Typically patients ask for a list of MP doctors from CureMyTh1.org. However, I’m not sure how up to date our list is for Illinois. I would ask for it anyway though.

Here’s our general Knowledge Base page on finding a physician:
http://mpkb.org/doku.php/home:starting:physician:finding

Regards,
Paul

Do you know of any MP docs in the Chicago area? I live here and am having a hard time finding a doctor.

Any ideas you can provide will be appreciated.

Thanks,
Leah

Thanks for writing and for your kind remarks about my research/future. It is a coincidence that you are from Croatia and now live in BC. Both beautiful places! I find it interesting that so many people in BC are affected by the amount of sun they get. It certainly shows a connection between mood and vitamin D production, IMO.

I’m so glad you are doing the MP and it sounds like you are making good improvement. I think Benicar alone is quite potent (certainly the key aspect of the MP), so I expect that you are still killing quite a few pathogens on a daily basis. I hope that you do heal and improve as soon as possible as I certainly understand the feeling of catching up on lost time and getting your life back.

Best,

Amy

congratulations on all you are doing with your life! I am so happy you made it to Vancouver Island, BC. I live in Vancouver, well just outside, and it’s nice to hear people talk about travelling to our part of the world.

I am also Croation, but came to Canada at 5 years of age. So I was twice excited about your other travels to that part of the world. And wow, you have a twin sister!

I often come to your site when I need a boost of courage and I read the success stories and review conference videos etc for more knowledge and insight and more importantlly, MORALE. Thank you so much.

I have had CFS for over 20 years and have been on MP for 10 months. I have had to take benicar alone as the IP was intolerable with the antibiotics. However, after this short period on MP, I do notice that I sleep better and those of us with CFS know how insommnia impacts our total being. The other thing is I have been able to almost get off the antidepressants that I was on for 15 years which were prescribed for pain, fatigue and cognitive difficulties. I am at 1 mg and hope by the new year to being totally off. And that is even with all our cloudy and rainy weather on the westcoast which can be a downer on mood. Most of British Columbians are schizophrenic and our moods change with the weather. It’s a main topic of conversation for us. Amazing how an entire city can be happy one day depending if it is sunny.

So if I have depression now, it is either from light exposure (we had sun yesterday and I had to go out) so today, mood is alittle low or it’s herxing/immunopathology. I am not sure when I will be able to tolerate the antibiotics again but the current path is just the benicar and even with it I have IP although it can be more subtle.

I too hope to regain my life as I continue to heal and have so much to catch up on as many of the other posts have also stated. I got sick at age 31, so there are many, many life experiences to catch up on.

Thanks for all that you have shared, I always learn something and appreciate your dedication to responding to all the posts. Good luck with your future studies and continuted good health.

Regards,

Elizabeth

Thanks for posting but you are asking questions that have already been answered on this site. Please, please try to read the material here to look for answers before writing me.

Yes, several years ago all MP patients were required to block light. Then at least two years ago (or more) Dr. Marshall and team completely revised the light guidelines to reflect what I wrote in my earlier post. The new guidelines can be found on the MP study site – http://www.marshallprotocol.com

Yes, many patients are still very light sensitive but some are not, particularly those with a lower bacterial load.

Benicar has anti-inflammatory properties that are exerted via the Nuclear Kappa B Pathway. I recommend watching this video to fully understand the multiple effects of Benicar:

http://bacteriality.com/2008/05/07/mpintro/

Those doctors who took their patients off Benicar due to kidney levels that went temporarily out of range were doing EXACTLY the opposite of what is stated in our guidelines. This article explains why leaving the patients on Benicar would have almost certainly yielded better outcomes for them. Unfortunately we cannot control what doctors do and many of them do the MP incorrectly.

http://bacteriality.com/2008/02/23/misconceptions/#6

I cannot prove to you the twitching etc are not hypervitaminosis D symptoms. But that explanation makes no sense whatsoever if you read our papers on vitamin D metabolism. I recommend starting with this one:

http://autoimmunityresearch.org/transcripts/AR-Albert-VitD.pdf

No, people do not have to stay on the MP meds forever although some people chose to stay on them even after they are not symptomatic for certain reasons discussed in this article (one of them is NOT fear of stopping the drugs):

http://bacteriality.com/2008/02/23/misconceptions/#13

Hope this helps,

Amy

You said:

“I feel that you may have the wrong impression about light and the MP. When patients start the MP, many become photosensitive. It’s one of many symptoms that arises as part of the bacterial die-off reaction. For this reason such patients block light only because extra light flares their symptoms and makes them feel worse.”

This is completely contradictory to what Marshall stated 3-4 years ago. He insisted that patients not only be covered at all times, but even when they’re indoors. I would argue that most patients are extremely sensitive to both light and sound, even without the meds, or before taking the meds. I’ll trust your word that the meds may increase this effect.

You then said: “However if a patient doesn’t become sensitive to light, they are not required to block it. There is no strict “rule” about light.”

Again, I guess this has completely changed, as for years, if anyone had problems on the protocol they were often blamed on not following it strictly, to say the least.

I’m also puzzled by your characterization of a drug as being ‘organ-protective’. I know two people whose endocrinologists insisted they be taken off the Benicar because they were losing kidney function. It took one friend almost six months to recover from that, and she was extremely ill in the first place.

In your reply to Daniel, you state that anxiety and muscle twitching are related to Guillain -Barre syndrome. I’d just like to add that (as you suggested), they could very well be indeed related to low vitamin d, but also low calcium, low magnesium, heavy metal toxicity, fungal infections, low b-12, low iron, anemia, low carnitine, and on and on and on.

Heavy metals, especially those hidden in tissues that are hard to detect even in hair mineral tests, are one of the lesser known causes of muscle twitching, because they alter other electrolytes. Just something to think about. Andrew Cutler PhD has some excellent info online if you’re interested.

Anyway, I appreciate you answering my question above. From what I gather, not even Dr. Marshall has stopped taking the drugs…so I guess once on the MP, you’re on it for life?

To me personally, that would be scary, but I can understand when one feels better, it’s maybe scarier to stop the drugs.

Kelly

I have stated many times on this site that it usually takes the average MP patient at least 3-4 years to reach a state of recovery thanks to the MP. The amount of chronic pathogens in most of the disease states we work with is tremendous.

So it’s not surprising at all that a patient would still be symptomatic a year into the MP. Also, at such a point in their recovery, the patient is not experiencing symptoms of their disease as much as symptoms of immunopathology or bacterial death. More about immunopathology here:

http://mpkb.org/doku.php/home:mp:immunopathology

Anxiety, muscle twitching etc are characteristic of Guillain -Barre Syndrome. There is no doubt such symptoms should be returning as Sean experiences immunopathology.

Plus, if twitching etc, were due to hypervitaminosis D, then everyone on the MP would develop the same symptoms since all our subject avoid D. But the majority of patients do not exhibit the symptoms you are concerned about, and immunopathology manifests very different for each person. It generally correlates with the exact symptoms of the disease or diseases a patient targeting with the MP.

Best,

Amy

Still sick after a year? That sounds like a very effective treatment protocol! I wonder what else could cause fatigue, anxiety, and muscle twitching… hmm… how about hypovitaminosis D?