It is most important for the sake of your family that you attend to your own care first (remember the oxygen mask instructions on a plane) because Sarcoidosis can really sneak up on you. I went from being unwell, but mobile, to being seriously ill and disabled in less than five days. It is very hard to regain function once you have lost it.

If you are considering the MP, I would suggest doing a trial phase to see what degree of light sensitivity you have and getting used to thinking about how you could minimize your light exposure. Also, most MP patients will tell you that they experience significant relief from Olmesartan alone so perhaps you could start on this aspect of Phase I under guidance from the MP moderators while getting your bearings. The path to recovery can be long so you would need to devise a contingency plan for coping with childcare and maintaining your business in case you went through some difficult immunopathology. My advice would be to concentrate on the core issues that are important to you and let the rest take care of themselves for a while (they do actually).

Children are surprisingly resilient and resourceful if they know that they are loved. Rather than trying to explain what is going on, something like a “morning hug” time when you all sit together may help both you and your children face each day with calm–even if the rest feels like chaos. It gets better – and better – believe me!
Take care
Jane

This is Amy. I’m so sorry to hear about the progression of your illness, but I assure you that the Marshall Protocol can turn your life around.
Take a look at this recent interview. The entire family is on the Marshall Protocol.

http://bacteriality.com/2008/03/15/interview18/

I know of many other families who are also all on the Marshall Protocol. Here is also a link to another mother who managed to “make it work” while on the MP:

http://bacteriality.com/2007/11/19/interview12/

It’s definitely difficult to care for young children and work while on the MP, but it’s also going to be very difficult to do those same things while your illness continues to progress and become more severe.

Here’s a thread on the Marshall Protocol study site that discusses working while on the MP.

http://www.marshallprotocol.com/forum32/1138.html

In order to get more feedback from others about whether they were able to care for young children and do some outdoor work while on the MP, I recommend you post about your situation at the following website:

http://www.curemyth1.org (Th1 refers to diseases caused by L-form bacteria, hence the name Cure My Th1). The site is a place where people who are in interested in the Marshall Protocol can ask questions and get feedback. The site is moderated by patient advocates, all of whom are also on the MP and doing very well. Other members engage in conversations on the site and the patient advocates can probably put you in touch with some other people in your situation.

When it comes down to it, I believe that good health is the most important thing in life. You may have to sacrifice working in the sun for a while, but to recover is worth it. Then, as a healthy individual you will be able to tolerate sun again and start your job again with more conviction and energy then ever.

Best,

Amy

I am very glad you are not willing to let your illness to set you back…that’s the right attitude!

I feel I should let you know that many people on the Marshall Protocol have used holistic medication without any benefit including myself. I did many holistic treatments, all of which failed completely.

The reality is that sarcoidosis is caused by bacteria - specifically, L-form bacteria, or bacteria that have mutated from their classical form, lost their cell walls, and are able to live undetected inside the cells of the immune system. Read more about these bacteria here:

http://bacteriality.com/2007/08/15/l-forms/

The bottom line is that holistic medicines simply cannot kill L-form bacteria. I know your holistic doctor is well-intentioned, but you will not recover if you don’t kill these bacteria. To date the Marshall Protocol is the only treatment that can target them effectively.

Read more about the treatment in these articles:

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

I urge you to really learn about the Marshall Protocol because the sooner you start the treatment the lower your bacterial load will be and the easier it it will be to make quick progress. If you start now you could target the bacteria as effectively as possible.

So please read over the information on this site and on the Marshall Protocol study site (www.marshallprotocol.com) before deciding to stick with only holistic medicines to treat your disease.

Best,

Amy

Thank you for you’re courage and explorative nature, you are a gift to many people in the dark. I have recently discovered that I have the illness, I am not willing to allow it to set me back.

I am a writer and believe many ilnesses are a spiritual message. At the moment I am working with a brilliant holistic Dr, I shall see how I progress and ponder allternatives.

Kindest Wishes

Nerina Arnold

1,25-D rises during pregnancy because a part of the endometrium called the decidua (these are all tissue layers that surround the uterus) upregulates its production, especially during the first trimester of pregnancy.

Researchers at the Fondazione Policlinico-Mangiagalli-Regina Elena Hospital, University of Milano in Italy just released a paper on how the endometrium/decidua upregulate 1,25-D during pregnancy. The team used a molecular technique called western blot analysis to track levels of an enzyme called 1-Ohase - the enzyme that causes the production of 1,25-D. They found the production of this enzyme, which is correlated with levels of 125-D, increases by 40% during the first months of pregnancy.

The reason why pregnancy can actually cause a woman’s Th1 condition to become more severe is that L-form and biofilm bacteria are able to create ligands that block the VDR. When this happens, they block the ability of the VDR to create the enzyme CYP24A1 - an enzyme that inactivates 1,25-D. When this ezyme stops being produced, 1,25-D levels start to rise with no system to keep them in check.

Combined with the 1,25-D being upregulated because of the pregnancy and the extra 1,25-D created by VDR blockage, the level of 1,25-D in the body starts to rise to a level that is too high. At this point the excess 1,25-D is able to bind many of the body’s important nuclear receptors such as the alpha/beta thyroid receptors, the progesterone receptor, and the corticoid receptor. It displaces the hormones that are supposed to activate these receptors from them, causing dysregulation the the pathways they control, many of which are related to immune function.

In any case, this may seem complicated, but it is also the topic of the next article I plan to write for this site. So if you stick around for about a week there will be an article up explaining this issue in greater detail.

Best,

Amy

Thanks for the wonderful story, Jane. So happy for your many successes.