You have sarcoidosis and your doctor wants to give you some more steroids, right?

I would have to laugh that a doctor would say that the MP is unsafe compared to corticosteroids.

Have a look at the Knowledge Base article on doctor’s concerns.

I admire your willingness to persist in finding an MD who is going to give you the treatment you need. Even though the most evidence for the MP’s efficacy is for sarcoidosis, a number of pulmonologists still tend to be resistant. Have you thought about calling your doctor’s office ahead of time to make sure he/she would even consider the MP?

Also, have you seen the Knowledge Base article on finding a doctor?

As the article mentions, you can go to CureMyTh1.org and request a list of doctors in the Virginia area. That may be a good next step.

Hope this helps. Good luck!

Best,
Paul

I admire your willingness to persist in finding an MD who is going to give you the treatment you need. Even though the most evidence for the MP’s efficacy is for sarcoidosis, a number of pulmonologists still tend to be resistant. Have you thought about calling your doctor’s office ahead of time to make sure he/she would even consider the MP?

Also, have you seen the Knowledge Base article on finding a doctor?

As the article mentions, you can go to CureMyTh1.org and request a list of doctors in the Virginia area.

Hope this helps. Good luck!

Best,
Paul

I applaud your interest in the MP. The MP can definitely help you even if it takes several years. A number of patients older than yourself have recovered on the MP.

There are a number of interviews from patients with CFS and/or MCS. These include: Peter de Jager (MCS, CFS), P. Bear (MCS, Lyme), me (CFS, some food sensitivities), Doreen V. (CFS), Carole Morgan (CFS), etc. You can see links to all these interviews in the sidebar.

If you’re interested in starting the MP, check out our new Knowledge Base article Starting the Marshall Protocol. Note that as someone who is not in the Phase 2/3 forum, you cannot see the posts in those forums.

Best,
Paul

Thanks for the reply about how to find doctors.
I have been perusing the curemyth1 site.

I have not seen postings by CFS/MCS patients.
I suffer from CFS, and some inflammatory issues, multiple environmental and food allergies, but MCS is what really limits my life the most.

Do you know of any severely chemically sensitive people who have recovered?

I have been sick for 15 years and am 52. It may be too late, but the thought of salvaging the last part of my life is enticing.

Thanks for taking time to reply and your great site.

Ann

Oh, that’s frustrating, but unfortunately common. Many doctors are interested in the MP but are too afraid to prescribe a new treatment.

One option is that you may want to contact other prospective MP patients in the UK and ask them who their doctors are. Here’s a list of members registered on http://www.curemyth1.org who live in the UK:

http://www.curemyth1.org/view_user.php?list=1&letter=&sort_by=location&page=61

You can contact them via private message.

If that doesn’t work then all I can suggest is that you try to see another more open-minded doctor in your area and convince him/her to put you on the MP. Often doctors of alternative medicine or primary care physicians are more open to letting patients try the MP. This article describes how to help find and MP doctor and may be of some help:

http://mpkb.org/doku.php/home:starting:physician:finding

Some people travel quite a long distance to see their MP doctors. I assumed you called doctors on the UK list even if they weren’t that close to where you live? Even if you have to arrange a trip it may be worth it and follow up visits can often be done on the phone.

I wish I had more to offer. All I can say is be persistent! We’ve had other patients struggle to find doctors but with some effort they’ve almost always found a prescribing physician. I hope something works out.

Best,

Amy

Kind regards

Ginder

In response to your last question – yes, we have patients on the MP with eczema and the symptoms of the skin condition will get worse before they get better when treated with the MP.

Best,

Amy

Sorry if I was unclear in my previous comment. Vitiligo is associated with autoimmune and inflammatory diseases and also commonly tied to thyroid overexpression and underexpression.

This highly suggests that just like the other conditions that the MP treats, Vitiligo is caused by chronic bacteria. We find that thyroid dysregulation in diseases of “unknown cause” is a direct result of the the way in which chronic bacteria are able to dysregulate the innate immune response.

Also I believe that all people to start the MP with a skin condition thus far have seen the condition respond to treatment. For example the MP treats, psoriasis, acne and all kinds of skin diseases.

Once on the Marshall Protocol your immune system will begin targeting all the bacteria making you ill and there is no way to stop it from targeting certain species – such as those that cause Vitiligo.

So if you do the MP I think there is a very high chance that your Vitiligo will respond to the treatment just like you other disease symptoms. You might start to notice patches of skin color returning and in the end, I would expect your body to fully gain color again.

However we haven’t had any patients with Vitiligo do the MP yet (to my knowledge) so there’s a possibility that your skin might not be affected. You could start the MP as an experiment and stop it if you started to notice a return of your skin color.

However, I encourage you to do the treatment even if your skin color may change. The other symptoms you have are serious and will only get worse if you don’t do the MP. You will keep accumulating chronic pathogens if you don’t to the MP and could develop new symptoms and conditions. You may want to put concerns about your appearance aside because of all the benefits the MP has to offer in terms of allowing you to become a much more healthy and active person in the coming years. But of course, that’s a personal decision.

All the best,

Amy