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	<title>Comments on: Interview with Bonnie B - lupus, Sjogren&#8217;s Syndrome</title>
	<atom:link href="http://bacteriality.com/2008/07/02/interview23/feed/" rel="self" type="application/rss+xml" />
	<link>http://bacteriality.com/2008/07/02/interview23/</link>
	<description></description>
	<pubDate>Thu, 20 Nov 2008 15:25:22 +0000</pubDate>
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		<title>By: tina rich</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-14464</link>
		<dc:creator>tina rich</dc:creator>
		<pubDate>Sat, 15 Nov 2008 20:37:56 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-14464</guid>
		<description>bonnie,.... I live in Mckinney, but I am from Oklahoma. I would love to visit your dr.  I have had sjogrens for 9 years and have been to every dr. with little sucess. I need help. I thank you for your story. I know about the  A/P, and have seen a Dr. in Riverside, CA.... (no sucess) now I have Raynauds. I thank you your time and advice.
Best,
Tina</description>
		<content:encoded><![CDATA[<p>bonnie,&#8230;. I live in Mckinney, but I am from Oklahoma. I would love to visit your dr.  I have had sjogrens for 9 years and have been to every dr. with little sucess. I need help. I thank you for your story. I know about the  A/P, and have seen a Dr. in Riverside, CA&#8230;. (no sucess) now I have Raynauds. I thank you your time and advice.<br />
Best,<br />
Tina</p>
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	<item>
		<title>By: Amy Proal</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-14461</link>
		<dc:creator>Amy Proal</dc:creator>
		<pubDate>Sat, 15 Nov 2008 20:04:02 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-14461</guid>
		<description>Hi Sandy,

I'm so glad you've started Benicar and will hopefully be able to being taking the MP antibiotics soon.  

The site that allows people to best chat with others on the MP is www.curemyth1.org (Th1 refers to diseases caused by bacteria, hence the name).  Patient advocates monitor discussion on the site and there is no charge to become a member.

I recommend starting a post about your progress there as well.

Good luck!

Amy</description>
		<content:encoded><![CDATA[<p>Hi Sandy,</p>
<p>I&#8217;m so glad you&#8217;ve started Benicar and will hopefully be able to being taking the MP antibiotics soon.  </p>
<p>The site that allows people to best chat with others on the MP is <a href="http://www.curemyth1.org"  rel="nofollow">http://www.curemyth1.org</a> (Th1 refers to diseases caused by bacteria, hence the name).  Patient advocates monitor discussion on the site and there is no charge to become a member.</p>
<p>I recommend starting a post about your progress there as well.</p>
<p>Good luck!</p>
<p>Amy</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Sandy</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-14376</link>
		<dc:creator>Sandy</dc:creator>
		<pubDate>Sat, 15 Nov 2008 02:22:08 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-14376</guid>
		<description>Hi. 

Hi live in Tasmania Australia and would love to chat to anyone who is undertaking the Marshall Protocol.
I have recently be diagnosed with Sjorgens and RA.
My GP is very supportive of the MP and has encouraged me to learn as much as possibe from this site.
I started on Benicar last week and so far no adverse reactions but I am aware it is a long process but from what I read well worth it.

If anyone is in Tasmania Aus is interested in sharing their progress with me, please email me.

Cheers Sandy</description>
		<content:encoded><![CDATA[<p>Hi. </p>
<p>Hi live in Tasmania Australia and would love to chat to anyone who is undertaking the Marshall Protocol.<br />
I have recently be diagnosed with Sjorgens and RA.<br />
My GP is very supportive of the MP and has encouraged me to learn as much as possibe from this site.<br />
I started on Benicar last week and so far no adverse reactions but I am aware it is a long process but from what I read well worth it.</p>
<p>If anyone is in Tasmania Aus is interested in sharing their progress with me, please email me.</p>
<p>Cheers Sandy</p>
]]></content:encoded>
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	<item>
		<title>By: Amy Proal</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-13793</link>
		<dc:creator>Amy Proal</dc:creator>
		<pubDate>Fri, 24 Oct 2008 12:23:04 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-13793</guid>
		<description>Hi Robert,

This is Amy (I write the articles on this site).  I'm so glad you are planning to do the MP!  

All the best with your progress!

Amy</description>
		<content:encoded><![CDATA[<p>Hi Robert,</p>
<p>This is Amy (I write the articles on this site).  I&#8217;m so glad you are planning to do the MP!  </p>
<p>All the best with your progress!</p>
<p>Amy</p>
]]></content:encoded>
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	<item>
		<title>By: robert young</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-13782</link>
		<dc:creator>robert young</dc:creator>
		<pubDate>Thu, 23 Oct 2008 07:11:08 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-13782</guid>
		<description>hi bonnie i have had sle lupus for 7 years reading your story feet like you where talking about me it is the same way i still feel i've been on 15mls prednisone for the 5 years thanks to you i will be starting marshalls proctocol soon as i have to get of all meds first that will be the hard part by the sounds of it any way hope you stay fit take care robert young from tasmaina australia</description>
		<content:encoded><![CDATA[<p>hi bonnie i have had sle lupus for 7 years reading your story feet like you where talking about me it is the same way i still feel i&#8217;ve been on 15mls prednisone for the 5 years thanks to you i will be starting marshalls proctocol soon as i have to get of all meds first that will be the hard part by the sounds of it any way hope you stay fit take care robert young from tasmaina australia</p>
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	<item>
		<title>By: Amy Proal</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-12335</link>
		<dc:creator>Amy Proal</dc:creator>
		<pubDate>Sat, 16 Aug 2008 15:29:27 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-12335</guid>
		<description>Thanks for your comment, Bee. 

No good can come out of long-term prednisone therapy. If I were you, I would do whatever it takes to get on the MP. Educate yourself, and, if necessary, educate your doctor. I have lots of helpful links in the comment just above yours. One of those links is to &lt;a href="http://curemyth1.org" rel="nofollow"&gt;CureMyTh1.org&lt;/a&gt;. You're definitely going to want to set up an account there.

Good luck!

Best,
Amy</description>
		<content:encoded><![CDATA[<p>Thanks for your comment, Bee. </p>
<p>No good can come out of long-term prednisone therapy. If I were you, I would do whatever it takes to get on the MP. Educate yourself, and, if necessary, educate your doctor. I have lots of helpful links in the comment just above yours. One of those links is to <a href="http://curemyth1.org"  rel="nofollow">CureMyTh1.org</a>. You&#8217;re definitely going to want to set up an account there.</p>
<p>Good luck!</p>
<p>Best,<br />
Amy</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Bee Romanoff</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-12334</link>
		<dc:creator>Bee Romanoff</dc:creator>
		<pubDate>Sat, 16 Aug 2008 15:17:44 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-12334</guid>
		<description>Thanks, Bonnie for your story, and I wish you so much success.
I have Lupus, sjogrens, and Raynaults .  They have had me on Prednisone now for a year and a half.  I have to admit the joints are better, but I now am covered  with what they call "Lupus Lesions"  
they are horrible.  I am so ready to find someone in the Fort Worth area who is familiar with the Marshall Protocol, to see if I could be a canidate.  I am also a Breast Cancer survivor.  The cancer hit me three months after being diag. with Lupus.  With the Imune system being compromised, the cancer came
came running.  
I Thank you for this indo, and I will study the MP website.
Bee</description>
		<content:encoded><![CDATA[<p>Thanks, Bonnie for your story, and I wish you so much success.<br />
I have Lupus, sjogrens, and Raynaults .  They have had me on Prednisone now for a year and a half.  I have to admit the joints are better, but I now am covered  with what they call &#8220;Lupus Lesions&#8221;<br />
they are horrible.  I am so ready to find someone in the Fort Worth area who is familiar with the Marshall Protocol, to see if I could be a canidate.  I am also a Breast Cancer survivor.  The cancer hit me three months after being diag. with Lupus.  With the Imune system being compromised, the cancer came<br />
came running.<br />
I Thank you for this indo, and I will study the MP website.<br />
Bee</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Amy Proal</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-12160</link>
		<dc:creator>Amy Proal</dc:creator>
		<pubDate>Wed, 06 Aug 2008 23:51:26 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-12160</guid>
		<description>Hi Joy,

I'm sorry to hear about your illness.  The progression of your disease may have been similar to Bonnie's but there is one main difference between the two of you - she has recovered from Sjogren's thanks to a novel treatment called the Marshall Protocol.

The Marshall Protocol (MP) is part of an open internet phase II study monitored by the FDA.  The study is currently closed due to high demand, but since the treatment guidelines have been made public online you can still do the treatment alone with your doctor.  If you wish, you can get on a waiting list to become a member of th official study so that eventually you will have access to 24/7 counseling by nurse moderators.

But all you really need to get started and begin to reverse you illness is to find a doctor willing to prescribe the necessary MP medications.  MP patients take a medication that activates the innate immune system (Benicar) and carefully chosen, pulsed low-dose antibiotics to gradually kill the intracellular and biofilm bacteria that cause Sjoren's and other autoimmune diseases.

The following articles describe the MP in greater detail:

http://bacteriality.com/about-the-mp/

http://bacteriality.com/2007/10/11/antibiotics/

I also recommend watching the following video which gives a good overview of the MP and the science that forms its backbone:

http://bacteriality.com/2008/05/07/mpintro/

If you decide that you want to do the MP, then it is important to find a doctor who is willing to learn about the treatment and follow the guidelines correctly.  There are other MP patients in Colorado and perhaps they can refer you to their doctors.

The best way to try to contact such patients is by posting about your situation at the following website:

www.curemyth1.org (Th1 refers to diseases caused by bacteria).  The patient advocates on the site will answer your questions about the MP free of charge and perhaps be able to help you find a doctor.

Meanwhile, read as much as you can about the treatment - both on this site and the study site itself - www.marshallprotocol.com.

Best,

Amy</description>
		<content:encoded><![CDATA[<p>Hi Joy,</p>
<p>I&#8217;m sorry to hear about your illness.  The progression of your disease may have been similar to Bonnie&#8217;s but there is one main difference between the two of you - she has recovered from Sjogren&#8217;s thanks to a novel treatment called the Marshall Protocol.</p>
<p>The Marshall Protocol (MP) is part of an open internet phase II study monitored by the FDA.  The study is currently closed due to high demand, but since the treatment guidelines have been made public online you can still do the treatment alone with your doctor.  If you wish, you can get on a waiting list to become a member of th official study so that eventually you will have access to 24/7 counseling by nurse moderators.</p>
<p>But all you really need to get started and begin to reverse you illness is to find a doctor willing to prescribe the necessary MP medications.  MP patients take a medication that activates the innate immune system (Benicar) and carefully chosen, pulsed low-dose antibiotics to gradually kill the intracellular and biofilm bacteria that cause Sjoren&#8217;s and other autoimmune diseases.</p>
<p>The following articles describe the MP in greater detail:</p>
<p><a href="http://bacteriality.com/about-the-mp/"  rel="nofollow">http://bacteriality.com/about-the-mp/</a></p>
<p><a href="http://bacteriality.com/2007/10/11/antibiotics/"  rel="nofollow">http://bacteriality.com/2007/10/11/antibiotics/</a></p>
<p>I also recommend watching the following video which gives a good overview of the MP and the science that forms its backbone:</p>
<p><a href="http://bacteriality.com/2008/05/07/mpintro/"  rel="nofollow">http://bacteriality.com/2008/05/07/mpintro/</a></p>
<p>If you decide that you want to do the MP, then it is important to find a doctor who is willing to learn about the treatment and follow the guidelines correctly.  There are other MP patients in Colorado and perhaps they can refer you to their doctors.</p>
<p>The best way to try to contact such patients is by posting about your situation at the following website:</p>
<p><a href="http://www.curemyth1.org"  rel="nofollow">http://www.curemyth1.org</a> (Th1 refers to diseases caused by bacteria).  The patient advocates on the site will answer your questions about the MP free of charge and perhaps be able to help you find a doctor.</p>
<p>Meanwhile, read as much as you can about the treatment - both on this site and the study site itself - <a href="http://www.marshallprotocol.com"  rel="nofollow">http://www.marshallprotocol.com</a>.</p>
<p>Best,</p>
<p>Amy</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Joy Biahop</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-12133</link>
		<dc:creator>Joy Biahop</dc:creator>
		<pubDate>Wed, 06 Aug 2008 04:08:38 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-12133</guid>
		<description>I have a very similar story and I just can't seem to get the help I need with my Sogren's that I've been dealing with for 8 years now...I live in CO. I am 29 years old.  Does anyone have any suggestions about how I can find a doctor who actually knows something about this autoimmune disorder and can help me rather than just continue to dish out anti-biotics after each Parorid swelling flare up I have?
I'd love any direction someone can give...
Thanks,
Joy</description>
		<content:encoded><![CDATA[<p>I have a very similar story and I just can&#8217;t seem to get the help I need with my Sogren&#8217;s that I&#8217;ve been dealing with for 8 years now&#8230;I live in CO. I am 29 years old.  Does anyone have any suggestions about how I can find a doctor who actually knows something about this autoimmune disorder and can help me rather than just continue to dish out anti-biotics after each Parorid swelling flare up I have?<br />
I&#8217;d love any direction someone can give&#8230;<br />
Thanks,<br />
Joy</p>
]]></content:encoded>
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	<item>
		<title>By: Amy Proal</title>
		<link>http://bacteriality.com/2008/07/02/interview23/#comment-11463</link>
		<dc:creator>Amy Proal</dc:creator>
		<pubDate>Sat, 26 Jul 2008 20:00:58 +0000</pubDate>
		<guid isPermaLink="false">http://bacteriality.com/?p=223#comment-11463</guid>
		<description>Hi Joi,

This is Amy (I write the articles on this site).  Perhaps Bonnie will also respond to you, but I want to chime in.

The MP antibiotics are taken at such low doses that their side effects, if any, are essentially null.  Read more about their safety here:

http://bacteriality.com/2008/02/23/misconceptions/#3

The only other drug taken by patients on the Marshall Protocol is Benicar which has an excellent safety profile.  Read more about the safety of the drug here (you will need to take Benicar in order to potentiate the antibiotics):

http://bacteriality.com/2008/02/23/misconceptions/#2

The side effects of doing nothing to treat your Sjogren's or using steroids only to "cover up" the symptoms are the disease are that the illness will inevitably get worse.  The bacteria that cause Sjogren's may also very well spread to other parts of the body where they can cause other new symptoms and even new diseases.

So I definitely think you should take action and use the Marshall Protocol to reverse your disease.  The Masrhall Protocol is part of a phase II study monitored by the FDA.  This video provides a good overview of the treatment and the science that forms its backbone:  

http://bacteriality.com/2008/05/07/mpintro/

My mother had Sjogren's Syndrome and has been on the MP for about 2 years.  She is asymptomatic as well.  Her eye doctor simply doesn't know what to think!

After reading as much information as you can on this site about the Marshall Protocol and on the study site itself (www.marshallprotocol.com) if you have questions about the treatment ask them at the following website:

www.curemyth1.org (Th1 refers to diseases caused by bacteria) The patient advocates at the site will answer your questions free of charge.

All the best,

Amy</description>
		<content:encoded><![CDATA[<p>Hi Joi,</p>
<p>This is Amy (I write the articles on this site).  Perhaps Bonnie will also respond to you, but I want to chime in.</p>
<p>The MP antibiotics are taken at such low doses that their side effects, if any, are essentially null.  Read more about their safety here:</p>
<p><a href="http://bacteriality.com/2008/02/23/misconceptions/#3"  rel="nofollow">http://bacteriality.com/2008/02/23/misconceptions/#3</a></p>
<p>The only other drug taken by patients on the Marshall Protocol is Benicar which has an excellent safety profile.  Read more about the safety of the drug here (you will need to take Benicar in order to potentiate the antibiotics):</p>
<p><a href="http://bacteriality.com/2008/02/23/misconceptions/#2"  rel="nofollow">http://bacteriality.com/2008/02/23/misconceptions/#2</a></p>
<p>The side effects of doing nothing to treat your Sjogren&#8217;s or using steroids only to &#8220;cover up&#8221; the symptoms are the disease are that the illness will inevitably get worse.  The bacteria that cause Sjogren&#8217;s may also very well spread to other parts of the body where they can cause other new symptoms and even new diseases.</p>
<p>So I definitely think you should take action and use the Marshall Protocol to reverse your disease.  The Masrhall Protocol is part of a phase II study monitored by the FDA.  This video provides a good overview of the treatment and the science that forms its backbone:  </p>
<p><a href="http://bacteriality.com/2008/05/07/mpintro/"  rel="nofollow">http://bacteriality.com/2008/05/07/mpintro/</a></p>
<p>My mother had Sjogren&#8217;s Syndrome and has been on the MP for about 2 years.  She is asymptomatic as well.  Her eye doctor simply doesn&#8217;t know what to think!</p>
<p>After reading as much information as you can on this site about the Marshall Protocol and on the study site itself (www.marshallprotocol.com) if you have questions about the treatment ask them at the following website:</p>
<p><a href="http://www.curemyth1.org"  rel="nofollow">http://www.curemyth1.org</a> (Th1 refers to diseases caused by bacteria) The patient advocates at the site will answer your questions free of charge.</p>
<p>All the best,</p>
<p>Amy</p>
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