts with mainstream scientists on a regular basis. If you can’t order the DVD, here are online links to his three best talks:

Marshall TG: Molecular Mechanisms Driving the Current Epidemic of Chronic Disease. Seminar presentation, Bio21, University of Melbourne, Australia, 16 Nov 2006
Online Video available from URL: http://autoimmunityresearch.org/bio21.ram
Transcript available from URL http://autoimmunityresearch.org/transcripts/marshall_bio21_2006.pdf

Marshall TG: A New Approach to Treating Intraphagocytic CWD Bacterial Pathogens in Sarcoidosis, CFS, Lyme and other Inflammatory Diseases. American Academy of Environmental Medicine; 2006, Plenary Sessions Syllabus, 41st Annual Meeting
Low resolution copy of the DVD video available online at YouTube
Transcript available from URL http://autoimmunityresearch.org/transcripts/marshall_aaem_2006.pdf

Marshall TG: Molecular genomics offers new insight into the exact mechanism of action of common drugs - ARBs, Statins, and Corticosteroids. FDA CDER Visiting Professor presentation, FDA Biosciences Library, Accession QH447.M27 2006
Online Video available from URL http://autoimmunityresearch.org/fda-visiting-professor-7mar06.ram
Also be sure to tell you doctor that Dr. Marshall just returned from presenting at the Days of Molecular Medicine Conference in Karolinska Sweden and that he will be charing an entire session at the upcoming International Conference on Autoimmune Disease in Portugal. That’s huge conference and shows that his work is really starting to catch on. Here is the abstract for the presentation Dr. Marshall gave at Karolinska:

Marshall TG: VDR Nuclear Receptor is key to Recovery from Cognitive Dysfunction. Abstract presentation, Days of Molecular Medicine, Karolinska Institute, Stockholm, April 2008.
Copy available from URL http://autoimmunityresearch.org/dmm2008/DMM2008_Marshall.pdf

If your current doctor won’t put you on the MP then switch doctors. Your health is too important. The patient advocates at the following website can guide you if you need to find another physician:

http://www.curemyth1.org (th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). Not only will the advocates help you find a doctor but they will also answer other questions you have about the MP free of charge.

Good luck!

Amy