18 Jan 2008
Several years ago this West Virginia native feared for his life. He had managed to survive two heart attacks, but his sarcoidosis of the heart, myopathy, atrial fibrillation, and fluid-filled lungs were only getting worse. Now, after 2 1/2 years on Autoimmunity Research Foundation’s Marshall Protocol, this 69-year old is active again thanks to the fact that his heart conditions and sarcoidosis symptoms have improved considerably. Meet Freddie Ash.

As a child I was fed canned milk fortified with vitamin D. Early on I was deficient in iron. They made me eat molasses to try to bring the level of iron up, but in grade school it was so low I saw the doctor almost every day. They had to pull out my baby teeth because they rotted too quickly.
In grade school they had a nurse come in to check our hearts. Later that day I was given a slip – I never did find out what it said. A doctor examined me with a forescope but could find nothing wrong. I was dismissed.
But I began to feel there was something wrong with my heart. During the 50s, we had a glider on the front porch. When I would lie on the glider it felt as if the whole glider would jump every time my heart would beat.
In December of ’78 I had a high fever. I was so cold that my wife had to put socks on my feet while I was in bed. I was shaking and shivering. When my fever reached 104 degrees I went to the hospital and they did an EKG. I was told that not enough oxygen was flowing to my heart and that I should get a stress test done.
But when I went to my family doctor the next day he said, “Oh, the low oxygen was just the result of a fever, you don’t need a heart test!” Looking back, I can’t imagine that he didn’t have my heart checked.
In August ’72 I went to the doctor because I was starting to feel stiff all over. My ankles were red and extremely swollen. My doctor said he’d never seen anything like it before. They thought maybe I had arthritis, yet my bloodwork didn’t confirm that diagnosis.
That March of ‘73 I began to have trouble with my left eye. It felt as if somebody had stuck their finger in it – it was red and hurt as if there was a piece of broken glass inside. A doctor at the Huntington Eye Clinic diagnosed me with iritis. I started to take the steroid eye-drop prednisolone. A few days later I was back. The symptoms had spread to my right eye. At that point I began to think, “Hey, maybe my eye symptoms are connected to my other disease symptoms!”, but my doctors didn’t have the same view. My spleen was enlarged - a symptom I now know was a result of sarcoidosis. During this time I lost about 40 pounds in 30 days. My friends thought I might die.
I began to suffer from chest pain and saw a different doctor in ’82. This time he did run an EKG and found a blockage in my heart and also in my lungs. I also had swollen lymph nodes. I was sent to see a heart specialist in Dayton Ohio. After some testing he told me I had sarcoidosis and sent me to the emergency room. I refused to take an ambulance to the ER and drove myself. Once there, I was hooked up to a heart machine. I could see on the screen of the machine that where the lines are supposed to go up and down with each heart beat, my lines were only going down. It felt like an electric shock was going through my entire body. Immediately after, I was told I had 1st degree blockage, myopathy, and sarcoidosis of the heart.
In 2000 a heart test showed that the wide parts of my arteries were blocked by 95%. My ejection fraction went down to 15%. I was told I needed to have bypass surgery. The Cleveland Clinic also thought I might need a heart transplant. The whole time I kept telling my doctors “My sarcoidodis and my heart problems are connected!” I had researched sarcoidosis in great depth and read papers stating that sarcoidosis and heart disease were both bacterial illnesses. Yet my doctors always insisted on viewing them as two separate diseases. At one point when I was being interviewed by a doctor he said, “You know more about sarcoidosis than we do!”
The bypass surgery was scheduled for March 20th. On March 10th I had a heart attack. They gave me ten days to recover, then flew my by plane to get the bypasses done. My insurance company never did cover the flight – I had to pay $8,600 out of pocket.
It took me a long time to recuperate from that heart attack and the surgery. But in August 2003 I went on vacation with my wife. I started to feel nauseous, my back hurt, and there was a pain down my left arm. I was flown by helicopter to West Virginia University Hospital and treated for another heart attack. When the nurse took my blood pressure she refused to write it down because it was so low.
The doctors at the hospital told me there was something wrong with my bypasses. In fact, they couldn’t even find the bypasses. My doctor said my level of CRP was elevated. I shook my finger at him and said, “CRP is a marker of inflammation! Sacoidosis is an inflammatory disease and my heart disease is connected to my sarcoidosis!”, but he still didn’t acknowledge the connection. Today I know that view was correct. Dr. Marshall’s research has confirmed that both sarcoidosis and heart disease are connected because they are both diseases caused by L-form bacteria.
I had a second round of bypass surgery done. It turned out that all of the previous bypasses had become calcified. The doctor said he had never seen anything like it. My lymph nodes and aorta were also calcified. I was also told that I had atrial fibriliation. My left leg was swollen with scars and was in very bad shape because the veins had been pulled out during my first bypass surgery. I had to start seeing the doctor every week so that 2 liters of fluid could be drained from my lungs at each visit. I thought for sure I’d be a dead man in 3-4 years.
Before starting the Marshall Protocol my atrial fibrillation (AF) was at 97%. When I started the Marshall Protocol it went away, most likely due to the anti-inflammatory effects of Benicar. I was able to stop all blood thinners. However an EKG revealed that the atrial fibrillation returned in March of 2006 as a result of an increase in the inflammation generated by bacterial die-off. At that point I started taking one blood thinner again. However, after getting the AF test results, I visited two different doctors and a nurse. Based on my heart rhythm, none of them could tell that the AF had returned. Just a few days ago I had a visit with yet another doctor who repeated that my heart rhythm was too good for me to be in atrial fibrillation. They were very surprised at how even my heart rhythm is. So it appears that the MP has allowed my heart rhythm to become so much steadier that the AF has little effect.
Now, I can lie on my left side without my heart beating so hard that it feels like it is coming out of my chest. My ejection fraction has improved from 33-35% (it was 15% at one time) to about 45%. My cholesterol level has dropped from 225-247 to 150 and 147 at my last two appointments. Before the MP my tryiglyceride levels were in the range of 295-395. My last blood test showed they have dropped to 61 and 62. My blood pressure used to run low – around 84/45 (as low as 48/26 on time). Now it reads 110/58.
After my first bypasses were done, I started to have problems with my left leg. It was cut again in eight places during my second round of bypass surgery. I started to have red swelling and fever blisters on the leg which reached all the way down to my knee. The Cleveland Clinic could not figure out what was wrong. Finally a cardiologist told me that the leg would never get any better. But after starting Benicar, the leg started to improve. The redness and blisters have gone away. There is still swelling from time to time, but it is less than before, and comes and goes depending on my dose of antibiotics.
After my heart attacks I could barely walk across the room. Now I can walk for over an hour and make a point of trying to walk at least 30 minutes every day. I can carry a basketload of clothes up the steps without a problem, something that was very difficult for me to do before the MP.
I can breathe so much more easily and the condition of my lung has greatly improved. There are days when I can just breathe and breathe and breathe! At the start of the MP I was forced to visit a pulmonologist every three months, but now my doctor has told me that I only need to come for a visit once a year.
I no longer require supplemental oxygen at night. In 2005, after starting the Marshall Protocol, a person from the oxygen company came to check my machine and found that it wasn’t working. I hadn’t even noticed! She administered a test which showed that my oxygen only fell below 90% for 8 seconds (a good score). Two days later she called to say she was coming to pick up the machine because I no longer needed it.
I take substantially fewer painkillers. I was on some sort of pain medication since August of 1972 up until August of 2006. Now I no longer take pain medication on a continual basis - only once in a while if my immunopathology (bacterial die-off reaction) becomes too strong.
Starting in 1968, I began to experience a bad ringing sensation in my ears. Since starting the Marshall Protocol the ringing has diminished by 95% or more. Also, in 1972 I was told that my left ear was unable to hear high-pitched sounds. I have not had a hearing test since starting the MP, but I’ve noticed that I now hear sounds in songs that I never heard before.
After starting the MP, my urologist informed me that my prostate had shrunk. I also used to have problems with hemorrhoids since the 1980s. Back then I found that every time I was admitted to the hospital I would develop hemorrhoids. Since starting the MP I have not had any hemorrhoid problems at all and I have not used any hemorrhoid medications since August 2005.
My iritis is completely gone. Furthermore, my eye doctor has detected no signs of inflammation in my eyes. People my age tend to develop granulomas, cataracts, or macular degeneration, but I have no signs of those illnesses at all.
Starting on Thanksgiving day 1964, I started to have bad migraine headaches. Since starting the MP I have experienced the vision part of an ocular migrane, but it is no longer accompanied by headache or finger numbness.
This year I also noticed that my fingernails no longer crack, peal, or split like they did before the MP. Before the MP I had to keep them very short, but now they grow long before I have to cut them. Starting in 1982 my forehead had a sandpaper feel to it. Now the bumps have gone away and the skin feels smooth and much improved.
In the late 1980s I lost most of my sense of smell but after being on the MP for a while I find that I can smell things that I have not been able to smell for years.
After I had my first bypasses done in March 2001, I noticed that I would become sick if I spent time in stores with bright lights such as Walmart, Krogers or Kmart. Since starting the Marshall Protocol the light no longer bothers me and I don’t get sick in those stores.
This past year was the first time in about five years that I have not had pneumonia or bronchitis. I feel stronger and much more resilient. My doctors have warned me that someone my age is at risk for a stroke, but I am not concerned about strokes because I have read many studies about how Benicar is often able to prevent strokes by reducing inflammation.
Both myself and Marshall Protocol moderator Belinda Fenter were members of the World Sarcoidosis Society. She told me about the Marshall Protocol and sent me a lot of papers on the subject. I had already read some articles about how vitamin D negatively affects people with sarcoidosis so Dr. Marshall’s research caught my interest right away. I started to watch the progress of others on the Marshall Protocol and was impressed. One day, Belinda even called me to help clarify some of my questions about the MP. We became friends and still are today. At that point I was confident that I wanted to start the MP. I went to my family doctor and said, “Call doctor Marshall!”
He’s very interested in my progress. He’s especially interested in Dr. Marshall’s work with vitamin D. Any time he’s had a question I’ve posted in on the Marshall Protocol study site and Dr. Marshall has been nice enough to answer it. My family doctor is impressed with Benicar. In August of 2006 he told me he had been in a meeting with the Benicar reps. They gave him information about Benicar and how it lowers inflammation & CRP among other things. He said, “FREDDIE, YOU TOLD ME ABOUT ALL THIS TWO YEARS AGO!” I replied that I had learned it all from Dr Marshall.
This is the only cure for chronic disease. I am confident that I will regain complete health thanks to the MP. Because so many people need to know about the treatment, I go to support group meetings and pass out DVDs with Dr. Marshall’s presentations. I go to health fairs and tell people about the MP. The MP is not easy but neither is your disease, and it will kill you if you don’t take action.
Unless somebody proves something different, I plan to preach about the MP.
28 Responses for "Interview with Freddie Ash - Sarcoidosis of the heart, coronary artery disease, atrial fibrillation"
This was a great article & am so glad you are improving. I was diagnosed with sarcoidosis in 2002 and was told in 2005 that it was in remission. The only thing they gave me was prednisone and am still on 5 mg per day. I need to find a good Doctor in the Dayton Ohio area or more info about MP. I’m not feeling well again am afraid its coming back but I want to find someone not just go to my internist, that does not know how to treat me. Anly suggestions would be appreciated….Thanks
Hi Marilyn,
This is Amy, I write the articles on this site. I certainly understand why you are not feeling well on prednisone. Let me explain.
Recent research has shown that inflammatory diseases such as sarcoidosis are bacterial illnesses. They are caused by L-form bacteria, or bacteria that have mutated from classical species, lost their cell walls, and are able to live inside the cells of the immune system where they cannot be killed. These bacteria have been observed numerous times inside the cells and tissues of people with sarcoidosis. Read more about L-form bacteria here:
http://bacteriality.com/2007/08/15/l-forms/
And an interview with a researcher who works with them here:
http://bacteriality.com/2007/09/09/markova-interview/
Unfortunately, most mainstream doctors have yet to understand that sarcoidosis is a bacterial illness, which is why they unfortunately prescribe drugs like prednisone. Prednisone works by slowing the activity of the immune system. This makes some patients feel better, because it is actually the DEATH of L-form bacteria that causes the greatest rise in symptoms for the patient. This is because when the bacteria die, the immune system secretes inflammatory molecules in response to their death. The body is also forced to deal with the toxins and debri released by the dying bacteria.
Since prednisone slows the immune system, it slows a patient’s rate of bacterial death. So less inflammatory molecules etc. are released and this makes them feel temporarily better. But in reality, because the immune system is not working up to par, their bacteria are able to spread much more easily. Down the road these people inevitably start to relapse or feel much worse.
Thus, I urge you to stop taking prednisone and to do the Marshall Protocol in it’s place. Unlike prednisone, the MP uses a medication that activates the immune system along with pulsed, low-dose antibiotics to target the L-form bacteria that are actually causing the illness. After a patient has killed all the L-form bacteria making them sick, they return to a state of complete health and no longer need to take any medications or supplements.
Read more about the Marshall Protocol here:
http://bacteriality.com/about-the-mp/
And here:
http://bacteriality.com/2007/10/11/antibiotics/
I also recommend that you read as much information as possible about the treatment at the Marshall Protocol study site. This forum is a good place to start:
http://www.marshallprotocol.com/forum2/
Also check out the information on the Autoimmunity Research Website (the non-profit organization that runs the MP):
http://autoimmunityresearch.org/
You can request a list of doctors who have patients on the MP in Ohio at the following link. Hopefully some of the doctors on the list may be near you, and could take you as a patient. Here’s the link:
http://www.marshallprotocol.com/forum11/11348.html
If you have more questions about the MP, how to find a doctor etc. a good place to ask them is at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). The patient advocates on the site, who volunteer for the non-profit organization that runs the MP, will answer your questions free of charge.
Best,
Amy
my friend has sarcoidosis of the heart and we live in northern Ontario…where can we go for help.where Drshave experience in heart sarcoidosis…? I look forward to your reply and any help you have thank you kathie….your struggle is difficult to imagine and Im so happy you are doing so well
Hi Kathie,
I’m glad you are looking for information that can help your friend recover from sarcoidosis of the heart!
The very recent work of biomedical researcher Trevor Marshall has shown that sarcoidosis of the heart is, like other forms of sarcoidosis, caused by bacteria. The bacteria that cause sarcoidosis are called L-form bacteria - they are bacteria that have mutated from regular bacterial forms, lost their cell walls, and are able to live inside the cells of the immune system where they cannot be killed. Read more about them here:
http://bacteriality.com/2007/08/15/l-forms/
And an interview with a scientist who works with them here:
http://bacteriality.com/2007/09/09/markova-interview/
L-form bacteria have long been cultured from the lungs of people with sarcoidosis, however conventional doctors are unable to detect their presence because they do not appear on the current lab tests that are given to patients.
It is very important that your friend with cardiac sarcoidosis (who almost certainly has L-form bacteria in his/her heart and lungs) kill these pathogens.
The Marshall Protocol, the treatment that is allowing Freddy to recover, will also allow your friend to recover. The treatment uses low, pulsed antibiotics and a medication that activates the immune system to gradually kill these bacteria over the course of several years. Several years may seem like a long time, but the patient recovers gradually over that time period and is slowly able to do more and more until they become healthy again.
These two articles describe the Marshall Protocol in greater detail:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
So at this point it’s very important that you and your friend learn as much as you can about the Marshall Protocol. Read the articles on this site and also on the Marshall Protocol study site. This forum is a good place to start:
http://www.marshallprotocol.com/forum2/
Finally, if you have more questions about the treatment the best place to ask them is at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). The patient advocates on that site, who volunteer for the non-profit organization that runs the MP, will answer your questions free of change.
Good luck and I hope your friend can start the treatment!
Amy
my mum has sarcoidosis but the doctors can’t cure her case she had a car crash in 2007 without that crash the doctors would have never found the disease i’m so greatful for learning about this disease further i just wish that it wouldn’t take the doctors this long to dianose her but i honestly wish that she would get better i love her so so much an i couldn’t see my life without her and i never want to think about her not being in my life! i hope you can help thank you so so so much yours sincery jessica.
Hi Jessica,
I’m so sorry to hear that your Mom is sick with sarcoidosis. You sound like a wonderful daughter and I’m sure your love is helping her better deal with the symptoms of her illness.
You won’t lose you Mom and she CAN get completely better if you make sure to tell her about the new treatment for sarcoidosis described on this website. It’s called the Marshall Protocol.
The Marshall Protocol is part of a phase II trial monitored by the FDA that uses pulsed, low-dose antibiotics and a medication that activates the immune system to wear away at the bacteria now understood to cause sarcoidosis. The treatment is being used by doctors around the world and over 200 medical professionals are members of the study site.
Your Mom can take part in the study and there is no charge to do so because it is funded by a non-profit organization called Autoimmunity Research Foundation. Here is their website:
http://autoimmunityresearch.org/
Here are two articles that describe the Marshall Protocol in greater detail. Make sure you Mom reads them.
“About the Marshall Protocol”
http://bacteriality.com/about-the-mp/
“Getting it right: how to correctly target L-form and biofilm bacteria”
http://bacteriality.com/2007/10/11/antibiotics/
This is an article about L-form bacteria, the type of bacteria that cause sarcoidosis and that you Mom can kill in order to get better. L-form bacteria are like regular bacteria except they have lost their cell walls and are able to hide inside cells of the immune system where they can’t be killed by other treatments.
“Understanding L-form bacteria”
http://bacteriality.com/2007/08/15/l-forms/
Here’s an interview with a doctor who uses the Marshall Protocol and has many patients who are recovering.
“Interview with Dr. Greg Blaney”
http://bacteriality.com/2007/10/31/blaney/
Finally, here are two other interviews with people who have recovered from sarcoidosis thanks to the Marshall Protocol.
http://bacteriality.com/2007/08/10/interview1/
http://bacteriality.com/2007/11/17/interview11/
As you can see, the Marshall Protocol offers great hope for your mother. Please show your Mom this message, make sure she looks into the treatment, make sure she reads the articles I have listed above.
If you or your Mom have more questions about the Marshall Protocol a good place to ask them is at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure my Th1). The patient advocates on that site who volunteer for Autoimmunity Research Foundation will answer your questions free of charge.
Hang in there…your Mom can recover!
Amy
I have Stage II multisystemic Sarcoid with cardiac involvement. I recently became even worse after 11 months on Plaquenil. I am very interested in MP and need to have more information on where to start.
Hi Lorelei,
I’m so sorry not to have addressed your questions more quickly. I’ve been away for the past week at a medical conference.
I’m very glad to hear that you are interested in the MP as sarcoidosis is know understood to be a bacterial illness and can be successfully treated by the Marshall Protocol. We have thousands of patients on the treatment now, and there are many sarcoidosis patients reporting improvement and recovery.
The best place to obtain information about how to start the MP is to post about your situation at the following website:
http://www.curemyth1.org - Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1.
The patient advocates on that site, who volunteer for the non-profit organization that runs the Marshall Protocol, will answer your questions free of charge.
Before you post on http://www.curemyth1.org make sure you have read as much information as possible on the MP. Read as many articles as you can on this site and also on the Marshall Protocol study site:
http://www.marshallprotocol.com
I’m so glad you have found the MP. With the help of the patient advocates you should hopefully be able to start it soon and begin the process of recovery.
Best,
Amy
I have sarcoidosis. I am from SouthAfrica were the doctors dont know anything about sarcoidosis. There is no support group and I am very lonely with no body to talk about it.
Please can you tell me about any suport group. Also about the Marshall Protocol is there any proof that it work and how can I get hold of this product.
Thanks
Sandra
Hi Sandra,
The MP is not a product. It a phase II open based internet trial monitored by the FDA. It is the first curative treatment for sarcoidosis. Patients on the treatment use a medication that activates the immune system along with very low, pulsed dose antibiotics to gradually wear away at and finally eliminate the bacteria causing the disease.
Patients on the treatment work with their own doctor who prescribes the necessary medications. However, they also post their symptoms in weekly progress reports on the Marshall Protocol study site where they get free 24/7 feedback from nurse moderators.
The treatment is run by Autoimmunity Research Foundation. Here’s the link to their website:
http://www.autoimmunityresearch.org
The Marshall Protocol study site address is:
http://www.marshallprotocol.com Be sure to read as much information about the treatment on the study site as well as on this site.
Finally, you can ask questions about the MP, how to get started, etc at the following website:
http://www.curemyth1.org Th1 refers to diseases caused by bacteria hence the name Cure My Th1. Your questions will be answered free of charge by patient advocates.
I have to warn you that admission to the study was just closed due to the fact that too many people want to participate in the study and Autoimmunity Research Foundation does not have enough staff to accommodate the current boom in patients. However, on curemyth1.org you can ask the patient advocates how to get on a waiting list that will allow you to start the treatment when a spot opens up which may not be that far away.
Even if you can start right away I recommend you go to curemyth1.org and sign up now. This is a curative treatment for sarcoidosis. There are hundreds of patients who are improving and recovering from the disease thanks to the MP. All other treatment options for sarcoidosis only use drugs to try to “cover up” the symptoms of sarcoidosis but do not treat the underlying bacterial cause.
There is no need for you to find a support group because you can use the Marshall Protocol in order to recover your health again.
Best,
Amy
My aunt was dx’d with this disease. I’m a nurse, but I just don’t know that much about it. The doctors in Lubbock, Tx where she lives tell her they don’t know that much about it. They have given her no hope. They even told her that there was no cure and she would probably eventually die from it. Any info you could send would be very appreciated. Thank you.
Hi Angie,
I’m very sorry to hear about your aunt. I’m not surprised that her doctors have told her that sarcoidosis of the heart is an incurable disease. They are not familiar with the very recent research on the disease that is discussed on this site.
The latest molecular modeling data, which is supported by a large amount of clinical evidence, has now made it clear that all forms of sarcoidosis are caused by chronic, persistent, biofilm-like and L-form bacteria. You can read more about L-form bacteria here:
http://bacteriality.com/2007/08/15/l-forms/
This site discusses the science related to this discovery and also discusses the Marshall Protocol - a treatment that is able to successfully kill the different bacterial species that cause all forms of sarcoidosis. That means that thanks to the Marshall Protocol your aunt CAN recover from her disease.
The Marshall Protocol is a phase 2 open internet-based study monitored by the FDA. Patients report symptoms on the Marshall Protocol study site where data on their progress is collected by nurse moderators. Nurse moderators also help guide the patient through the treatment. There is no charge to be part of the study or for help from moderators and patient advocates.
I highly recommend that you watch the following video which describes the science behind the Marshall Protocol and the basics of the treatment itself:
http://bacteriality.com/2008/05/07/mpintro/
The following two pieces also give overviews of the Marshall Protocol:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
Then, essentially I recommend that you or your aunt read as many articles, interviews etc. as possible on this site in order to become familiar with the MP and the accommodations your aunt will have to make if she starts the treatment.
You should also read as much information about the treatment on the study site itself. Here is the link to the study site:
http://www.marshallprotocol.com The “essential information” forum is a good place to start.
After reading as much as possible about the treatment, if you still have questions about the MP you can ask them at the following website where they will be answered free of charge by patient advocates:
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name Cure My Th1)
Also, there is currently a waiting list to start the Marshall Protocol. After reading about the treatment, if your aunt is serious about starting it, have her post on the above website and ask to fill out an application form. That will put her on the waiting list to start the MP and hopefully she will be accepted as soon as possible.
Best,
Amy
can anyone pass on more information on sarcoidosis
of the lungs, epecially the case when tuberculosis is diagnosed just before sarcoid?
waht is the conformatory test that shows sarcoid?
Hi Rahul,
If you google the word “sarcoidosis” you will probably come across medical websites that describe how it is diagnosed.
If you are suffering from sarcoidosis, you have a disease the Marshall Protocol can treat. We are part of a new movement which has identified that chronic inflammatory diseases are actually caused by an intrphagocytic, metagenomic microbiota of persistent L-form and biofilm bacteria. No doubt your father started to accumulate these pathogens when he had valley fever and they have since spread.
If you are interested in learning about the treatment in greater detail I recommend reading as much as possible about the treatment on this site and on the study site itself:
http://www.marshallprotocol.com
This video provides a good introduction:
http://bacteriality.com/2008/05/07/mpintro/
if you have questions about the Marshall Protocol you can ask them at the following website where they will be answered free of charge by patient advocates:
http://www.curemyth1.org
Best,
Amy
Hi Rahul,
Good to hear from you. This site doesn’t discuss how to diagnose sarcoidosis, rather it focuses on a new open-internet phase II study trial that is being used to treat sarcoidosis. The treatment is called the Marshall Protocol.
If you google the word “sarcoidosis” you will probably come across medical websites that describe how it is diagnosed.
If you are suffering from sarcoidosis, you have a disease the Marshall Protocol can treat. We are part of a new movement which has identified that chronic inflammatory diseases are actually caused by an intrphagocytic, metagenomic microbiota of persistent L-form and biofilm bacteria. These bacteria are killed by the MP medications, allowing a person with sarcoidosis to regain their health.
If you are interested in learning about the treatment in greater detail I recommend reading as much as possible about the treatment on this site and on the study site itself:
http://www.marshallprotocol.com
This video provides a good introduction:
http://bacteriality.com/2008/05/07/mpintro/
if you have questions about the Marshall Protocol you can ask them at the following website where they will be answered free of charge by patient advocates:
http://www.curemyth1.org
Best,
Amy
I was diagnosed with sarcoidosis just last Thursday and the pulmonologist has placed me on Prednisone 40 mg a day. I haven’t been able to work since I was placed in the hospital May 8th with chest pain and shortness of breath and the CT scan showed abnormalities in my lungs. The pulmonologist did a bronchial biopsy on the 23rd of May and I saw him the 29th with the results showing I had sarcoidosis. I still have chest pain so bad it hurts to lie down or sit up at times. Just some input from someone would be nice since newly diagnosed. Thanks.
Hi Monette,
I’m very glad you posted about your circumstances.
My advice to you - take action! A sarcoidosis diagnosis is difficult on the patient for many reasons, one of them being that we are in the midst of a paradigm shift in the way the disease is viewed and treated.
Your doctors have probably told you that the sarcoidosis has no known cause and can only be treated by steroids.
However the new research from the new phase II trial (monitored by the FDA) described on this site suggests otherwise. Increasing molecular and clinical evidence have made it clear that sarcoidosis is actually a bacterial illness, caused by a large number of chronic intraphagotcytic pathogens. These two articles describe how the bacteria that cause sarcoidosis are able to survive in a chronic form:
http://bacteriality.com/2007/08/15/l-forms/
http://bacteriality.com/2008/05/26/biofilm/
The phase II study described here - called the Marshall Protocol - is able to effectively kill these bacteria, meaning that if you start the treatment, you can reverse, rather than simply manage your disease. The following articles describe the Marshall Protocol in greater detail:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
I also recommend watching the following video which describes the treatment and the molecular science that forms its backbone of the Marshall Protocol (MP) in greater detail:
http://bacteriality.com/2008/05/07/mpintro/
If you decide you want to become part of the Marshall Protocol study, it is important that you post about your decision at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name Cure My Th1). The patient advocates on the site will give you an application to fill out.
The study is currently closed to new members because of overwhelming demand, but filling out a form will put you on a waiting list that will get you into the study eventually (sooner than later I would say…)
In the meantime, you will have to work with your own doctor while on the treatment in order to get the MP meds, so I suggest reading as much as possible about the MP on this site and on the study site itself - http://www.marshallprotocol.com. That way, you can best educate your doctor about the treatment.
I also recommend stopping your prednisone in the meantime, if you can. The medication is slowing your immune response, meaning that you feel less of the inflammation generated by the bacteria causing your disease. But in reality, because your immune system is no longer working up to par, the medication is allowing your bacteria to spread with greater ease.
By the way, the sooner patients start the MP after diagnosis, the more likely they are to progress through the treatment more quickly. So, in my opinion, you are actually in a good place.
Best,
Amy
In May of 2005 I was diagnosed with lung sarcidosis. I was told theydidn’t know much about the disease or what causes it. At that time we had move out of our house because of water damage to the flooring. And there was mold under our house. Could that have caused my sarciodosis? I am 49 years old now and I feel fine. I was put on prednisone for 5 1/2 months. I was told I was in remission. After reading this article, I am confused about being in remission. So I am not cured? Two months ago my heart started skipping beats and I went to my heart doctor and he ran test on me and I don’t have heart sarcidosis. But he did a chest x-ray and said my lungs look worst than the last x-ray in 2006. I’m scared my sarcoidosis has flared up. I go to my lung doctor next Friday and I’m going to mention MP to him. I read about doing without vitamin D and sunlight, what about tanning beds? Can you get in them? Also can I give this to my children and grandchildren? If so how? Thank You for any suggestions you have>
I was diagnosed with lung sarcidosis. They sent me to a lung doctor who wanted to do a byopsy, but when he told me he had to go in by my juggler vain and he could nick it and I’d have to have major surgery to save my life. I opted not to have it. They discovered it when I had a chest X-Ray in 2002. They said it was a small capsul like item and they weren’t sure what it was so they called it sarcoidosis and that that ment they didn’t know what it was so that’s why they called it sarcoidosis. I have alot of back pain between my shoulder blades and several of the same symptoms that Freddi has. I’m interested in the MP.
Hi Andrea,
I’m very, very glad to hear that you are interested in the MP because the treatment can give you your full life back.
Very recent research has made it clear that sarcoidosis is a bacterial illness. Your doctor is probably not aware of the related discoveries.
Several types of bacteria cause sarcoidosis including bacteria that have adapted to live inside the cells of the immune system (where they cannot be attacked) and bacteria that live in protected colonies called biofilms. Read more about there bacteria here:
http://bacteriality.com/2007/08/15/l-forms/
http://bacteriality.com/2008/05/26/biofilm/
This site describes a phase II open based FDA monitored study trial that uses carefully chosen pulsed, low=dose antibiotics and a medication that activates the immune system (Benicar) to allow patients to gradually kill these bacteria. When patients have killed all the bacteria causing their sarcoidosis they become completely well again and do not need to take any palliative drugs or supplements. You can find interviews with several recovered patients on the right side bar of this site.
The following article describes how the MP medications effectively target the chronic bacteria that cause sarcoidosis:
http://bacteriality.com/2007/10/11/antibiotics/
I also highly recommend that you watch the following video, which explains the Marshall Protocol and the science that forms its backbone in simple terms:
http://bacteriality.com/2008/05/07/mpintro/
Once you have read as much information about the Marshall Protocol on this site and the study site itself (www.marshallprotocol.com) if you have questions about the treatment ask them at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria). The patient advocates will answer you questions free of charge.
I highly encourage you to use the Marshall Protocol to treat your disease as it is the only treatment to date that targets the root cause of sarcoidosis. Other treatment use steroids in an effort to “cover up” the problem. The steroids slow the immune response to the bacteria that cause sarcoidosis so that less are killed and the immune system’s immflammatory response to their deaths drop. However such a method offers only short-term palliative relief. In reality, because the immune system is weakened, the bacteria that cause sarcoidosis are able to spread with greater ease and make the patient sicker in the long run.
So I encourage you to look into the MP in greater detail!
Best,
Amy
The word is prosTATE - not proSTRATE - the former is an organ - the latter means to fall down on ones face. Use the right word!!!!
Dear Jo,
Thank you for pointing my most egregious error. I would have ended that last sentence with an exclamation mark, but it looks as if you have single-handedly exceeded the quota for this post.
Amy
I’ve had chronic Erythema Nodosum since 1985, and it has manifested about 6 times since then. Do you know if there is any link to my condition and the L-form and biofilm bacteria? Also, do you know if Stomatitis is tied to the bacteria?
Hi Kitty,
I am not too familiar with Erythema Nodosum or Stomastitis, but if they are chronic conditions currently considered to be “of unknown cause” then it is quite likely they are caused by the chronic intraphagocytic metagenomic bacteria that we implicate in other inflammatory diseases.
The easiest way to confirm that your conditions will respond to the MP is simply to start Benicar and minocylcine as per the MP phase 1 guidelines and see if you experience an immunopathological reaction (a temporary rise in your disease symptoms). If you do, then you are killing bacteria and it is likely that chronic bacteria are causing your symptoms.
However, I also recommend asking the patient advocates (who answer questions free of charge) at the following website about your diseases and the MP:
http://www.curemyth1.org (Th1 refers to diseases caused by bactera).
Hopefully they will be able to provide you with more specific info about your conditions an the MP.
Best,
Amy
Hi Amy,
I just wanted to tell you that I think you’re doing an amazing job with this site; I’m sure it is helping to get the word out about the Marshall Protocol. I am an MP member in phase II, and I tell everyone I come in contact with about how much it has helped me (cardiac sarc). I was close to death last year, but now I staunchly believe that I will make a full recovery.
With so much resistance to change in the medical community, this site most certainly will help speed the inevitable-but-slow process of mainstream acceptance. So on behalf of all those who won’t suffer needlessly in the future due to your outstanding efforts…thank you!
I even liked your answer to “Jo” above. The only thing I would have wished to point out is that Jo also made an egregious error; it’s not “to fall on ones face”…but rather, “to fall on one’s face”. The apostrophe before the S indicates possession…lack of an apostrophe denotes plurality.
On the other hand, perhaps Jo has multiple faces, since to be presented with what will inevitably be considered the most important medical discovery in the history of mankind, and to only be interested in a minor spelling error (while even making one of your own) is obviously ridiculous.
Keep up the amazing work…I’m certain that you’re helping many many people!
Best Regards,
Scott
Dear Scott,
You answered that even more betterer than me.
Amy
Hi, I’m 17 and i have been diagnosed with sarcoidosis for a while. I too was thought to have arthiritis because of my joint pains, suffered a high fever but felt really cold, and have low iron. So far none of my doctors have connected these syptoms to sarc of the heart. But i have heard that sarcoidosis can effect the nerves.
For the past 5 years about, i have been battling a hearing loss that is now almost severe. The impairment is a result of nerve damage. At first, it started gradually in my left ear, but it’s beginning to affect my right ear. To me it’s unfortunate because I’m a vocal major at LaGuardia Highschool in NY and my performance vocally as well as academically is suffering. Imagine enduring ridicule, and the ignorance of your peers on top of not fully understanding what is wrong with you. My parent don’t have the money for all these fancy surgeries and doctor visits, so my problem remains unresolved.
For now, I’m doing the best I can with the hearing aids I have for both ears- while always being suggested to consider coclear implants. I try to hold decent conversations with the people around me but it’s kind of frustrating. I wear glassed because i can’t see in my left eyes as well as I can in my right…but that’s the least of my problems.
I will never be able to hear the birds chirping or the leaves scraping against the concrete in fall. I can’t even hear the wind blowing or my friends calling me in the distance. That’s the little things in life people don’t take time to appreciate. I’m working on trying to reverse my symptoms by educating myself and the people around me. It takes alot of heart, understanding and patience.
Thanks for writhing this article and giving me another great source. I really appreciate it!
Hi Brittany,
Good for your for taking charge of your health and making a concerted effort to educate yourself about your diseases!
I’m so sorry to hear about your symptoms! I too know what it’s like to be completely misunderstood by friends while not even understanding why you are sick. I am much, much better today, but I developed CFS in college. Since I seemed to look healthy nobody believed me when I tried to tell them I felt absolutely horrible. My symptoms also escalated around age 17.
I tried a ton of treatments, all of which failed. Then I found the Marshall Protocol - the treatment that Freddy used to recover from his sarcoidosis. It changed my life, and now I understand that CFS and other inflammatory diseases such as sarcoidosis are actually caused by stealthy difficult to detect forms of chronic bacteria. While the average doctor isn’t yet aware of how to detect or kill these bacteria, the Marshall Protocol study trial is successfully using carefully chosen low-dose antibiotics and a medication that activates the immune system (Benicar) to effectively render them dead.
You’d also be amazed at how many diseases these bacteria cause. Thanks to very recent advances in bacterial identification technology, scientists are just beginning to realize how many previously unknown species of bacteria are capable of inhabiting the human body and causing chronic symptoms. Your symptoms may seem discrete but they are actually all connected - you are suffering from a widespread infection with many different forms of chronic pathogens that together cause your sarcoidosis, hearing loss, and other symptoms.
Furthermore, Dr. Marshall’s molecular modeling research has made it clear that these pathogens are able to dysregulate the immune response. When they do this, one of the receptors that no longer functions properly is the gluccocorticoid receptor. Interestingly, studies in mice have shown that when the activity of the gluccocorticoid receptor is inhibited, they lose their hearing. So there is a clear connection between gluccocortioid function and hearing loss. This highly suggests that there is a clear connection between the bacteria you surely harbor, their ability to dysregulate your immune response, and subsequently your hearing loss.
The great news is that the MP allows you to kill these bacteria, and when your bacterial load is killed, your immune system and gluccocorticoid receptor will function properly again - so that your hearing should be restored. Many of our study subjects reported hearing loss before starting the Marshall Protocol and are now reporting better hearing, sometimes excellent hearing that they never even knew was possible. So there is great hope that you can truly hear those chirping birds again and all the sounds that you so sorely miss.
Since the treatment has been shown to effectively treat sarcoidosis as well I truly hope that you look into it in greater detail.
This Marshall Protocol (MP) is a phase II study run by a California non-profit agency. The official phase II study is closed due to high demand but the guidelines for the treatment are online and available free of charge. As long as you can find a doctor who is willing to prescribe you the medications necessary to do the MP, you can still do the treatment alone with your doctor. Be sure to read the articles about the MP on this site in further detail so you understand the treatment as well as possible. I highly recommend watching this video about the MP and the science that forms its backbone:
http://bacteriality.com/2008/05/07/mpintro/
If you need help finding an MP doctor in your area I suggest posting about your situation on the following website:
http://www.curemyth1.org (Th1 refers to disease caused by bacteria, hence the name)
The patient advocates on the site, who answer questions free of charge, should be able to give you a list of doctors in your state who already have patients on the MP.
If none of these doctors lives near you, there are materials on the MP study site to show to doctors in order to educate them about the MP. So you could bring such materials to your current doctor and see if he/she is willing to let you do the treatment. Info for doctors, the MP guidelines, FAQs about the treatment etc are all on the study site -www.marshallprotocol.com
I remember being so sick with CFS that I thought I would never get out of bed again. Now I’m applying to grad school and feel like a different person. The treatment gave me (and hundreds of others) our lives back and I truly believe it can reverse your sarcoidosis and give you back you hearing.
Best,
Amy
PS In terms of finances and the MP. Ironically, it’s actually the cheapest treatment of all those I tried for my CFS. Since the treatment addresses the root cause of chronic disease, patients don’t take any supplements as the point is not to “boost” the body, but to bring it back to a state where it can function on its own.
So all you have to pay for is a few antibiotics and Benicar. If you don’t have insurance, generic Benicar that works just as well as regular Benicar can be purchased online for about $70 a month from a Canadian online pharmacy. The antibiotics are pretty cheap and since you don’t even take whole pills (often you will only take 1/2 or 1/4 of a pill) a few pills go a long way. Other than that, the only other expense is doctor visits.
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