In the following video, I explain the science that forms the backbone of the Marshall Protocol in simple terms. I discuss the bacteria implicated in causing chronic inflammatory disease, and explain how these pathogens are hypothesized to affect the immune system. I also describe the basics of the treatment itself, providing information that any patient who plans to start the Marshall Protocol, or any doctor planning to put a patient on the MP, should understand. My narration is accompanied by slides with pictures and images of the pathogens and molecules I discuss. The video is 85 minutes.
Please note– clicking on the “x” shape in the bottom right corner of the video, just to the left of the word “vimeo” will give you a full-screen version of the presentation. (Nice, right?)
Want to give some or all of this presentation to researchers, doctors, or patients? Be my guest! I should say this presentation was made in a program called Keynote. The Keynote presentation is available upon request. I’ve made the PDF version of this presentation as well.
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About Amy Proal
Amy Proal graduated from Georgetown University in 2005 with a degree in biology. While at Georgetown, she wrote her senior thesis on Chronic Fatigue Syndrome and the Marshall Protocol.
She has written for several publications and organizations including FibromyalgiaAWARE magazine, Immunesupport.com, Volta Voices magazine, and the National Policy Research Council.
Amy had Chronic Fatigue Syndrome. She looks forward to helping people better understand the treatment that restored her health.
If you have questions about the MP, please visit CureMyTh1.org where volunteer patient advocates will answer your questions. Another good resources is the MP Knowledge Base, a resource which is scheduled to be completed within the next year.
75 Responses for "An Overview of the Marshall Protocol"
Amy, I really liked the video presentation! I truly hope I can start the MP again soon, and HOPEFULLY have as much success as you and the others. Some days I just dont know if I can deal with ONE more day of feeling this way ya know. I am so happy for your success!
Hi Shandy,
Good to hear from you. I also hope that you can start the MP again. But don’t forget that at the start, you are going to have to feel worse before you get better. There’s no way around it because your body will be killing so much bacteria. But eventually die-off slows and things get easier.
You can see in the video how immunopathology is induced and exactly how the antibiotics work. There is no doubt that once on the MP, the rise in symptoms you will experience are a result of bacterial die-off and you must keep reminding yourself of that fact.
Best,
Amy
good good good…
keep it going amy!
Good work
/Per
Oh MY GOD!! Amy…..I think this was brilliant. I am so psyched by what you have written here….to me it was rivetting. I’m making my husband watch it tomorrow to get his opinion. Then, I intend to send it to several family members (including my MD brother) who have been adamantly opposed to this treatment. Maybe I’m weird but I couldn’t turn it off. It was like watching a NOVA presentation.
And I know what many people don’t realize is that you are still suffering from your chronic illness. You embarass me into action.
Great job. Would you consider making DVDs. My computer wasn’t always cooperative during the showing….and I would love to give DVDs out to my friends. I would be happy to pay whatever it took for the ease of it
Congratulations….and more importantly, thank you.
Hi Diana,
No, thank you for making such kinds remarks about the video. If it helps family members or friends better understand the MP then I am thrilled!
I am going to make DVDs of the video. Paul and I will probably start work on them next week. Then, we will put up a link that explains how to order the DVDs. We don’t plan to charge anything for the DVDs except for the cost of shipping.
So next week keep an eye out for a link for DVD orders.
Again, I’m so glad you liked the video!
Best,
Amy
Can you consider sharing the DVD by BitTorrent ?
I can help with seeding and maybe some other things.
Best Per
Hi Amy,
Thank you so much for this site. The video was so well done and will help many to a greater understanding of what is involved in our recovery. I hope someday to reach the level of wellness that you have on M.P.
take care. Lynn
Thank you Lynn!
I also hope that you can recover as quickly as possible thanks to the MP.
All the best,
Amy
keep up the good work !!!!
Hi Amy,
I’m curious how these bacteria aren’t killed by pasturizaiton or chlorination. The only CWD bacteria I’m familiar with are the mycobacterium which seem pretty obligate parasites that don’t survive well outside the body. Why would bacteria have cell walls if the walls don’t seem to help them survive?
Hi Ryan,
I’m not an expert on chlorination or pasteurization so I don’t know exactly how L-form bacteria bypass the procedures. All I know is that many of the hundreds of researchers to spend their careers studying L-forms clearly state in their papers and textbooks that the pathogens cannot be killed by such procedures. I believe part of the reason is that they are extremely small.
Also, the chlorination and pasteurization processes were clearly designed with only acute bacterial forms in mind. I’m sure that when the procedures were created, milk and water to go through the purification process were tested only for for acute bacterial forms. Since completely different methods are required to culture and observe L-form bacteria, most scientists were, and are, completely unaware of the fact that L-forms remain in treated milk and water. Thus, additional methods or steps that would eliminate L-forms from milk and water were never added to the purifications processes.
I believe that cell walls can offer acute bacterial forms some advantages. It’s important to keep in mind that acute bacterial forms and chronic bacterial forms have very different “goals” as pathogens. It is in the best interest for acute forms to multiply rapidly so that they can cause the host to suffer from a quick, strong infection. I believe that cell walls help bacteria replicate more quickly, so having a cell wall as an acute form would be advantageous
But chronic forms do not care about quickly multiplying. Their goal is to keep the host alive so that they can use its nutrients while spreading very gradually and living in a manner that cannot be quelled by the immune system response. So it is in their best interest to lose their cell walls and to transform to smaller forms that can more easily hide inside macrophages and biofilms.
Hope this helps.
Amy
Amy, This is a wonderful presentation. Even after several years as an MPer, this video has clarified and solidified the science behind the healing for me. I’m grateful to have it as a resource to point the people to, to futher their search for answers to relief and healing from their illnesses. It’s so difficult for many people to break the cycle of following popular palative treatments and to finally take charge of their healing; which may mean finding a physician who is willing to think about Th1 diseases in a way they never have before. Chronic Th1 disease sufferers need all the encouragement they can find, and this site certainly offers that. May I simply say, thank you Amy. Job well done.
Thank you so much Rick!
You are absolutely right. People with chronic disease need to take charge of their health. I’m so glad you feel this website serves as a resource where they can start to understand many of the new paradigms that will be changing the world of chronic disease.
That, and if this site prevents just one person from reaching the level of agony I did when my CFS was at its worst, then my time has been worthwhile.
Best,
Amy
Dear Amy,
I’m a fellow CFS sufferer and have been on the MP for about a year. I’m now slowly getting back my ability to think, so in recent times I’ve been (re)reading up on the MP science, and your presentation (especially in the first half) really helped me make more sense out of the theory.
thanks for this fantastic video!
I also have two questions:
1. The 25-D3 reference range is 20 to 56 ng/ml. Why isn’t this level immunosuppressive in healthy individuals? Is this because the VDR in a healthy person does not face additional antagonistic binding from bacterial ligands such as capnine?
2. On one of the ARB slides you say that ARBs protect mitochondria against age-associated damage from oxidation. That’s really interesting. I googled this but couldn’t find any good stuff. Could you please point me to some research article that shows this?
Thanks again, and keep up the excellent work!
François
Hi Francois,
Glad you enjoyed the video!
As for your questions. Healthy people do suffer from the immunosuppression generated by 25-D! That’s why the addition of extra vitamin D to the food chain has resulted in such a medical disaster.
Here’s an excerpt from my article “The Truth About Vitamin D: 14 reasons why misunderstanding endures”
http://bacteriality.com/2007/09/15/vitamind/#4
“Since the vast majority of the public still consume large amounts of fortified products, it is difficult to find people who have a truly natural level of vitamin D in their bodies. Consequently, over the past few years, the “healthy” range for 25-D obtained from blood work has been adjusted upward to reflect the fact that people consume fortified dairy products. The FDA now suggests that people maintain a level of 25-D between 20-56 ng/ml, which is in the range at which it becomes immunosuppressive. This means that the levels of 25-D in people eating a diet without fortified foods is inevitably considered to be too low, out of range, and ultimately a menace to their health.
With all the extra vitamin D we have added to the food chain, we no longer know what amount of 25-D the body would maintain under natural circumstances. Could it be that the people we call “Vitamin D deficient” actually have a normal level of 25-D? Studies which have tested the level of 25-D in people who live in countries where vitamin D is not added to the food chain prove this scenario to be true. A study which tested the level of 25-D in 90 “healthy, ambulatory Chilean women” showed that 27% of the premenopausal and 60% of the postmenopausal women had 25-D levels under 20 ng/ml. A study on healthy Bangladeshi women found that approximately 80% of the women had a level of 25-D under 16 ng/ml.”
So essentially the majority of the American public is immunosuppressed at the moment. That’s why we see a lot of healthy people turning into unhealthy people. It’s only a matter of time before most people pick up the Th1 pathogens, which is why we are currently living in an epidemic of chronic disease.
As for the paper about ARBs and mitochrondrial damage. Here’s the link. The paper focuses on the ARB losartan, which is very similar to olmesartan.
http://www.fasebj.org/cgi/reprint/02-0063fjev1
In the paper the researchers conclude that “losartan can protect against both age-related mitochondrial dysfunction and ultrastructural alterations, underscoring the role of RAS in the aging process.”
Hope this helps!
Amy
Hi I have just watched the Marshall Potacol and would like to start this treatment as the treatment I am presently on and have been on for quite some while is having no afect. My Doctor (Rhematolagist) has prescribed me with Methatroxate, Hydroxchloroquine & Frolic acid and is keen to put me on an Infliximab infussion course as it is thoug that this treatment for Artiritus may help the Sarcoidosis I have in my fingers. Afe watching thie presentaiion everything fell in place as I ave been saying for years that when I eat certain food such as milk, bread, cheese & edd my condition becomes more painful but no one i have spoken to seems to under stand why and looks at me puzzled. I would like to find out more info on starting the Marshal Proacol treatment as i am presently off of work due to my condition – painful fingers (enlarged), toes and lumps) . Is there a waiting list i need to join or an appointment i need to make in order to find out more or be assessed to whether i can have be put on the Marshal Protocol treatment??
I would also like some DVd’s of your presentation so I can show family, friends & doctors
Thanks, Jamie
Hi Jamie,
I’m so glad you watched the video and now have a better understanding of the Marshall Protocol and how the treatment can definitely help you recover.
There is a currently a waiting list to become part of the study, but if you sign up now, it may not take too long before you are admitted. The way to get on the waiting list is to write a post stating that you would like to start the Marshall Protocol at the following website.
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name Cure My Th1) Ask the patient advocates on the site to give you an MP application form. There is no charge for their services or for any other aspect of the MP.
The application form they will ask you to fill out will ask if you have a doctor who is willing to put you on the Marshall Protocol. Having a doctor who has already agreed to put you on the treatment should help you be admitted into the study as soon as possible. So, in addition to posting on http://www.curemyth1.org, you should also try to find a doctor who is willing to put you on the MP.
I recommend that you go to the study site (www.marshallprotocol.com) and click the “members” button on the upper right hand part of the screen. There, you can search for members by location. Look for other members who live near you and send them a private message over the site asking who their doctor is and if you can have his/her contact information.
You may want to convince your current doctor to put you on the MP. Here is a link to book of information about the MP to present to a doctor.
http://www.marshallprotocol.com/forum2/11458.html
If none of these options work, the moderators and http://www.curemyth1.org give you further advice on how to find a doctor.
Best,
Amy
PS. You can order the DVDs with Dr. Marshall’s presentations by going to the study site (www.marshallprotocol.com) and clicking on the icon on the upper left hand part of the screen. The icon, which is in the shape of a box, advertises the DVDs.
You have written the book I’ve been waiting for Amy. Thank you, thank you.
Just one point: a question not covered (unless I’ve missed it) and which naturally occurs to many is: “Wouldn’t the treatment kill ‘friendly’ bacteria?” Was the omission intentional?
All the very best,
Anne
Anne
Hi Anne,
I’m so glad that the video helped you better understand the MP.
About “friendly” bacteria. No, the issue was not deliberately omitted at all. The fact is, we don’t find extra gastrointestial problems among people recovering on the MP. Actually, quite the contrary is true. Overall health in places such as the gut or mouth, where some scientists believe friendly bacteria exist, becomes much better over the course of treatment (as a general rule).
So we are seeing no effect from killing what some scientists see as “friendly” bacteria. That, along with models derived from his research, has led Dr. Marshall to believe that “friendly” bacteria don’t really exist. In his view, some species may not be necessarily harmful, but most are actually just putting an extra load on the innate immune system, which must always put out energy to manage their presence.
It’s also quite easy for bacteria that may not be necessarily be harmful to become pathogenic thanks to the concept of horizontal gene transfer. As soon as a person starts to accumulate the Th1 pathogens in the gut, they can easily swap DNA with other bacteria in the gut, making them pathogenic species as well, which is probably what happens in most people who suffer from any serious Th1 disease. At that point, essentially all the bacteria in the gut are definitely not helping the host.
So Dr. Marshall is not concerned about friendly bacteria, and his lack of concern seems to be justified, as we really can’t find a person yet whose gut problems seem to be exacerbated by antibiotic use.
You may be wondering, “but what about probiotics?” This thread on the MP site discusses probiotics. The theory put forth by Dr. Marshall may be a little difficult to understand, and is of course controversial. Yet it offers an alternate hypothesis for how probiotics work, and up to now, Dr. Marshall’s other alternate hypotheses have been correct. So I believe it’s at least worth considering. I may write an article about his views on probiotics at some point.
http://www.marshallprotocol.com/forum39/11110.html
Best,
Amy
Thank you Amy for your response to my query re friendly bacteria. I shall look forward to your article on probiotics.
Can anyone tell me if there’s a way of increasing the print size of the printable version of the video? It’s very small. Trying to download the pdf crashes my Mac (OS 10.3.9 – Safari 1.3.2.)
Thanks,
Anne
If L-form bacteria are found basically everywhere, and will reinfect us time and again, won’t we need to take antibiotics for the rest of our lives?
Hi Leslie,
I understand where you are coming from, but re-infection after the MP might not be an real issue.
First off, the MP is not just a treatment that kills chronic bacteria, it is a treatment that strengthens the innate immune system. As you reach the later years of the MP, you will have essentially no blockage of the Vitamin D Receptor because you have not been taking vitamin D for a long time and because you will have very few, if any, bacterial proteins blocking the receptor.
At that point your innate immune system will be in great shape. So when you stop the treatment, you will be in an excellent place to fend off new L-form and biofilm bacteria. After all, the reason those people who get chronically ill are able to accumulate the Th1 pathogens so easily is because they become increasingly immunocompromised. Those people with very active innate immune systems actually do a very good job killing new invading pathogens.
But of course, after you stop the MP you will accumulate some more L-form and biofilms bacteria. That’s why it is recommended that people do “touch ups” of the MP every 2-5 years or really at any time intervals they find fit with their schedule. A “touch up” just refers to starting the MP meds again and seeing if you experience immunopathology. If you do, it means you have picked up new bacteria and you can stay on the meds until the reactions subsides. The time period for “touch ups” should be much, much shorter than that of the MP.
All of the above also hinges on the fact that someone who stops the MP would only consume moderate amounts of vitamin D (that obtained from non-fortified foods) in order to keep VDR blockage to a minimum.
So if you follow those guidelines you can maintain your health quite well. The issue of “touch up” and stopping the MP is covered in greater depth in this article:
http://bacteriality.com/2008/02/23/misconceptions/#13
Best,
Amy
Amy, Thank you for a great overview. Watching it helped me understand that I have a general understanding of the science behind the MP and helped clarify some areas that have remained fuzzy. Since my brain is stlill fuzzy, it may take a while for those areas to take. Regardless, you’ve created a great resource. Thanks again for all the work you do to education people about TH1 illness and the Marshall Protocol.
Thank you so very much for the film and this website. Mediastinal Adenopathy was found on an MRI for breast screening, I underwent a CT and then a very painful mediastinaloscopy and have a diagnosis of Stage I sarcoidosis. I am very concerned, as I have been a healthy 56 year old with few problems–some allergies, mild asthma only. I have worked for years with integrated medicine Dr. to get my lipids down with naicin and other supplements. Now I have this potentially disability disease and I am very concerned. I have devoured all I can find on the Marshall Protocol and my Integrated Medicine Dr. has helped two people with the MP and is ready to help me start as well. I have sent an application request, as you suggested, but have not heard back. Is there anything else I could do to be considered for inclusion? The potential to change the way we see disease is very exciting and I look forward to reject the call for “watchful waiting” and instead do what I can to increase my chances of not having this disease hijack my life. Interestingly, my husband also have sarcoidosis, which was diagnosed 25 years ago. He has extensive scarring on his lungs. Again, thank you!
Hi Diane,
I’m so glad you are planning to start the MP! It’s true that sarcoidosis is a serious disease but you can definitely recover thanks to the MP. The fact that you are starting the treatment close to your date of diagnosis and did not take corticosteroid medications may mean that your bacterial load has not spread too far and that you may progress through the treatment at a faster pace than some.
I’m sorry you haven’t heard back yet from the MP moderators about your inclusion into the study. It may take them a while to get back to you, but I wouldn’t wait to start the MP until they do write you back. The MP study is officially close, so even if you are put on a waiting list you will probably not be admitted right away.
Although the guidance from the nurse moderators who help patients officially in the study is helpful, if you are fairly well versed when it comes to the MP guidelines/food restrictions etc you should be fine starting the MP medications only under the guidance of only your doctor.
Give yourself a week or two to adjust to Benicar. Make sure you have adequate eye and light protection and try to get a read on how light sensitive you become so that you can avoid light to the extent necessary.
Then start minocycline as per the phase 1 guidelines (which are available on the study site) and if you ramp the antibiotic carefully I don’t think you should have any problems.
When you want to move on to phase II, your doctor can request the phase II/III guidelines as long as he is a member of the “Private Section for Medical Professionals” on the study site. Make sure he signs up to be a member of that forum ASAP as if you do have any problems, even in phase 1, he can ask the moderators for advice on your situation by posting there.
Also make sure your doctor does not modify the MP guidelines in any way. It’s particularly important that you don’t take any other supplements while on the MP as they can very well interfere with vitamin D metabolism.
So I recommend starting the MP with your doctor alone. Keep a journal of your symptoms if you think that will help you keep track of your progress. Then eventually I’m sure you will be admitted to the study officially and you can continue the treatment under those conditions.
Good luck!
Amy
I have a child with autism who has a tremendous viral load due to childhood vaccinations. There’s concern that these children may be so immuno compromised due to the viruses having morphed into what some are calling “stealth viruses”. Is this in any way related to L-form bacteria?
Also, there’s been research indicating that certain digestive enzymes help the body break down proteins and eliminate cellular debris (i.e. viruses & bacteria). What role, if any, do digestive enzymes (peptides) play any role in the MP scenario?
Hi Karina,
Yes, the Marshall Pathogenesis (or the science that guides the Marshall Protocol) does dictate that if your child is suffering from several viral infections then he/she also harbors the L-form, biofilm, or other stealth bacterial forms that cause inflammatory disease. In fact, there are several autistic children on the MP who are killing these bacteria and doing well.
A healthy immune system is generally able to keep viral infections under control. So if your child has several viral infections, then something is weakening his/her immune system so that it cannot function correctly. According to the MP model of disease the agents dyregulating immune function are not the viruses themselves, but L-form and biofilm bacteria. Dr. Marshall has shown these bacteria are capable of creating substances that dysregulate the Vitamin D Receptor – a fundamental receptor of the body that controls the activity of the innate immune system.
When the Vitamin D Receptor becomes dysregulated by bacterial substances, it can no longer correctly turn on the innate immune response and the patient is able to easily pick up all kinds of other infectious agents….like viruses. So as we see it, your child will never be able to get his/her viral infections under control until he has killed the L-form/biofilm bacteria that slow immune function. If his/her bacterial load is been reduced, the immune system should have the strength to naturally combat the viruses- a pattern we see with nearly all our study subjects.
You child can wear down his/her bacterial load with the Marshall Protocol – if you have questions about the treatment the best place to post them is at the the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria). They will be answered free of charge by patient advocates.
Also, MP patients do not take digestive enzymes and I don’t know enough about digestive enzymes to comment on whether or not they would help clear bacterial debri. MP patients try to avoid all supplements as many have effects of on immune function that are not readily apparent.
Best,
Amy
Amy,
Is there any way I could get the video onto a DVD? My wife and a couple of friends with autoimmune disease would like to watch it, and a DVD just sounds a bit better than huddling around the computer.
I’m pretty tech savvy, but as far as I can tell there’s no way to download the Vimeo video. This is purely for personal use.
Thanks,
Chris
Hi Chris,
It is possible to order a video of the presentation that you can watch on TV.
Send an email to our volunteer Gene Johnson requesting a DVD. There is a charge of $4 for each DVD to cover the charge of shipping. You can send the money via check or through PayPal.
Gene’s address is:
Gene Johnson
446 Trinity Dr.
Allen, TX 75002
Phone: 469 675 1316
Best,
Amy
Thanks, Amy. Where do I find Gene’s email address?
Yes. It’s edj2001@tx.rr.com.
Best,
Amy
A very interesting video. Are you aware of any doctors directing patients through the MP in Ireland?
Hi Daniel,
There are people in Ireland who are on the MP and have doctors who are willing to prescribe the treatment. The best way to find a list of such doctors is to write a post asking for the “Ireland MP doctors list” at the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name)
The patient advocates on the site should be able to provide you with the list and are also available to answer questions about the MP free of charge.
Best,
Amy
Dear Amy,
I love your video! Very helpful! I don’t fully understand it all being a non-med major… but my brother who is a doctor and on the board at Kelsey Seybol clinic here in Houston, TX needs to hear this. I will email him the video website. Doctors need to be connected with molecular science discoveries and successes… to update them… and help so many more patients… whom other wise would be sent home without a reason for their pains and fatigue. My name is Carol Dickinson. My brothers name is Dr. Robert Dickinson. I wish there was a way you all could get together. Kelsey Seybold is one of the largest Hospital (St. Lukes) linked Clinics in Houston if not Texas and possibly the US. If they could know what you knew… WOW!!!… What wonders they could do! Is their any way I can make this connection easier. What can I do to make this happen? I will send him your video website. Please email at carol.dickinson@earthlink.net if you have any suggestions what so ever that I… we… can make this happen. They are one of the largest in Houston… and I am his sister.
I have written to you before about my medical history of Inflammatory Disease … I have extremely high 1,25 Dihydroxyvitamin level (95). Loss of large intestine due to bleeding ulcerative colitis for 14 years till 27 years of age (on asulfadine and prednisone). Colon removed at 27, I am now 52. Still tired, brain fog and various body pains and inflammations. If I can introduce this to Rob… I could also be helped. He could use me as his ginea pig following the Marshal Protocol.
Thanks you so much for all your tireless passionate work, which is evident. Maybe I was meant to be sick… just so I could get the Marshal Protocol into the largest Hospital/Clinic system in Houston Texas… the largest medical center in the world.
Much love in Christ,
Carol Dickinson
carol.dickinson@earthlink.net
Hi Carol,
Sorry not to write you back sooner. I just got back from Portugal where I gave a speech related to the MP at the International Congress on Autoimmunity. It went very well and interest in the MP ran high which was exciting.
In any case, thank you for you kind comments about my work and I’m so glad you found the video interesting.
As far as your brother goes – he would be a fantastic person to educate about the MP. I very much agree that it’s sometimes difficult for doctors to keep up with the latest research in the field of molecular biology – especially because they arn’t trained to approach disease from a molecular perspective in med school. But as you can tell, Dr. Marshall has been able to may key discoveries about chronic disease by using in silico modeling and it’s imperative that we try to communicate the result to doctors.
I hope that your brother takes an interest in the MP. I’m sure some of the tenets of the MP are not what he’s used to hearing from the mainstream doctors around him, but if he keeps an open mind he is in the place to help so many patients.
That includes you! I would be so happy if he would agree to put you on the MP. Like you said, maybe you could serve as a test case so that he can see how you react to the treatment (almost certainly improving over time) and it will boost his faith that it will work for others.
Thank you so much for speaking to your brother about the MP. I have your email address and if you or he has any specific questions about the MP don’t fail to email me at my private email (which is listed in my bio on the homepage) and let me know how I can be of help.
By the way, you may want to convince your brother to join the “Private Section for Medical Professionals on the MP website. Once a member of that forum, he can directly correspond with other doctors who have patients on the MP. Information on how to become a member of the forum can be found here:
http://www.marshallprotocol.com/forum24/32.html
Best,
Amy
Hi,
I’m 55 and have sarcoidoses of lungs since 1993.
I was getting a prednisone for 3 years before I got release from the first burst.
After 13 years of the release the illness is back now and I’m getting a prednisone every 6 months for the last 2.5 years.
I’ve just read about the Marshall protocol and it sounds promissory.
I have a couple questions to you.
1. Are there any age or health restrictions for the MP’s treatment?
2. Are there any doctors in Pennsylvania (USA) who can support the MP’s treatment?
If yes could you please provide their names and addresses?
3. How can I order a video about the MP?
Your response will be greatly appreciated.
Regards,
David
Hi David,
I’m sorry to learn about your struggle with sarcoidosis. Although your have taken prednisone for several years, which has unfortunately slowed your immune response, we have had many study subjects who have successfully weaned off prednisone and been able to use the MP to recover from sarc.
As for your questions:
1. No, there are no restrictions. In my opinion, it is always worth giving the MP a try no matter how sick you may be. As you may have read, sarcoidosis is a bacterial illness and those people have been sicker for longer periods of time or taken corticosteroids usually have higher bacterial loads. However, as mentioned above we have had people who were on prednisone for decades, successfully weaned off it, and done well on the MP. No one is turned away from the study based on age, disease, anything. Everyone is welcome to participate.
2. You should ask that question at the following website where the patient advocates should be able to provide you with a list of doctors that administer the MP in Pennsylvania:
www. curemtyth1.org (Th1 refers to diseases caused by bacteria). Unfortunately I happen to know that Pennsylvania is essentially the only state in the US that does not have too many MP doctors! A lot of people in that state find they have to travel to New Jersey or New York to see a doctor. But post about your situation on curemyth1 anyway since new MP doctors show up on a regular basis.
3. You can order DVDs of the last two Marshall Protocol Conferences by going to the study site http://www.marshallprotocol.com and clicking on the “add” for videos on the left hand top of the screen.
You can also order the video you just watched “An Overview of the MP” on DVD at:
http://www.marshallprotocol.com/forum39/9999-12.html
Many of Dr. Marshall’s video-tapped presentations at various conferences can be viewed at this link:
http://mpkb.mp-dev.com/doku.php#publications_presentations
Hope this helps!
Amy
As of now I’m a sarcoidosis suspect.
My first symptom was acute anterior uveitis. Blood work at the lab came back with ACE elevated at 73 (normal 15-60) and my chest CT scan came back with a couple small nodules but nothing in lymph nodes in chest.
I’ve read a few studies that uveitis is a first symptom and there’s a very strong (90%+) that I’ll develop chronic sarcoidosis.
Do you think the Marshall Protocol could help me? Would it be smart to start before other organs get involved?
Hi Bill,
I definitely think the MP could help you. I would advise you to read as much as you can about the MP. You can create an account at CureMyTh1.org right away and ask any other questions you might have.
One thing that is lost on a lot of people is that these diseases and symptoms have a common underlying pathology.
If you take a look at the patient interviews you see in the sidebar, a lot of your (former) fellow sarcoidosis patients have co-morbidities as well. In particular, Jane Taylor’s is pretty great. She had a number of co-morbidities and her interview has a chart, which shows her levels of ACE changed before, during, and after the treatment.
The earlier you do the MP, the easier it will be. If your doctor won’t do the MP, I recommend finding one who will.
Best,
Amy
Hi Amy, ALL of the information regarding the MP is very ineresting. With all of this information being available on the internet I would still really like to talk to a person about the whole process. I live in Ottawa, Canada, and would also like a list of potential Doctors willing to treat me using the MP. Please contact me ASAP, I am a health care professional and have been researching treatments for some time now. Thanks-Eugene
I JUST BECAME AWARE OF YOUR MP AND WILL RESEARCH IT TO ITS FULL EXTENT TO BE SURE I HAVE NOT AND WILL NOT MAKE COUNTERPRODUCTIVE RECOMMENDATIONS TO PATIENTS AND FRIENDS. I WILL THANK YOU IN ADVANCE FOR THE INCREDIBLE AMOUNT OF WORK AND EXPERTISE AND GRACE IN SO GENEROUSLY SHARING THIS INFORMATION. MAY GOD BLESS YOU IN YOUR WORK IN THIS WORLD AND IN THE NEW ONE COMING SOON. YOU MUST BE INCREDIBLY BUSY SO SPARE YOUR SELF YOUR USUAL CORDIAL REPLY FOR NOW. THANK YOU SO MUCH. JENNIFER
HI Eugene,
I’m very glad you are looking into the Marshall Protocol and the science that forms it’s backbone. There are many Canadians on the MP. If you write a post at the following website:
http://www.curemyth1.org (Th1 refers to bacteria) …..the patient advocates on the site, who work for free, may be able to put some of them in touch with your personally.
However, if you are a health professional, you can likely communicate directly with other MP medical professionals by joining the “Private Section for Medical Professionals” on the Marshall Protocol study site. Once a member of the forum, I’m sure you could set up a time to speak with other professionals over the phone. The forum is the first on the MP study site (go to http://www.marshallprotocol.com). Once you enter the forum there are instructions on how to become a member.
Those are my two top suggestions!
Best,
Amy
Dear Amy,
Does this protocol have to last 1-5 years? I know you said that the bacterial dieoff will eventually make us sicker initically before we get better. In convential bacterial infections, the doctors give us megadoses of antibiotics to knock the infection out as quickly as possible. Isn’t there are large bacterial dieoff when they administer these antibiotics too?
Hi Karl,
Unfortunately, at the current moment, there is no way to make the MP a quicker treatment. As you described, the bacterial die-off reaction causes temporary rises in symptoms. A person can only tolerate so much of a rise in symptoms each day. Perhaps in the future, as an increasing number of scientists begin to work with Dr. Marshall’s model, some teams will be able to develop drugs or techniques that will clear the products of the die-off reaction more quickly from the body, allowing people to target their bacterial loads more easily.
Also, as word of the MP spreads, there is great hope that people will begin the treatment as soon as they feel the first symptoms of illness. Under such circumstances, their bacterial loads would be much, much, lower and the MP would be much easier and shorter for them to manage. Some people are already using the treatment in this manner.
Doctors treat acute bacterial infections with high dose antibiotics because those bacteria that cause such diseases are not in a chronic form. When the antibiotics kill the bacteria causing the illness, there is a strong immune response and die-off reaction. The bacterial die-off is what manifests as the symptoms of the disease. For example, when someone gets the common cold, their symptoms are the results of their immune system killing the bacteria they have picked up over a week or so. So die-off is part of acute diseases as well. It’s just that in such illnesses the immune system is fighting a much smaller load of invading bacteria – not a load that, in the case of chronic disease, has usually accumulated over a lifetime.
So there is no way of avoiding the die-off reaction for now! Also, only low, pulsed antibiotics work to target the bacterial forms that cause chronic disease so don’t adapt the MP guidelines in any way.
Best,
Amy
Hi this is very interesting.
Is this useful in dry eye, when inner eyelid inflammation is causing it, not surface inflammation?-
Ive been suffering from severe dry eye caused by inflammation of my eyelids, i dont think its casued by bacteria because all meds i have used to tackle MGD (main cause of dry eye) caused by bacteria has failed. Ive tried azasite, lid scrubs and oral doxy.
The inflammation is autoimune and goes away when my imune system is otherwise occupied with the flu or another sickness.
Maybe they are missing a strain?
Hi Sara,
Sorry to hear about your eye inflammation. Although you may have been told your eye inflammation is “autoimmune”, the literature on this site describes a model for chronic disease in which the inflammation seen in “autoimmune” disease is actually caused by the presence of numerous species of chronic bacteria.
The chemicals you’ve tried using to kill bacteria in your eye, such as azasite and oral doxycycline, would, in my opinion, not be able to kill the types of bacteria in your eyes. The bacteria in your eyes are likely intracellular (they persist inside the cells of the immune system). Or, they form part of a biofilm community where they have grouped together with other bacteria and cannot be killed by conventional antibiotics or most other antibacterials. So yes, the treatments you have used have definitely missed a bacterial strain – in fact, they have missed multiple bacterial strains.
The treatment discussed in greater detail on this site – called the Marshall Protocol (MP) – uses an immune activating medication and very carefully chosen pulsed, low-dose antibiotic in a novel manner. Our data shows that these medications can target the bacterial forms likely causing your eye inflammation. So I highly recommend that you look into the treatment as a way to reverse you eye problems.
These articles describe the MP in fairly simple terms:
http://bacteriality.com/about-the-mp/
http://bacteriality.com/2007/10/11/antibiotics/
This video, which I highly recommend watching, also describes the MP and the science that forms its backbone in simple terms:
http://bacteriality.com/2008/05/07/mpintro/
There is no charge for information on the MP as the treatment/study is run by a non-profit organization. If, after reading more about the MP, you have questions about the treatment, I recommend posting them at the following site:
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name). The advocates will answer your questions free of charge.
Best,
Amy
Interesting about the eye inflammation. I think it might actually be a form of airborne chylamidia trachomatis. I have noticed a lot of people around Houston with red inflammed eyes I had these symtoms too. I took all the same medications as you except the oral doxycycline. Azasite, patenol, other antihistimine drops, antibiotic drops cyclosporine but to no effect.
However, when I took the antibiotic Sulfonamide, my eyes cleared up. Unfortunately I only had a 5 day supply and I ran out and my eyes turned red again. So what is this that the antibiotic Sulfonamide will clear up? Sulfonamide is one of the only drugs besides minicycline and doxycycline which can kill L-Form bacteria. Coincidence?
I was diagnosed with Pulmonary Sarcoidosis in 1993.
I found this info on the MP and printed it out for my lung specialist. He said that he has no experience with it, but would gladly refer me to someone who is.
How do I find a doctor in the Milwaukee, WI. area?
I am tired of just masking symptoms and would like to be cured!
Thank you in advance.
Mike V.
Hi Michael,
Good for you! I happen to know that there are no Wisconsin-based MP doctors, at least on the physicians list. You have two options:
1. Convince a new doctor to do the MP.
2. Visit a Chicago-based MP physician I happen to know. Look for my email.
If you need help with getting together materials on the MP to present to your current doctor or a new doctor, post about your situation on the following website:
http://www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name). The patient advocates on the site, who are volunteer, will refer you to Dr. Marshall’s papers and other helpful material.
Good luck!
Amy
Amy, I am very interested in sharing this video to my doctor (Marshall Protocol Overview). I am a little confused on how to do that. I don’t know how to download the video to a disc. I would really appreciate if you could assist me.
Thank you so much,
Eileen
Hi Eileen,
You can order a DVD of the presentation by looking at the last post in this thread. Or, you can download the Quicktime move from this link.
Best,
Paul
Amy,
I think that it is a fascinating hypothesis. It does not explain why people that live in latitudes more distant from the equator have an increase risk of autoimmune in spite of their decreased vitamin D. What do you think?
Hi Danielle,
Good question! I’ve thought it over before. Here are my thoughts…
In my opinion, it’s hard to say that there is less autoimmune disease in countries near the equator when they are mostly all third world countries. What happens to a person in a third would country who develops MS or sarcoidoisis…or any disease? Often…nothing. They can’t afford to see a doctor, they see local herbalists whose supplements they can perhaps afford and their case goes undocumented by official doctors.
I’ve seen this first hand because I grew up in Mexico City. My Dad owns a tool factory where because of the economy, most workers could never make enough money to visit a “real” hospital. There is a social security service that provides healthcare for those who can’t afford it, but getting an appointment is seriously difficult. One of my most striking childhood memories is of when I saw a line outside a public hospital reaching as far as the eye could see with incredibly ill people waiting hours or maybe days to see a doctor. The incidence of diabetes among workers at my Dad’s factory is very high. He has many workers who have lost one or more limbs to the disease but I’m not even sure where or how their cases have been documented. They certainly arn’t able to see a doctor on a regular basis, or likely afford insulin (although my dad tries to help them get insulin)
Now consider someone in a first world country – The US, Europe, or other countries at higher latitudes. At the first sign of illness people usually see a doctor. Then they get referred from specialist to specialist, each doctor separately documenting the case. Multiple blood tests and MRI often indicate conditions that would never be picked up by the equipment in a third world country hospital. People are diagnosed will many different diseases based on these tests, many of them which overlap or differ depending on which doctor interprets the results. Then these people continue to see doctors for the rest of their lives, often switching as they try to find a treatment that might work better, with each doctor possibly documenting more symptoms and conditions.
So I believe that until the differences between the third-world health case system and first-world healthcare system are better accounted for, studies trying to infer disease incidence based on sunlight exposure contain way too many variables to form the basis of any serious decisions about vitamin D supplementation or disease rates.
That being said, there are also other reasons why people at the equator may have lower rates of autoimmune disease. We believe that autoimmune diagnoses result when people accumulate many different species of difficult to detect chronic pathogens. It makes sense that these bacteria are much more rampant and thus easier to catch in first world countries than third world countries.
Ironically, it is the immunosuppressant drugs used by doctors practicing “modern medicine” that allow these bacteria to spread so easily – steroids such as prednisone that offer short-term palliation at the price of destroying the immune system. So many other drugs given in huge amounts to people in first-world countries are also immunosuppressive.
Then, we supplement the food chain to a much greater degree in first world countries. I believed vitamin D fortified milk has reached all third world countries, but they certainly arn’t eating the vitamin D fortified butter, cheese, ice-creams, crackers, cereals, nutrition bars, etc. that we consume in the United States and often Europe. I can guarantee that few doctors near the equator are telling their patients to supplement with ridiculous amounts of vitamin D such as 2000 IUs a day – which is becoming increasingly common in the US. This makes a huge difference because the vitamin D derived from diet is in a different form that that derived from the sun. It’s the 25-D created from diet that is a secosteroid that slows the immune response. This raises the question: with such a push for supplementation in the US and Europe, are people in northern latitudes even getting less vitamin D than people at the equator anymore? We certainly know that people at the equator usually have dark skin. Dark skin produces vitamin D at a much lower rate than white skin, so residents of equatorial countries may not be getting as much vitamin D as one would think.
People at the equator actually eat more natural diets. Food is usually obtained from local sources and certainly not fortified with all the vitamins and preservatives and hormones we put in our food here in the US. Lack of access to medical care and an inability to afford drugs mean that way less people take steroid and other immunosuppressive medications which is actually extremely beneficial to countering the spread of autoimmune disease.
All this could mean that autoimmune causing bacteria are much more prolific in countries at higher latitudes and are being passed among family members and friends at a much greater rate. Perhaps the species of bacteria that cause some autoimmune diseases haven’t reached the equator in high numbers. Just like any bacteria, the bacteria that cause chronic disease can be much more prevalent in certain populations based on habits, temperature, or any number of variables.
Don’t forget that it’s the accumulation of the Th1 pathogens that dysregulates a person’s vitamin D metabolism and causes their 1,25-D to rise. It’s at this point that the sun becomes a problem for patients with autoimmune disease. So if the Th1 pathogens weren’t as rampant in a population, as might be the case in some equatorial populations, people wouldn’t have higher-than-normal levels of 1,25-D. In that case, they could get quite a bit of sun and not develop an illness. It’s just like how people who finish the MP and eliminate their bacterial loads can once again get sun because they no longer harbor bacteria that will affect the VDR. In essence, sun exposure is only a problem when bacterial load is high.
I know my comments are just speculative. Still, I hope they show that there are many, many other variables besides sun exposure that could lead to the statistics on autoimmune disease we see today in which people at the equator are apparently less sick.
Best,
Amy
Danielle,
I think Amy has it right. Conclusions based on observational epidemiology are all potentially problematic. Witness the mistake MDs and researchers made in recommending hormonal replacement therapy (HRT) as being protective against coronary heart disease. Some epidemiologists said they were sure that HRT was protective and made public statements in prestigious peer reviewed journals to that effect. Yet, the opposite was eventually shown to be true. One commentary asked provocatively, “Is this the end of observational epidemiology?”
Statisticians have a huge, often effective, arsenal for controlling inherent differences between populations. They can control age, race, socioeconomic status, and any other factors that could possibly predict one disease outcome over another. But as we saw with HRT, sometimes that is not enough.
The problem is that sometimes the statistical comparisons between one population and the next are too great to even attempt the comparison. In the case of vitamin D intake, I would argue that there simply is not enough data to justify a meaningful comparison.
True understanding dictates looking at root causes. If you haven’t done so already, read Amy’s and my Autoimmunity Review.
Best,
Paul
Dear Amy,
I have Sarcoidosis and am interested in the marshall Protocol. I am very tired and have been on my computer most of the day and have not yet been able to get the DVD or Video to take to my Doctor and see if he will put me on the program. Any other suggestions on obtaining the info. The doctor will have to be convinced and then I am not sure he will. He told me the Prednisone was the only treatment???? I need the DVD so it will not put him out so much he will not see it.
Any help will be appreciated.
Helen Grant Roanoke, VA
Hi Helen,
Unfortunately, many MDs will not voluntarily put their patients on the Marshall Protocol. In my experience patients who have found willing MDs have educated themselves. These patients have gone into their doctors’ offices and said, “Look, this is what I want to do and here is what I need to do it.”
Read the Phase One guidelines. Get a blood test for the vitamin D metabolites. Get a prescription for Benicar and get one for minocycline. If your doctor says no, ask him/her what is objection is. Ask for a therapeutic probe. We have lots of studies we can share. If your doctors say no way, find a new doctor by requesting one at CureMyTh1.org.
You don’t have to be a PhD to get the MP, but you do have to be resourceful, and you do have to educate yourself.
Sound good? Now, go get ‘em!
Best,
Paul
Thanks Paul, I will do as you say.
Helen
Hello Amy
First of all I feel I’ve known you now for almost 3 years. I am an MPer -end of phase 2 as of right now(nice!) ok IVAL my angel came to my house and added your site to my favs. (perfect)anyway I just happen to be visiting an ‘ahahahahahaahaha’ the overview video “hello” seemed to click right in my TH1 brain i will be emailing you back. i would love to speak in person if possible. I know everyone else at MP or seeking help out there would definitly agree with me your doing a wonderful job. you too are an angel
thanks-
Lori
Hi Amy,
I am a 55 year old male and have been very unwell recently. I have been very fit and healthy for most of my life without any need of medications, although I developed total Vitiligo all over about 30 years ago.
Over a year ago I was given antibiotics (Pennicilin) for a rash on my legs which led to a drug reaction, causing skin inflamations over all my body, and the onset of tinnitus, constipation and dermatitis. I also received a course of Predisone and further antibiotics for a month without any relief. I still have the dermatitis and tinnitus and get very depressed with no energy all the time. I have had numerous blood tests and investigations over the past year by a dermatologist, endocronologist and gastroentrologists and only B12 deficiency has been identified. My basic VitD test was around 12 which is at the low end of normal here in the UK. I have stopped applying topical steroid creams many months ago as they were making me very depressed and causing severe headaches. I dont take foods with Vitamin D and generally eat a healthy
diet but my health is not improving.
If I start the MP treatment will my condition improve?
If so what about the Vitiligo? I dont want to go through the emotional turmoil of having patchy skin again as I did when it first started.
Hi Lori,
Thanks so much for writing! I’m glad to know that the overview video is helping you better understand the MP. As you probably know, I interviewed Ival for this site and he definitely is personable and a great advocate for the MP. I definitely hope we can meet in person at an MP conference or at some other event in the future. Thanks again for your kind remarks!
Best,
Amy
Hi Ginder,
This is Paul. I am helping Amy answer a couple questions.
First of all, I am very sorry to hear about all your symptoms: depression, tinnitus, dematitis, vitiligo, etc. When it rains, it pours, huh?
Re: your vitamin D results – try our Vitamin D calculator. That should give you pointed feedback on your results.
I applaud your choice to discontinue steroids and vitamin D consumption. If you’ve read Amy’s articles, you would see that both substances only exacerbate the disease process.
You wonder if your conditions will improve on the MP. The answer is yes, but it will take some time. The only way to eradicate these diseases is through the generation of a bacterial die-off reaction, a reaction we term immunopathology.
Hope this information helps.
Best,
Paul
Hi Ginder,
This is Amy. I too believe that your conditions will improve and hopefully eventually resolve if you do the MP. However the symptoms of your Virtiligo will almost certainly come back during the course of treatment as part of the immunopathology response Paul described above.
I know that you don’t want to face the symptoms again but one thing to keep in mind is that if you don’t do the MP, the underlying cause of the Virtiligo (bacteria in your skin) the skin symptoms will almost certainly come back anyway later in life. Right now you may be in a period where the symptoms are temporarily not flaring, but as with almost all chronic symptoms, once people have them they usually come back in the form of a relapse at a later date.
Also, once on the MP you will be taking a medication called Benicar. Benicar will activate your immune response but it also has potent anti-inflammatory properties. That means that even though immunopathology will cause your Virtiligo to flare (temporarily!), the Benicar will be counteracting such inflammation so that the symptoms may not be as bad as they were pre-MP.
So you may want to consider trying to MP even though the Virtiligo will come back for a while. You have many other symptoms that need treatment with the MP which you must also consider and ironically facing your Virtiligo symptoms for a while will actually be what ends them for once and for all as the bacteria causing the disease can finally be killed.
Best,
Amy
Great site Amy. Do you know of any Doctors in Oregon or Washington State that work with the MP? I live near Portland, OR.
My husband and I are both ill. This looks promising.
Thanks for you efforts.
Ann
Hi Ann,
I’m glad you’re interested. I’m pretty sure there are at least a few doctors in the Portland area. You can get that list by posting on CureMyTh1.org.
See also the Knowledge Base’s Finding a Physician article.
Best,
Paul
Hi Amy/Paul
I think there has been a misunderstanding concerning my Vitiligo. I aquired Vitiligo over 30 years ago, and have lost all skin pigmentation at that time. My question was if I Go on MP now will my skin start to repigment along with sorting my other problems. I dont particularly want to repigment because I have got used to and prefer the colour I am now. I know its a difficult question but any patch repigmentation process will be difficult to handle for me. Also from your experience of dealing Eczema does the condition get worse during IP before it gets better?
Hi Ginder,
Sorry if I was unclear in my previous comment. Vitiligo is associated with autoimmune and inflammatory diseases and also commonly tied to thyroid overexpression and underexpression.
This highly suggests that just like the other conditions that the MP treats, Vitiligo is caused by chronic bacteria. We find that thyroid dysregulation in diseases of “unknown cause” is a direct result of the the way in which chronic bacteria are able to dysregulate the innate immune response.
Also I believe that all people to start the MP with a skin condition thus far have seen the condition respond to treatment. For example the MP treats, psoriasis, acne and all kinds of skin diseases.
Once on the Marshall Protocol your immune system will begin targeting all the bacteria making you ill and there is no way to stop it from targeting certain species – such as those that cause Vitiligo.
So if you do the MP I think there is a very high chance that your Vitiligo will respond to the treatment just like you other disease symptoms. You might start to notice patches of skin color returning and in the end, I would expect your body to fully gain color again.
However we haven’t had any patients with Vitiligo do the MP yet (to my knowledge) so there’s a possibility that your skin might not be affected. You could start the MP as an experiment and stop it if you started to notice a return of your skin color.
However, I encourage you to do the treatment even if your skin color may change. The other symptoms you have are serious and will only get worse if you don’t do the MP. You will keep accumulating chronic pathogens if you don’t to the MP and could develop new symptoms and conditions. You may want to put concerns about your appearance aside because of all the benefits the MP has to offer in terms of allowing you to become a much more healthy and active person in the coming years. But of course, that’s a personal decision.
All the best,
Amy
Hi ginder,
In response to your last question – yes, we have patients on the MP with eczema and the symptoms of the skin condition will get worse before they get better when treated with the MP.
Best,
Amy
Thanks for the reply Amy. I consulted my GP doctor today and she refused to consider anything outside her normal experience. Do you know of a doctor in the UK who can help me. I obtained a list from the MP websites but none are prepared to take on any new patients for MP.
Kind regards
Ginder
Hi Ginder,
Oh, that’s frustrating, but unfortunately common. Many doctors are interested in the MP but are too afraid to prescribe a new treatment.
One option is that you may want to contact other prospective MP patients in the UK and ask them who their doctors are. Here’s a list of members registered on http://www.curemyth1.org who live in the UK:
http://www.curemyth1.org/view_user.php?list=1&letter=&sort_by=location&page=61
You can contact them via private message.
If that doesn’t work then all I can suggest is that you try to see another more open-minded doctor in your area and convince him/her to put you on the MP. Often doctors of alternative medicine or primary care physicians are more open to letting patients try the MP. This article describes how to help find and MP doctor and may be of some help:
http://mpkb.mp-dev.com/doku.php/home:starting:physician:finding
Some people travel quite a long distance to see their MP doctors. I assumed you called doctors on the UK list even if they weren’t that close to where you live? Even if you have to arrange a trip it may be worth it and follow up visits can often be done on the phone.
I wish I had more to offer. All I can say is be persistent! We’ve had other patients struggle to find doctors but with some effort they’ve almost always found a prescribing physician. I hope something works out.
Best,
Amy
Dear Amy or Paul,
Thanks for the reply about how to find doctors.
I have been perusing the curemyth1 site.
I have not seen postings by CFS/MCS patients.
I suffer from CFS, and some inflammatory issues, multiple environmental and food allergies, but MCS is what really limits my life the most.
Do you know of any severely chemically sensitive people who have recovered?
I have been sick for 15 years and am 52. It may be too late, but the thought of salvaging the last part of my life is enticing.
Thanks for taking time to reply and your great site.
Ann
Hi Ann,
I applaud your interest in the MP. The MP can definitely help you even if it takes several years. A number of patients older than yourself have recovered on the MP.
There are a number of interviews from patients with CFS and/or MCS. These include: Peter de Jager (MCS, CFS), P. Bear (MCS, Lyme), me (CFS, some food sensitivities), Doreen V. (CFS), Carole Morgan (CFS), etc. You can see links to all these interviews in the sidebar.
If you’re interested in starting the MP, check out our new Knowledge Base article Starting the Marshall Protocol. Note that as someone who is not in the Phase 2/3 forum, you cannot see the posts in those forums.
Best,
Paul
Paul,
I tried all I could do with this doc, H esaid with all my problems the drugs would be very dangerous for me. He has been my doc for 10 years and has been ok so far. I do think he is wrong on this and told him so but he still said he would not help me on this treatment. How can I find out if there are any other docs in VA I could go to. I have the name of a doc in NY but feel that may be to far if I get sick during the protocol and would not have a local doc to go to. anyway I will keep trying on the computer when I feel like it which is rarer and rarer. I do have an appt. with a new pulmonologist and rheumonologist the 28 and 29 nest week. Maybe I will have some luck there. thanks for your help though.
Helen
Hi Helen,
I admire your willingness to persist in finding an MD who is going to give you the treatment you need. Even though the most evidence for the MP’s efficacy is for sarcoidosis, a number of pulmonologists still tend to be resistant. Have you thought about calling your doctor’s office ahead of time to make sure he/she would even consider the MP?
Also, have you seen the Knowledge Base article on finding a doctor?
As the article mentions, you can go to CureMyTh1.org and request a list of doctors in the Virginia area.
Hope this helps. Good luck!
Best,
Paul
Hi Helen,
You have sarcoidosis and your doctor wants to give you some more steroids, right?
I would have to laugh that a doctor would say that the MP is unsafe compared to corticosteroids.
Have a look at the Knowledge Base article on doctor’s concerns.
I admire your willingness to persist in finding an MD who is going to give you the treatment you need. Even though the most evidence for the MP’s efficacy is for sarcoidosis, a number of pulmonologists still tend to be resistant. Have you thought about calling your doctor’s office ahead of time to make sure he/she would even consider the MP?
Also, have you seen the Knowledge Base article on finding a doctor?
As the article mentions, you can go to CureMyTh1.org and request a list of doctors in the Virginia area. That may be a good next step.
Hope this helps. Good luck!
Best,
Paul
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Please be aware that comments or questions about the Marshall Protocol tend to be answered much more quickly at CureMyTh1.org.