Bacteriality — Exploring Chronic Disease

Category: interview (patient)

In 2003, this school teacher from Indiana was suffering from sarocoidosis, fibromyalgia, CFS, and myriad other symptoms. Today, thanks to Autoimmunity Research Foundation’s Marshall Protocol, she considers herself healthy and is traveling the world with her husband. Meet Carole Morgan.

What were you dealing with before starting the MP?

Before I found the MP, I was actually undergoing tests for cancer. I had originally visited the emergency room in December 2003 because my legs had become so swollen and painful that I could hardly walk. An abnormal chest x-ray revealed extremely swollen lymph nodes. My physician referred me to a pulmonologist who ordered more tests, including a CT scan for my bloated and painful stomach. He then referred me to an oncologist, feeling that I probably had cancer. More scans and tests were performed because they just weren’t sure what form of cancer I might be suffering from. First they thought it was lymphoma, then bone cancer, then finally lung cancer. While they were pondering a diagnosis, I started to do my own research on the Internet. Since the second possibility listed from the CT and PET scan reports was sarcoidosis (a disease that I had never before heard of), I started to research sarcoidosis on the web and found sarcinfo.com—a website created by Autoimmunity Research Foundation that was the predecessor to MarshallProtocol.com.

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She used to alarm others with her wheezing and now she can run up the stairs of her house and not even think about her breathing. In fact, this Texan is literally singing about how good she feels thanks to Autoimmunity Research Foundation’s Marshall Protocol. Shirley J. will now take your questions.

When were you diagnosed with sarcoidosis? How did you feel?

I was diagnosed in 2004. It was very scary to be told I had a disease that other doctors believed has no cure. My doctors told me that few people die from sarcoidosis (which is incorrect), but right around that time football player Reggie White died from sarcoidosis. I was very alarmed.

I started researching sarcoidosis on the internet and found myself at a support site. Marshall Protocol nurse moderator Meg Mangin was also a member of the site. She emailed me an overview of the treatment and also warned me not to take prednisone because it is a steroid that suppresses the activity of the immune system and allows L-form bacteria to spread more easily. Then, Belinda Fenter, another MP moderator helped me find an MP doctor (we both live in Texas).

I started reading the information on Sarcinfo.com – a site created by Autoimmunity Research Foundation that was a predecessor to MarshallProtocol.com. As I started to read and understand the science behind the Marshall Protocol, I knew that Dr. Marshall was onto something. It makes so much sense that Th1 illnesses are not genetic but due to the spread of bacteria, and that pulsing the antibiotics gives the body the opportunity to fight these pathogens. I started the MP in January of 2005.

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She’s a Senior Principal Research Scientist and the Research Program Leader of Enzymology & Synthetic Biology for the Division of Entomology, Commonwealth Scientific and Industrial Research Organization, in Canberra, Australia. Despite her broad background in the biological sciences, and her PhD in immunology, she was unaware of the pathogens causing her son’s illness– that is until she learned about Autoimmunity Research Foundation’s Marshall Protocol. Dr. Robyn Russell will now take your questions….

When did Matt start to get sick? What happened?

Everything started in June 2004 when Matt was 12 years old. Matt started to have very painful headaches. It was in June that my husband and I first wrote one of Matt’s teachers a note saying that he wasn’t able to complete his homework because of his headache. We were concerned because a child his age should certainly not be suffering from debilitating headaches. We saw a doctor and he told us that Matt had a sinus infection. Over the next few months he was put on courses of high-dose antibiotics but the head symptoms would always return. Finally the doctor said, “I have no idea why Matt is not getting better.”

Robyn Russell and her son, Matt, who used the Marshall Protocol to recover from a variety of severe symptoms.

We were referred to an ear, nose and throat doctor but there was a three-month waiting list in order to see him. During the time we had to wait for the appointment Matt began to develop urinary tract infections as well, which is uncommon for a boy. We had a family vacation planned to Europe that was centered around a scientific conference that my husband and I were planning to attend. While on the trip, Matt continually woke up with a terrible headache. As the day wore on, we’d do everything in our power to distract him, saying “Look, the Louvre! The Mona Lisa!”, but Matt just wanted to go home and rest, and the distraction was a losing battle. During the trip Matt did find that swimming helped his headache.

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Interview with Sue Andorn – Lyme, Babesia

By 2003 she had physically hit rock bottom and was completely unable to maintain her farm. Now, thanks to Autoimmunity Research Foundation’s Marshall Protocol, she has the energy she had in college. Sue Andorn will now take your questions.

1. How long have you been on the Marshall Protocol (MP)?

I started my 4th year on the Marshall Protocol in June 2007.

2. Tell me about your symptoms before you started the Marshall Protocol? How did you get sick?

When I was a child I was quite healthy. I walked four miles to get to school and had perfect attendance. My first sign of illness occurred in college when I got a polynidal cyst on my tailbone. It burst internally before it could be removed. I now know that it was probably filled with bacteria that subsequently drained throughout my body. I graduated from college with a degree in microbiology and proceeded to work at Sterling Drug Company, where our team began doing research on a measles vaccine. Because we were working with germs, I had to get an Asian Flu vaccine. Within minutes of receiving the injection I went into anaphalactic shock. Six months later I got extremely ill with the flu despite the vaccine. Knowing what I know now, it was a vaccine contaminated with L-form bacteria. I never really recovered. That was the start of a downhill slide that lasted 50 years.

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Two years ago he was bedridden with severe body and joint pain. Now he’s back at work and feels better than he has in years. Join Ival Meyer as he talks about his experience thus far on Autoimmunity Research Foundation’s Marshall Protocol.

1. What were your symptoms like before starting the Marshall Protocol (MP)?

Ival Myer

As I got sick, the first symptoms I felt were confusion, fatigue, and a terrible flu-like feeling. After a while I thought that maybe I’d had a stroke. Of course my doctor told me to take Prozac. Well, I knew I wasn’t crazy and sure enough after about another year my joints started to hurt as well. That is when my doctor diagnosed me with rheumatoid arthritis. Next thing I knew, my rheumatoid arthritis pain started to get very bad. I had a great deal of pain in my hands and feet. The ligaments were so stiff that my toes started to turn and bend out of shape. My hands were getting very close to doing the same thing right when I found the MP. I’ve also had severe upper and lower back pain my whole life. When I was in high school I had to quit sports because of the back pain.

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He’s a 43 year-old from Hamilton, New Zealand. First diagnosed with the lung disease sarcoidosis in 2002, he started Autoimmunity Research Foundation’s Marshall Protocol in October 2003. Guss Wilkinson will now take your questions.

1. What kind of condition were you in before starting the Marshall Protocol?

Granuoles of Borellia burgdorferi, Kersten 1995

I was pretty miserable. I couldn’t take more than five steps at a time before stopping to gasp for breath. Then I had a slew of other symptoms. I was just 8-years old when I started to be plagued by psoriasis (a skin disease) and mild arthritis. Then, in the eighties I developed kidney stones and started to have frequent night sweats. I began to have terrible problems with insomnia. Around 2000 I began to experience short-term memory loss and concentration problems.

2. How did those memory and concentration problems affect your ability to work?

It was embarrassing. My boss came up to me one day and said, “Have you finished your report”? I thought to myself, “What report”!? I had absolutely no memory of my boss having asked me to write the report. But then, what was even more offsetting was that when I checked my files I realized that I had written the report, I just had no memory of writing it. I also had big problems remembering names and often confused simple terminology when I was writing.
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Patient Interviews

About Amy Proal

Amy and Zeus

Amy Proal graduated from Georgetown University in 2005 with a degree in biology. While at Georgetown, she wrote her senior thesis on Chronic Fatigue Syndrome and the Marshall Protocol.

Amy has spoken at several international conferences and authored several peer-reviewed papers on the intersection of bacteria and chronic disease.

If you have questions about the MP, please visit CureMyTh1.org where volunteer patient advocates will answer your questions. Another good resource is the MP Knowledge Base, which is scheduled to be completed within the next year.

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