Comments on: Notes from the 2008 Days of Molecular Medicine Conference plus video footage http://bacteriality.com/2008/04/25/dmm/ Tue, 06 Jan 2009 08:03:11 +0000 http://wordpress.org/?v=2.7 hourly 1 By: Amy Proal http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-9252 Amy Proal Tue, 08 Jul 2008 14:17:35 +0000 http://bacteriality.com/?p=185#comment-9252 Hi Shari, That's great news! I'm so glad your doctor is going to put you on the MP. I assume he/she is a member of the "Private Section for Medical Professionals" on the MP site? If not, make sure he joins so that he can get advice from other MP doctors, researchers, and Dr. Marshall if necessary. Here's the link to the forum: http://www.marshallprotocol.com/forum24/ Thanks for sharing your experience with coffee. As you describe, coffee is definitely high in chlorogenic acid which unfortunately dysregulates the VDR. So when you drink a lot of coffee you probably don't kill as much bacteria as you would otherwise. Testimonials like yours make me wonder how many people are addicted to coffee because of the caffeine and how many people actually need several cups of coffee each day because of its effects on the innate immune system. It's likely a combination of the two factors for many people, but I personally don't think the high prevalence of coffee drinkers and the rising epidemic of chronic disease is just a coincidence. I look forward to hearing more about your progress. Best, Amy Hi Shari,

That’s great news! I’m so glad your doctor is going to put you on the MP. I assume he/she is a member of the “Private Section for Medical Professionals” on the MP site? If not, make sure he joins so that he can get advice from other MP doctors, researchers, and Dr. Marshall if necessary. Here’s the link to the forum:

http://www.marshallprotocol.com/forum24/

Thanks for sharing your experience with coffee. As you describe, coffee is definitely high in chlorogenic acid which unfortunately dysregulates the VDR. So when you drink a lot of coffee you probably don’t kill as much bacteria as you would otherwise. Testimonials like yours make me wonder how many people are addicted to coffee because of the caffeine and how many people actually need several cups of coffee each day because of its effects on the innate immune system. It’s likely a combination of the two factors for many people, but I personally don’t think the high prevalence of coffee drinkers and the rising epidemic of chronic disease is just a coincidence.

I look forward to hearing more about your progress.

Best,

Amy

]]> By: Shari Gold http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-9206 Shari Gold Tue, 08 Jul 2008 02:04:19 +0000 http://bacteriality.com/?p=185#comment-9206 Hi Amy, Thanks so much for your response. I have been off the computer for the last week and was glad to read your post. Some good news ... my doctor is going to prescribe the MP for me. I just found out today. My 25 D test came back and it was low ... still awaiting the 1,25 results ... but based on my past and current history he is open to my trying the MP. I will definitely follow up and find out what the 1, 25 results were which will be next week -- just curious and always nice to be validated. Also, wanted to share with you, a recent immunopathic reaction that happened this week. I am a coffee drinker and on average probably drank about 2 to 3 cups per day. I also consume green tea and black tea as well. It is what got me through my days if you know what I mean. Well.... this past week I decided to go cold turkey off the caffeine, coffee, tea... etc. I felt fine on day one and not sluggish at all on day two... in fact on day two, I had a bout of insomnia, but, by day three, my neuropathies in the back of my hips into my legs flared up so badly, I could barely bend over and was miserable. I know coffee is contraindicated on the MP and read up again on the immunmodulatory effects of cholergenic acid. But ... because I was so miserable, went back to the coffee on day four, but decaf this time. And like magic the pain went away by the next day. During the flare-up, I tried taking some Flexeril and Adavan which I have on hand for my fibro emergencies. It didn't even touch it. The coffee did the trick ... further confirming the immunopathology of the event. Of course, when I get my Benicar ... the coffee is out again ... but I have to get by right now the best I can and still take care of my family. I am already registered with the curemyth1 site, but I will officially apply to get on the waiting list to take part in the study asap. I hope the wait won't be too long :) Thanks again and I will keep you posted. Best, Shari Gold Hi Amy,
Thanks so much for your response. I have been off the computer for the last week and was glad to read your post.

Some good news … my doctor is going to prescribe the MP for me. I just found out today. My 25 D test came back and it was low … still awaiting the 1,25 results … but based on my past and current history he is open to my trying the MP. I will definitely follow up and find out what the 1, 25 results were which will be next week — just curious and always nice to be validated.

Also, wanted to share with you, a recent immunopathic reaction that happened this week. I am a coffee drinker and on average probably drank about 2 to 3 cups per day. I also consume green tea and black tea as well. It is what got me through my days if you know what I mean. Well…. this past week I decided to go cold turkey off the caffeine, coffee, tea… etc. I felt fine on day one and not sluggish at all on day two… in fact on day two, I had a bout of insomnia, but, by day three, my neuropathies in the back of my hips into my legs flared up so badly, I could barely bend over and was miserable. I know coffee is contraindicated on the MP and read up again on the immunmodulatory effects of cholergenic acid. But … because I was so miserable, went back to the coffee on day four, but decaf this time. And like magic the pain went away by the next day. During the flare-up, I tried taking some Flexeril and Adavan which I have on hand for my fibro emergencies. It didn’t even touch it. The coffee did the trick … further confirming the immunopathology of the event.
Of course, when I get my Benicar … the coffee is out again … but I have to get by right now the best I can and still take care of my family.
I am already registered with the curemyth1 site, but I will officially apply to get on the waiting list to take part in the study asap. I hope the wait won’t be too long :)

Thanks again and I will keep you posted.

Best,
Shari Gold

]]> By: Amy Proal http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-8213 Amy Proal Sun, 29 Jun 2008 21:18:43 +0000 http://bacteriality.com/?p=185#comment-8213 Hi Shari, I'm so happy that the the articles on this site have allowed you to better understand the MP pathogenesis and have even increased your drive to take more classes about microbiology. I'm also very glad to hear that you have an open-minded doctor who is already familiar with the MP. I hope you can start the treatment as soon as possible. I recommend that you try to become an official member of the phase II study so that you can also get advice on how to manage your antibiotics from the experienced nurse moderators on the study site. There is currently a waiting list to become a member of the study, but you can get on the list by writing about your desire to join the study at the following website: http://www.curemyth1.org The patient advocates on the site will give you an application form to fill out. Of course if you don't get into the study right away you can begin the MP alone with your doctor, but I always think joining the study when a slot opens up on the waiting list is a good idea. Yes, the model of pregnancy I discussed at Karolinska definitely seems to correlate with your own experiences. Also the fact that you daughter acquired a Th1 disease speaks to the fact that that these chronic pathogens are passed down the maternal line - another trend we see in nearly all our patients. I hope that when you daughter gets older she too can do the MP. I think it's great that you are planning to further your knowledge of microbiology. Having a solid background in biology will allow you to understand the MP science at a much deeper level. Hopefully you will be able to use your knowledge to explain the MP science to other people with chronic disease that can also benefit from the treatment. Hope that you can start the treatment soon! Amy Hi Shari,

I’m so happy that the the articles on this site have allowed you to better understand the MP pathogenesis and have even increased your drive to take more classes about microbiology.

I’m also very glad to hear that you have an open-minded doctor who is already familiar with the MP. I hope you can start the treatment as soon as possible. I recommend that you try to become an official member of the phase II study so that you can also get advice on how to manage your antibiotics from the experienced nurse moderators on the study site. There is currently a waiting list to become a member of the study, but you can get on the list by writing about your desire to join the study at the following website:

http://www.curemyth1.org

The patient advocates on the site will give you an application form to fill out. Of course if you don’t get into the study right away you can begin the MP alone with your doctor, but I always think joining the study when a slot opens up on the waiting list is a good idea.

Yes, the model of pregnancy I discussed at Karolinska definitely seems to correlate with your own experiences. Also the fact that you daughter acquired a Th1 disease speaks to the fact that that these chronic pathogens are passed down the maternal line - another trend we see in nearly all our patients. I hope that when you daughter gets older she too can do the MP.

I think it’s great that you are planning to further your knowledge of microbiology. Having a solid background in biology will allow you to understand the MP science at a much deeper level. Hopefully you will be able to use your knowledge to explain the MP science to other people with chronic disease that can also benefit from the treatment.

Hope that you can start the treatment soon!

Amy

]]> By: Amy Proal http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-8208 Amy Proal Sun, 29 Jun 2008 19:22:24 +0000 http://bacteriality.com/?p=185#comment-8208 Hi Shari, I'm so happy that the the articles on this site have allowed you to better understand the MP pathogenesis and have even increased your drive to take more classes about microbiology. I'm also very glad to hear that you have an open-minded doctor who is already familiar with the MP. I hope you can start the treatment as soon as possible. I recommend that you try to become an official member of the phase II study so that you can also get advice on how to manage your antibiotics from the experienced nurse moderators on the study site. There is currently a waiting list to become a member of the study, but you can get on the list by writing about your desire to join the study at the following website: www.curemyth1.org The patient advocates on the site will give you an application form to fill out. Of course if you don't get into the study right away you can begin the MP alone with you doctor, but I always think joining the study when a slot opens up on the waiting list is a good idea. Yes, the model of pregnancy I discussed at Karolinska definitely seems to correlate with your own experiences. Also the fact that you daughter acquired a Th1 disease speaks to the fact that that these chronic pathogens are passed down the maternal line - another trend we see in nearly all our patients. I hope that when you daughter gets older she too can do the MP. I think it's great that you are planning to further your knowledge of microbiology. Having a solid background in biology will allow you to understand the MP science at a much deeper level. Hopefully you will be able to use your knowledge to explain the MP science to other people with chronic disease that can also benefit from the treatment. Hope that you can start the treatment soon! Amy Hi Shari,

I’m so happy that the the articles on this site have allowed you to better understand the MP pathogenesis and have even increased your drive to take more classes about microbiology.

I’m also very glad to hear that you have an open-minded doctor who is already familiar with the MP. I hope you can start the treatment as soon as possible. I recommend that you try to become an official member of the phase II study so that you can also get advice on how to manage your antibiotics from the experienced nurse moderators on the study site. There is currently a waiting list to become a member of the study, but you can get on the list by writing about your desire to join the study at the following website:

http://www.curemyth1.org

The patient advocates on the site will give you an application form to fill out. Of course if you don’t get into the study right away you can begin the MP alone with you doctor, but I always think joining the study when a slot opens up on the waiting list is a good idea.

Yes, the model of pregnancy I discussed at Karolinska definitely seems to correlate with your own experiences. Also the fact that you daughter acquired a Th1 disease speaks to the fact that that these chronic pathogens are passed down the maternal line - another trend we see in nearly all our patients. I hope that when you daughter gets older she too can do the MP.

I think it’s great that you are planning to further your knowledge of microbiology. Having a solid background in biology will allow you to understand the MP science at a much deeper level. Hopefully you will be able to use your knowledge to explain the MP science to other people with chronic disease that can also benefit from the treatment.

Hope that you can start the treatment soon!

Amy

]]> By: Shari Gold http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-8124 Shari Gold Sat, 28 Jun 2008 04:34:22 +0000 http://bacteriality.com/?p=185#comment-8124 Wow!  That is all I can say right now!  I am getting ready to have my bloodwork done on Monday with my doctor.  He has treated a few patients w/ the MP and had success with both of them, albeit.. I believe only the first phases.  He is an open minded MD and very collaborative in my treatment.  I had Lyme Disease, positive on both Elisa and Western Blot when I was 19 .. so many years ago (in an endemic area at the time .. I know it is much more widespread...) Anyway, I am 37 now and have 2 children (ages 8 and 5).  At the time of my diagnosis .. I never had a rash, but I had been bitten by a tick and had heard about lyme (believe it r not on 60 minutes ... when the first few cases were being diagnosed and brought to the public's attention.) At the time, I had headaches, fatigue and weakness in my shoulders.  I am so glad I insisited on getting tested b/c now 19 years later, I know for certain that all of this is related to my late stage/ chronic lyme.  BTW, I also have had a positive Bowen test 1:64 and a picture of an L form bacteria emerging from my WBC and 3 bands positive on my Igenx test -- but my doc won't concurr that it is Borrelia -- which really at this point is "beside the point".  My WOW moment tonight was reading about how during pregancy, your symptoms can become subdued and quiet ... that was my exact situation!  Prior to becoming pregnant w/ my 1st child, I was on a downward spiral.  At 26/ 27 my CFS flared and I lived a life of constant fatigue, muscle faciulaitons, weakness and headaches, I was a wreck.  I was actually scheduled for a muscle biopsy b/c of the weakness and fasicullations, but opted to wait until I delivered.     And then.. all of a sudden, it all got "better".  But, after delievery about a month later .. the symptoms all came racing back.  Amazing to read this -- it just stopped me in my tracks.  I have been reading all over this site and the MP site and ... wow ... to be validated like that it really felt like a moment!I am currently going back to school right now for all my pre-req science classes, which I just completed in order to beging a nursing degree.  Although, I must say... I was taking Microbioogy this last semester at the same time I was getting up to speed on the MP and I have to say I really feel so drawn to biology (I have a previous degree in Journalism!)  I also introduced my microbiolgy professor to the MP and she was "very" interested to say the least.  She became "really" interested when I brought up Vitamin D in our discussion b/c it had matched some other research she had been reading about.  Another motivation for going into nursing/ a science field aside from looking for "answers" to my own condition ... my oldest daughter, who is 8 now, was diagnosed w/ Type 1 diabetes when she was 3.  I have always, always felt there was an "infectious" component.  What is really interesting and why this article is so important and timely is especially related to Type 1's who do receive "islet beta cells"  and intilally are insulin free/ but within about 5 years are dependent again.   I remember about a year ago receiving a newsletter from UCLA about different studies/ clinical trials that they had tested long term Type 1's who had the disease for over 30 years .. and they still had beta cell activity after all of those years.  I was amazed to read this.  I lost the article and tried, with no success to locate it again.  Through the MP site, I was able to locate it again, but this info was definitely difficult to find.  If the Th 1 pathogens are implicated in Type 1 then it makes sense that there should be some beta cell activity -- I have always felt this way ... this just gives me so much hope!Keep this info coming!  I am truly amazed by the science behind this and have so much hope because of all of your efforts!Best,Shari Gold Wow!  That is all I can say right now!  I am getting ready to have my bloodwork done on Monday with my doctor.  He has treated a few patients w/ the MP and had success with both of them, albeit.. I believe only the first phases.  He is an open minded MD and very collaborative in my treatment.  I had Lyme Disease, positive on both Elisa and Western Blot when I was 19 .. so many years ago (in an endemic area at the time .. I know it is much more widespread…) Anyway, I am 37 now and have 2 children (ages 8 and 5).  At the time of my diagnosis .. I never had a rash, but I had been bitten by a tick and had heard about lyme (believe it r not on 60 minutes … when the first few cases were being diagnosed and brought to the public’s attention.) At the time, I had headaches, fatigue and weakness in my shoulders.  I am so glad I insisited on getting tested b/c now 19 years later, I know for certain that all of this is related to my late stage/ chronic lyme.  BTW, I also have had a positive Bowen test 1:64 and a picture of an L form bacteria emerging from my WBC and 3 bands positive on my Igenx test — but my doc won’t concurr that it is Borrelia — which really at this point is “beside the point”.  My WOW moment tonight was reading about how during pregancy, your symptoms can become subdued and quiet … that was my exact situation!  Prior to becoming pregnant w/ my 1st child, I was on a downward spiral.  At 26/ 27 my CFS flared and I lived a life of constant fatigue, muscle faciulaitons, weakness and headaches, I was a wreck.  I was actually scheduled for a muscle biopsy b/c of the weakness and fasicullations, but opted to wait until I delivered.     And then.. all of a sudden, it all got “better”.  But, after delievery about a month later .. the symptoms all came racing back.  Amazing to read this — it just stopped me in my tracks.  I have been reading all over this site and the MP site and … wow … to be validated like that it really felt like a moment!I am currently going back to school right now for all my pre-req science classes, which I just completed in order to beging a nursing degree.  Although, I must say… I was taking Microbioogy this last semester at the same time I was getting up to speed on the MP and I have to say I really feel so drawn to biology (I have a previous degree in Journalism!)  I also introduced my microbiolgy professor to the MP and she was “very” interested to say the least.  She became “really” interested when I brought up Vitamin D in our discussion b/c it had matched some other research she had been reading about.  Another motivation for going into nursing/ a science field aside from looking for “answers” to my own condition … my oldest daughter, who is 8 now, was diagnosed w/ Type 1 diabetes when she was 3.  I have always, always felt there was an “infectious” component.  What is really interesting and why this article is so important and timely is especially related to Type 1’s who do receive “islet beta cells”  and intilally are insulin free/ but within about 5 years are dependent again.   I remember about a year ago receiving a newsletter from UCLA about different studies/ clinical trials that they had tested long term Type 1’s who had the disease for over 30 years .. and they still had beta cell activity after all of those years.  I was amazed to read this.  I lost the article and tried, with no success to locate it again.  Through the MP site, I was able to locate it again, but this info was definitely difficult to find.  If the Th 1 pathogens are implicated in Type 1 then it makes sense that there should be some beta cell activity — I have always felt this way … this just gives me so much hope!Keep this info coming!  I am truly amazed by the science behind this and have so much hope because of all of your efforts!Best,Shari Gold

]]> By: Amy Proal http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-7535 Amy Proal Tue, 10 Jun 2008 13:32:57 +0000 http://bacteriality.com/?p=185#comment-7535 Thanks Lynn! Personally, I think the "outtakes" video makes me look particularly smart (just kidding!). Amy Thanks Lynn!

Personally, I think the “outtakes” video makes me look particularly smart (just kidding!).

Amy

]]> By: Lynn Porteus http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-7514 Lynn Porteus Tue, 10 Jun 2008 06:57:07 +0000 http://bacteriality.com/?p=185#comment-7514 Great presentation. Congratulations to all and thank you for the dedication you all show when educating the public and professionals about Th1 disease. Great presentation. Congratulations to all and thank you for the dedication you all show when educating the public and professionals about Th1 disease.

]]> By: Alfhild Renbro http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-6136 Alfhild Renbro Tue, 13 May 2008 12:26:29 +0000 http://bacteriality.com/?p=185#comment-6136 Hi again Amy Tank You Again for Your great speak in Stockholm.! I am reading the whritten speach in portions so I kan understand better. ! To qustion no. one.! I have a friend of my who was diagnosed with ALS two years ago. Have the MP some experince with treating this disease. As it seems as many chronic diseases starts with an infektion I think may be this sickness is among these and if it is possible to treat. ? The second question is about that You mentioned about the medicals and the possibility to bought them in India. Can I get more information about where ? Please Amy can you help to guide me I would be glad! Hi again Amy
Tank You Again for Your great speak in Stockholm.!
I am reading the whritten speach in portions so I kan understand better. !
To qustion no. one.!
I have a friend of my who was diagnosed with ALS two years ago. Have the MP some experince with treating this disease. As it seems as many chronic diseases starts with an infektion I think may be this
sickness is among these and if it is possible to treat. ?
The second question is about that You mentioned about the medicals and the possibility to bought them in India. Can I get more information about where ?
Please Amy can you help to guide me I would be glad!

]]> By: Petr Dymacek http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-6131 Petr Dymacek Tue, 13 May 2008 07:17:26 +0000 http://bacteriality.com/?p=185#comment-6131 Hi Amy, OK on MP site it works, all three. But here on your pages in the links: "the posters created by Dr. Marshall, Meg Mangin, and myself." I am getting this link if I click on Dr. Marshall: http://autoimmunityresearch.org/dmm2008/DMM2008_Amy_Poster.pdf Take care! Petr Hi Amy,
OK on MP site it works, all three. But here on your pages in the links:
“the posters created by Dr. Marshall, Meg Mangin, and myself.”
I am getting this link if I click on Dr. Marshall:
http://autoimmunityresearch.org/dmm2008/DMM2008_Amy_Poster.pdf
Take care!
Petr

]]> By: Amy Proal http://bacteriality.com/2008/04/25/dmm/comment-page-1/#comment-6107 Amy Proal Mon, 12 May 2008 17:47:31 +0000 http://bacteriality.com/?p=185#comment-6107 Thanks Peter! I'm already looking for Portugal. Did you mean you are trying to download our Karolinaka posters? Did you try to download Dr. Marshall's poster from the links posted at this thread on the MP site? i just checked, and on my computer the link to Dr. Marshall's poster does go to his presentation. If you still can't find his poster or and looking for Portugal abstracts post a link in the thread asking where it they can be found. Here's the thread: http://www.marshallprotocol.com/forum39/11385.html Best, Amy Thanks Peter!

I’m already looking for Portugal. Did you mean you are trying to download our Karolinaka posters?

Did you try to download Dr. Marshall’s poster from the links posted at this thread on the MP site? i just checked, and on my computer the link to Dr. Marshall’s poster does go to his presentation.

If you still can’t find his poster or and looking for Portugal abstracts post a link in the thread asking where it they can be found.

Here’s the thread:

http://www.marshallprotocol.com/forum39/11385.html

Best,

Amy

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