Good for your for taking charge of your health and making a concerted effort to educate yourself about your diseases!

I’m so sorry to hear about your symptoms! I too know what it’s like to be completely misunderstood by friends while not even understanding why you are sick. I am much, much better today, but I developed CFS in college. Since I seemed to look healthy nobody believed me when I tried to tell them I felt absolutely horrible. My symptoms also escalated around age 17.

I tried a ton of treatments, all of which failed. Then I found the Marshall Protocol - the treatment that Freddy used to recover from his sarcoidosis. It changed my life, and now I understand that CFS and other inflammatory diseases such as sarcoidosis are actually caused by stealthy difficult to detect forms of chronic bacteria. While the average doctor isn’t yet aware of how to detect or kill these bacteria, the Marshall Protocol study trial is successfully using carefully chosen low-dose antibiotics and a medication that activates the immune system (Benicar) to effectively render them dead.

You’d also be amazed at how many diseases these bacteria cause. Thanks to very recent advances in bacterial identification technology, scientists are just beginning to realize how many previously unknown species of bacteria are capable of inhabiting the human body and causing chronic symptoms. Your symptoms may seem discrete but they are actually all connected - you are suffering from a widespread infection with many different forms of chronic pathogens that together cause your sarcoidosis, hearing loss, and other symptoms.

Furthermore, Dr. Marshall’s molecular modeling research has made it clear that these pathogens are able to dysregulate the immune response. When they do this, one of the receptors that no longer functions properly is the gluccocorticoid receptor. Interestingly, studies in mice have shown that when the activity of the gluccocorticoid receptor is inhibited, they lose their hearing. So there is a clear connection between gluccocortioid function and hearing loss. This highly suggests that there is a clear connection between the bacteria you surely harbor, their ability to dysregulate your immune response, and subsequently your hearing loss.

The great news is that the MP allows you to kill these bacteria, and when your bacterial load is killed, your immune system and gluccocorticoid receptor will function properly again - so that your hearing should be restored. Many of our study subjects reported hearing loss before starting the Marshall Protocol and are now reporting better hearing, sometimes excellent hearing that they never even knew was possible. So there is great hope that you can truly hear those chirping birds again and all the sounds that you so sorely miss.

Since the treatment has been shown to effectively treat sarcoidosis as well I truly hope that you look into it in greater detail.

This Marshall Protocol (MP) is a phase II study run by a California non-profit agency. The official phase II study is closed due to high demand but the guidelines for the treatment are online and available free of charge. As long as you can find a doctor who is willing to prescribe you the medications necessary to do the MP, you can still do the treatment alone with your doctor. Be sure to read the articles about the MP on this site in further detail so you understand the treatment as well as possible. I highly recommend watching this video about the MP and the science that forms its backbone:

http://bacteriality.com/2008/05/07/mpintro/

If you need help finding an MP doctor in your area I suggest posting about your situation on the following website:

http://www.curemyth1.org (Th1 refers to disease caused by bacteria, hence the name)

The patient advocates on the site, who answer questions free of charge, should be able to give you a list of doctors in your state who already have patients on the MP.

If none of these doctors lives near you, there are materials on the MP study site to show to doctors in order to educate them about the MP. So you could bring such materials to your current doctor and see if he/she is willing to let you do the treatment. Info for doctors, the MP guidelines, FAQs about the treatment etc are all on the study site -www.marshallprotocol.com

I remember being so sick with CFS that I thought I would never get out of bed again. Now I’m applying to grad school and feel like a different person. The treatment gave me (and hundreds of others) our lives back and I truly believe it can reverse your sarcoidosis and give you back you hearing.

Best,

Amy

PS In terms of finances and the MP. Ironically, it’s actually the cheapest treatment of all those I tried for my CFS. Since the treatment addresses the root cause of chronic disease, patients don’t take any supplements as the point is not to “boost” the body, but to bring it back to a state where it can function on its own.

So all you have to pay for is a few antibiotics and Benicar. If you don’t have insurance, generic Benicar that works just as well as regular Benicar can be purchased online for about $70 a month from a Canadian online pharmacy. The antibiotics are pretty cheap and since you don’t even take whole pills (often you will only take 1/2 or 1/4 of a pill) a few pills go a long way. Other than that, the only other expense is doctor visits.

You answered that even more betterer than me.

Amy

With so much resistance to change in the medical community, this site most certainly will help speed the inevitable-but-slow process of mainstream acceptance. So on behalf of all those who won’t suffer needlessly in the future due to your outstanding efforts…thank you!

I even liked your answer to “Jo” above. The only thing I would have wished to point out is that Jo also made an egregious error; it’s not “to fall on ones face”…but rather, “to fall on one’s face”. The apostrophe before the S indicates possession…lack of an apostrophe denotes plurality.

On the other hand, perhaps Jo has multiple faces, since to be presented with what will inevitably be considered the most important medical discovery in the history of mankind, and to only be interested in a minor spelling error (while even making one of your own) is obviously ridiculous.

Keep up the amazing work…I’m certain that you’re helping many many people!

Best Regards,
Scott

I am not too familiar with Erythema Nodosum or Stomastitis, but if they are chronic conditions currently considered to be “of unknown cause” then it is quite likely they are caused by the chronic intraphagocytic metagenomic bacteria that we implicate in other inflammatory diseases.

The easiest way to confirm that your conditions will respond to the MP is simply to start Benicar and minocylcine as per the MP phase 1 guidelines and see if you experience an immunopathological reaction (a temporary rise in your disease symptoms). If you do, then you are killing bacteria and it is likely that chronic bacteria are causing your symptoms.

However, I also recommend asking the patient advocates (who answer questions free of charge) at the following website about your diseases and the MP:

http://www.curemyth1.org (Th1 refers to diseases caused by bactera).

Hopefully they will be able to provide you with more specific info about your conditions an the MP.

Best,
Amy

Thank you for pointing my most egregious error. I would have ended that last sentence with an exclamation mark, but it looks as if you have single-handedly exceeded the quota for this post.

Amy

I’m very, very glad to hear that you are interested in the MP because the treatment can give you your full life back.

Very recent research has made it clear that sarcoidosis is a bacterial illness. Your doctor is probably not aware of the related discoveries.

Several types of bacteria cause sarcoidosis including bacteria that have adapted to live inside the cells of the immune system (where they cannot be attacked) and bacteria that live in protected colonies called biofilms. Read more about there bacteria here:

http://bacteriality.com/2007/08/15/l-forms/

http://bacteriality.com/2008/05/26/biofilm/

This site describes a phase II open based FDA monitored study trial that uses carefully chosen pulsed, low=dose antibiotics and a medication that activates the immune system (Benicar) to allow patients to gradually kill these bacteria. When patients have killed all the bacteria causing their sarcoidosis they become completely well again and do not need to take any palliative drugs or supplements. You can find interviews with several recovered patients on the right side bar of this site.

The following article describes how the MP medications effectively target the chronic bacteria that cause sarcoidosis:

http://bacteriality.com/2007/10/11/antibiotics/

I also highly recommend that you watch the following video, which explains the Marshall Protocol and the science that forms its backbone in simple terms:

http://bacteriality.com/2008/05/07/mpintro/

Once you have read as much information about the Marshall Protocol on this site and the study site itself (www.marshallprotocol.com) if you have questions about the treatment ask them at the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by bacteria). The patient advocates will answer you questions free of charge.

I highly encourage you to use the Marshall Protocol to treat your disease as it is the only treatment to date that targets the root cause of sarcoidosis. Other treatment use steroids in an effort to “cover up” the problem. The steroids slow the immune response to the bacteria that cause sarcoidosis so that less are killed and the immune system’s immflammatory response to their deaths drop. However such a method offers only short-term palliative relief. In reality, because the immune system is weakened, the bacteria that cause sarcoidosis are able to spread with greater ease and make the patient sicker in the long run.

So I encourage you to look into the MP in greater detail!

Best,

Amy